Health : Diseases, Disorders, and Disciplines
National MPS Society
Support for families. Research for a cure.
Rating
Income Statement (FYE 12/2007)
Contact Information
National MPS Society
4220 Apex Highway
Suite 140
Durham, NC 27713
tel: (877) 677-1001
fax: (919) 806-2055
EIN: 11-2734849
Mail donations to:
P.O. Box 14686
Durham, NC 27709
Leadership (FYE 12/2007)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Barbara Wedehase | Executive Director (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $79,960 | 7.13% |
Donor Privacy Policy
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Mission
The National MPS Society exists to find cures for MPS (Mucopolysaccharidoses) and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Since 1974 the Society has supported individuals and families affected with MPS and related diseases. MPS and related diseases are genetic lysosomal storage diseases caused by the body's inability to produce specific enzymes. While the symptoms of MPS and related diseases may vary from one syndrome to another, there are many similarities. Affected individuals often have mental retardation, cloudy corneas, short stature, stiff joints, incontinence, speech and hearing impairment, chronic runny nose, hernia, heart disease, hyperactivity, depression, pain and a dramatically shortened life span.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| National MPS Society - NC | 56.73 | |
| Glaucoma Research Foundation - CA | 65.90 | |
| Brain Tumor Society - MA | 69.25 | |
| National Transplant Assistance Fund - PA | 69.20 | |
| National Organization for Rare Disorders - CT | 69.59 |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| National MPS Society - NC | 56.73 | |
| United Spinal Association - NY | 24.44 | 0 Stars |
| American Brain Tumor Association - IL | 66.18 | |
| Crohn's & Colitis Foundation of America - NY | 55.47 | |
| Lupus Foundation of America - DC | 57.50 | |
| American Autoimmune Related Diseases Association - MI | 65.56 |





