Health : Medical Research

Rett Syndrome Research Foundation

Accelerating treatments and a cure for Rett Syndrome

Rating

Overall Rating    
      (59.30)
Organizational Efficiency      
Program Expenses 95.4%    
Administrative Expenses 4.1%    
Fundraising Expenses 0.4%    
Fundraising Efficiency $0.00    
Efficiency Rating    
      (39.30)
Organizational Capacity      
Primary Revenue Growth 13.1%    
Program Expenses Growth 13.2%    
Working Capital Ratio (years) -0.01    
Capacity Rating    
      (20.00)

Income Statement     (FYE 12/2006)

Revenue  
Primary Revenue $2,925,887
Other Revenue $-102,873
Total Revenue $2,823,014
   
Expenses  
Program Expenses $2,734,657
Administrative Expenses $119,382
Fundraising Expenses $11,472
Total Functional Expenses $2,865,511
   
Payments to Affiliates $0
Excess (or Deficit) for the year $-42,497
   
Net Assets $-40,148

Contact Information

Rett Syndrome Research Foundation
4600 Devitt Drive
Cincinnati, OH 45246
tel: (513) 874-3020
fax: (513) 874-2520

Contact Email
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Leadership      (FYE 12/2006)

Name Title Compensation % of Expenses
Craig Robertson Executive Director (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) $96,255 3.35%
Other Salaries of Note
Monica Coenraads Co-Founder, Director of Research (Using information reported on an organization's most recent Form 990, we include as compensation an individual's salary, cash bonuses, and expense accounts and other allowances. We do not include contributions to benefit plans or compensation deferred to a future date.) $63,000 2.19%

Donor Privacy Policy

NO, this charity does not have a written donor privacy policy.

Mission

The Rett Syndrome Research Foundation (RSRF) was founded in late 1999 by a small but passionate group of parents who were concerned by the lack of research being conducted on Rett Syndrome (RTT). RSRF works to fund, promote and accelerate biomedical research for the treatment and cure of RTT. RTT is a debilitating neurological disorder diagnosed almost exclusively in females. Today RSRF is the world's leading private funder of Rett research. In the last five years RSRF has funded 104 projects at premiere institutions totaling over $11 million. Furthermore, RSRF organizes the only annual scientific meeting devoted to RTT. Each June RSRF convenes over 100 researchers and clinicians from around the world for a three day RTT symposium.

Charities Performing Similar Types of Work

Charity Name Overall Score Overall Rating
Rett Syndrome Research Foundation - OH 59.30
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Scleroderma Research Foundation - CA 58.59
Children's Tumor Foundation - NY 58.11
Michael J. Fox Foundation for Parkinson's Research - NY 58.41
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