Support Charity Navigator

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Phelan McDermid Syndrome Foundation

Mission

To make today better and the future brighter for everyone living with Phelan-McDermid syndrome — from the moment of diagnosis to the delivery of treatments and cures.

Vision

A future free of Phelan-McDermid syndrome

Goals

1.Create opportunities to network, share, inform, & support families in the PMSF community through educational webinars & podcasts, conferences, support groups, & programs for newly diagnosed families.
2.Build and manage a targeted research portfolio, including natural history studies, genetic registry, clinical trials, educational materials, and travel assistance.
3.Create a culture of philanthropy that raises awareness through board and staff education, collecting audio and video family stories, & training a national corps of volunteers to promote awareness.

OSPREY FL | EIN: 04-3673104

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

8 SORRENTO DR,
OSPREY FL 34229-9610

https://pmsf.org

941-485-8000

Phelan McDermid Syndrome Foundation

Mission

To make today better and the future brighter for everyone living with Phelan-McDermid syndrome — from the moment of diagnosis to the delivery of treatments and cures.

Vision

A future free of Phelan-McDermid syndrome

Goals

1.Create opportunities to network, share, inform, & support families in the PMSF community through educational webinars & podcasts, conferences, support groups, & programs for newly diagnosed families.
2.Build and manage a targeted research portfolio, including natural history studies, genetic registry, clinical trials, educational materials, and travel assistance.
3.Create a culture of philanthropy that raises awareness through board and staff education, collecting audio and video family stories, & training a national corps of volunteers to promote awareness.

OSPREY FL | EIN: 04-3673104

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

8 SORRENTO DR,
OSPREY FL 34229-9610

https://pmsf.org

941-485-8000

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Phelan McDermid Syndrome Foundation

Mission

Vision

Goals

Phelan McDermid Syndrome Foundation

Mission

Vision

Goals

Beacon Report