Public Benefit : Fundraising Organizations
FRAXA Research Foundation
Finding a cure for Fragile X
Rating
| Overall Rating |  |
||
| (55.25) | |||
| Organizational Efficiency | |||
| Program Expenses | 81.0% | ||
| Administrative Expenses | 3.9% | ||
| Fundraising Expenses | 15.0% | ||
| Fundraising Efficiency | $0.06 | ||
| Efficiency Rating |  |
||
| (33.10) | |||
| Organizational Capacity | |||
| Primary Revenue Growth | 34.3% | ||
| Program Expenses Growth | 2.1% | ||
| Working Capital Ratio (years) | 2.77 | ||
| Capacity Rating | |
||
| (22.15) |
Income Statement (FYE 12/2007)
Contact Information
FRAXA Research Foundation
45 Pleasant Street
Newburyport, MA 01950
tel: (978) 462-1866
fax: (978) 463-9985
EIN: 04-3222167
Leadership (FYE 12/2007)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Katherine N. Clapp | Executive Director, Co-Founder (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $72,857 | 3.96% | |
| Other Salaries of Note | ||||
| Michael Tranfaglia | Medical Director, Co-Founder (Using information reported on an organization's most recent Form 990, we include as compensation an individual's salary, cash bonuses, and expense accounts and other allowances. We do not include contributions to benefit plans or compensation deferred to a future date.) | $89,108 | 4.84% | |
Donor Privacy Policy
YES, this charity has a written donor privacy policy.
Mission
FRAXA Research Foundation was founded in 1994 by three parents of children with Fragile X syndrome, Katie Clapp, Michael Tranfaglia, MD, and Kathy May, to support scientific research aimed at finding a treatment and a cure for Fragile X syndrome. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease, and X-linked mental retardation. FRAXA funds grants and fellowships at universities all over the world. We have funded more than $17 million dollars in top-notch science. Fragile X is the most common inherited cause of intellectual impairment and the most common known genetic cause of autism.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| FRAXA Research Foundation - MA | 55.25 | |
| Food Allergy Initiative - NY | 68.57 |  |
| MPD Foundation - IL | 57.28 | |
| National Foundation for Facial Reconstruction - NY | 60.39 | |
| CDC Foundation - GA | 69.06 | |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| FRAXA Research Foundation - MA | 55.25 | |
| Michael J. Fox Foundation for Parkinson's Research - NY | 63.73 | |
| Elton John AIDS Foundation - NY | 69.20 | |
| Cancer Fund of America Support Services - MI | 22.50 | 0 Stars |
| Prostate Cancer Foundation - CA | 51.74 | |
| LUNGevity Foundation - IL | 62.87 | |
