Mission

Founded in 1981, the National Marfan Foundation (NMF) is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders. The Marfan syndrome is a heritable condition that affects the connective tissue. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs. NMF educates patients, family members and the health care community about the syndrome; advocates and funds clinical and molecular research into the syndrome's detection and treatment; and provides support services for patients and relatives to share experiences and improve their medical care.