Health : Diseases, Disorders, and Disciplines
Spina Bifida Association
Promoting the prevention of spina bifida and enhancing the lives of all affected
Rating
Income Statement (FYE 12/2007)
Contact Information
Spina Bifida Association
4590 MacArthur Boulevard, NW
Suite 250
Washington, DC 20007
tel: (800) 621-3141
fax: (202) 944-3295
EIN: 58-1342181
Leadership (FYE 12/2007)
| Name | Title | Compensation | % of Expenses | Compensation from Affiliates |
|---|---|---|---|---|
| Cindy Brownstein | Chief Executive Officer (The person identified as holding the highest position of management, and therefore who would normally be responsible for carrying out the mission of the charity and leading the organization on a day-to-day basis.) | $164,618 | 6.03% | $77,193 |
Donor Privacy Policy
Opt-out: We have determined that this charity has a privacy policy which requires you to tell the charity to remove your name and contact information from mailing lists it sells, trades or shares. Opt-out terms and conditions vary from one charity to the next, but all require the donor to initiate the act.
Mission
The Spina Bifida Association (SBA) serves adults and children who live with the challenges of spina bifida. Spina bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn't close completely. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service. Through its network of chapters, SBA has a presence in more than 125 communities nationwide and touches thousands of people each year. Lives are changed by the programs SBA has created, the services the organization provides, and the accomplishments of its advocacy efforts.
Charities Performing Similar Types of Work
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Spina Bifida Association - DC | 60.24 | |
| The Cornelia de Lange Syndrome Foundation - CT | 55.99 | |
| Cerebral Palsy, Inc. - WI | 52.44 | |
| HHT Foundation International, Inc. - MD | 59.26 | |
| Angelman Syndrome Foundation - IL | 60.10 |
| Charity Name | Overall Score | Overall Rating |
|---|---|---|
| Spina Bifida Association - DC | 60.24 | |
| March of Dimes - NY | 49.00 | |
| Angelman Syndrome Foundation - IL | 60.10 | |
| United Cerebral Palsy - DC | 42.62 | |
| National Down Syndrome Society - NY | 49.79 |





