Health : Diseases, Disorders, and Disciplines
International Fibrodysplasia Ossificans Progressiva Association
Supporting families dealing with Fibrodysplasia Ossificans Progressiva
Rating
| Overall Rating |  |
||
| (69.09) | |||
| Organizational Efficiency | |||
| Program Expenses | 90.9% | ||
| Administrative Expenses | 5.1% | ||
| Fundraising Expenses | 3.9% | ||
| Fundraising Efficiency | $0.05 | ||
| Efficiency Rating |  |
||
| (39.09) | |||
| Organizational Capacity | |||
| Primary Revenue Growth | 6.9% | ||
| Program Expenses Growth | 12.4% | ||
| Working Capital Ratio (years) | 1.20 | ||
| Capacity Rating | |
||
| (30.00) |
Income Statement (FYE 12/2007)
Contact Information
International Fibrodysplasia Ossificans Progressiva Association
P.O. Box 196217
Winter Springs, FL 32719
tel: (407) 365-4194
fax: (407) 365-3213
EIN: 59-2918100
Leadership (FYE 12/2007)
| Name | Title | Compensation | % of Expenses | |
|---|---|---|---|---|
| Linda Daugherty | Executive Director (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $52,000 | 4.06% |
Donor Privacy Policy
YES, this charity has a written donor privacy policy.
Mission
Established in 1988, the International Fibrodysplasia Ossificans Progressiva Association (IFOPA) is a support organization for families dealing with a rare genetic condition known as Fibrodysplasia Ossificans Progressiva (FOP). Simply stated, FOP causes muscles and other connective tissue to turn into bone, eventually causing immobility as FOP bone fuses joints. The IFOPA's mission is to advance and support the five keys to a future without FOP: research, the key to a treatment and cure; education, the key to preventing misdiagnosis and finding more FOP families; advocacy, the key to living independently with full equality; hope, the key to support, survival and community; and cure, the key to a better future for those with FOP and the people who love them.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| International Fibrodysplasia Ossificans Progressiva Association - FL | 69.09 | |
| Huntington's Disease Society of America - NY | 58.07 |  |
| National MPS Society - NC | 56.73 | |
| Cystic Fibrosis Research, Inc. - CA | 56.22 | |
| Brain Tumor Society - MA | 69.25 | |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| International Fibrodysplasia Ossificans Progressiva Association - FL | 69.09 | |
| United Spinal Association - NY | 24.44 | 0 Stars |
| American Brain Tumor Association - IL | 66.18 | |
| Crohn's & Colitis Foundation of America - NY | 55.47 | |
| Lupus Foundation of America - DC | 57.50 | |
| American Autoimmune Related Diseases Association - MI | 65.56 | |
