Health : Diseases, Disorders, and Disciplines
GBS/CIDP Foundation International
Improving the quality of life for individuals and families worldwide affected by GBS, CIDP and variants
Rating
Income Statement (FYE 12/2007)
Contact Information
GBS/CIDP Foundation International
The Holly Building
104 1/2 Forrest Avenue
Narberth, PA 19072
tel: (866) 224-3301
fax: (610) 667-7036
EIN: 22-2474769
Leadership (FYE 12/2007)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Estelle Benson | Executive Director, Founder (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $81,744 | 9.20% |
Donor Privacy Policy
NO, this charity does not have a written donor privacy policy.
Mission
Founded in 1980, GBS/CIDP (Guillain-Barré Syndrome / Chronic Inflammatory Demyelinating Polyneuropathy) Foundation International works to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by: providing a network for all patients, their caregivers and families; providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants; and expanding the Foundation's role in sponsoring research and engaging in patient advocacy. Guillain-Barré Syndrome is an inflammatory disorder of the peripheral nerves those outside the brain and spinal cord. Chronic Inflammatory Demyelinating Polyneuropathy is a rare disorder of the peripheral nerves characterized by gradually increasing weakness of the legs and, to a lesser extent, the arms.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| GBS/CIDP Foundation International - PA | 61.73 | |
| Scleroderma Foundation - MA | 62.29 | |
| American Skin Association - NY | 68.53 | |
| American Autoimmune Related Diseases Association - MI | 65.56 | |
| Organization for Autism Research - VA | 60.91 |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| GBS/CIDP Foundation International - PA | 61.73 | |
| United Spinal Association - NY | 24.44 | 0 Stars |
| American Brain Tumor Association - IL | 66.18 | |
| Crohn's & Colitis Foundation of America - NY | 55.47 | |
| Lupus Foundation of America - DC | 57.50 | |
| American Autoimmune Related Diseases Association - MI | 65.56 |





