Support Charity Navigator

{"scroll_effect":"yes","scroll_offset":2,"size":40,"basket_color":"#ffffff","basket_bg_color":"#234ae0","scroll_visibility":"hide","_title":"","_margin":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_margin_tablet":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_margin_mobile":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_padding":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_padding_tablet":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_padding_mobile":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_element_width":"","_element_width_tablet":"","_element_width_mobile":"","_element_custom_width":null,"_element_custom_width_tablet":null,"_element_custom_width_mobile":null,"_grid_column":"","_grid_column_tablet":"","_grid_column_mobile":"","_grid_column_custom":null,"_grid_column_custom_tablet":null,"_grid_column_custom_mobile":null,"_grid_row":"","_grid_row_tablet":"","_grid_row_mobile":"","_grid_row_custom":null,"_grid_row_custom_tablet":null,"_grid_row_custom_mobile":null,"_flex_align_self":"","_flex_align_self_tablet":"","_flex_align_self_mobile":"","_flex_order":"","_flex_order_tablet":"","_flex_order_mobile":"","_flex_order_custom":null,"_flex_order_custom_tablet":null,"_flex_order_custom_mobile":null,"_flex_size":"","_flex_size_tablet":"","_flex_size_mobile":"","_flex_grow":null,"_flex_grow_tablet":null,"_flex_grow_mobile":null,"_flex_shrink":null,"_flex_shrink_tablet":null,"_flex_shrink_mobile":null,"_element_vertical_align":null,"_element_vertical_align_tablet":null,"_element_vertical_align_mobile":null,"_position":"","_offset_orientation_h":null,"_offset_x":null,"_offset_x_tablet":null,"_offset_x_mobile":null,"_offset_x_end":null,"_offset_x_end_tablet":null,"_offset_x_end_mobile":null,"_offset_orientation_v":null,"_offset_y":null,"_offset_y_tablet":null,"_offset_y_mobile":null,"_offset_y_end":null,"_offset_y_end_tablet":null,"_offset_y_end_mobile":null,"_z_index":"","_z_index_tablet":"","_z_index_mobile":"","_element_id":"","_css_classes":"","e_display_conditions":"","_element_cache":"","motion_fx_motion_fx_scrolling":"","motion_fx_translateY_effect":null,"motion_fx_translateY_direction":null,"motion_fx_translateY_speed":null,"motion_fx_translateY_affectedRange":null,"motion_fx_translateX_effect":null,"motion_fx_translateX_direction":null,"motion_fx_translateX_speed":null,"motion_fx_translateX_affectedRange":null,"motion_fx_opacity_effect":null,"motion_fx_opacity_direction":null,"motion_fx_opacity_level":null,"motion_fx_opacity_range":null,"motion_fx_blur_effect":null,"motion_fx_blur_direction":null,"motion_fx_blur_level":null,"motion_fx_blur_range":null,"motion_fx_rotateZ_effect":null,"motion_fx_rotateZ_direction":null,"motion_fx_rotateZ_speed":null,"motion_fx_rotateZ_affectedRange":null,"motion_fx_scale_effect":null,"motion_fx_scale_direction":null,"motion_fx_scale_speed":null,"motion_fx_scale_range":null,"motion_fx_transform_origin_x":null,"motion_fx_transform_origin_y":null,"motion_fx_devices":null,"motion_fx_range":null,"motion_fx_motion_fx_mouse":"","motion_fx_mouseTrack_effect":null,"motion_fx_mouseTrack_direction":null,"motion_fx_mouseTrack_speed":null,"motion_fx_tilt_effect":null,"motion_fx_tilt_direction":null,"motion_fx_tilt_speed":null,"handle_motion_fx_asset_loading":"","sticky":"","sticky_on":null,"sticky_offset":null,"sticky_offset_tablet":null,"sticky_offset_mobile":null,"sticky_effects_offset":null,"sticky_effects_offset_tablet":null,"sticky_effects_offset_mobile":null,"sticky_anchor_link_offset":null,"sticky_anchor_link_offset_tablet":null,"sticky_anchor_link_offset_mobile":null,"sticky_parent":null,"_animation":"","_animation_tablet":"","_animation_mobile":"","animation_duration":null,"_animation_delay":null,"_transform_rotate_popover":"","_transform_rotateZ_effect":null,"_transform_rotateZ_effect_tablet":null,"_transform_rotateZ_effect_mobile":null,"_transform_rotate_3d":null,"_transform_rotateX_effect":null,"_transform_rotateX_effect_tablet":null,"_transform_rotateX_effect_mobile":null,"_transform_rotateY_effect":null,"_transform_rotateY_effect_tablet":null,"_transform_rotateY_effect_mobile":null,"_transform_perspective_effect":null,"_transform_perspective_effect_tablet":null,"_transform_perspective_effect_mobile":null,"_transform_translate_popover":"","_transform_translateX_effect":null,"_transform_translateX_effect_tablet":null,"_transform_translateX_effect_mobile":null,"_transform_translateY_effect":null,"_transform_translateY_effect_tablet":null,"_transform_translateY_effect_mobile":null,"_transform_scale_popover":"","_transform_keep_proportions":"yes","_transform_scale_effect":null,"_transform_scale_effect_tablet":null,"_transform_scale_effect_mobile":null,"_transform_scaleX_effect":null,"_transform_scaleX_effect_tablet":null,"_transform_scaleX_effect_mobile":null,"_transform_scaleY_effect":null,"_transform_scaleY_effect_tablet":null,"_transform_scaleY_effect_mobile":null,"_transform_skew_popover":"","_transform_skewX_effect":null,"_transform_skewX_effect_tablet":null,"_transform_skewX_effect_mobile":null,"_transform_skewY_effect":null,"_transform_skewY_effect_tablet":null,"_transform_skewY_effect_mobile":null,"_transform_flipX_effect":"","_transform_flipY_effect":"","_transform_rotate_popover_hover":"","_transform_rotateZ_effect_hover":null,"_transform_rotateZ_effect_hover_tablet":null,"_transform_rotateZ_effect_hover_mobile":null,"_transform_rotate_3d_hover":null,"_transform_rotateX_effect_hover":null,"_transform_rotateX_effect_hover_tablet":null,"_transform_rotateX_effect_hover_mobile":null,"_transform_rotateY_effect_hover":null,"_transform_rotateY_effect_hover_tablet":null,"_transform_rotateY_effect_hover_mobile":null,"_transform_perspective_effect_hover":null,"_transform_perspective_effect_hover_tablet":null,"_transform_perspective_effect_hover_mobile":null,"_transform_translate_popover_hover":"","_transform_translateX_effect_hover":null,"_transform_translateX_effect_hover_tablet":null,"_transform_translateX_effect_hover_mobile":null,"_transform_translateY_effect_hover":null,"_transform_translateY_effect_hover_tablet":null,"_transform_translateY_effect_hover_mobile":null,"_transform_scale_popover_hover":"","_transform_keep_proportions_hover":"yes","_transform_scale_effect_hover":null,"_transform_scale_effect_hover_tablet":null,"_transform_scale_effect_hover_mobile":null,"_transform_scaleX_effect_hover":null,"_transform_scaleX_effect_hover_tablet":null,"_transform_scaleX_effect_hover_mobile":null,"_transform_scaleY_effect_hover":null,"_transform_scaleY_effect_hover_tablet":null,"_transform_scaleY_effect_hover_mobile":null,"_transform_skew_popover_hover":"","_transform_skewX_effect_hover":null,"_transform_skewX_effect_hover_tablet":null,"_transform_skewX_effect_hover_mobile":null,"_transform_skewY_effect_hover":null,"_transform_skewY_effect_hover_tablet":null,"_transform_skewY_effect_hover_mobile":null,"_transform_flipX_effect_hover":"","_transform_flipY_effect_hover":"","_transform_transition_hover":{"unit":"px","size":"","sizes":[]},"motion_fx_transform_x_anchor_point":null,"motion_fx_transform_x_anchor_point_tablet":null,"motion_fx_transform_x_anchor_point_mobile":null,"motion_fx_transform_y_anchor_point":null,"motion_fx_transform_y_anchor_point_tablet":null,"motion_fx_transform_y_anchor_point_mobile":null,"_background_background":"","_background_color":null,"_background_color_stop":null,"_background_color_stop_tablet":null,"_background_color_stop_mobile":null,"_background_color_b":null,"_background_color_b_stop":null,"_background_color_b_stop_tablet":null,"_background_color_b_stop_mobile":null,"_background_gradient_type":null,"_background_gradient_angle":null,"_background_gradient_angle_tablet":null,"_background_gradient_angle_mobile":null,"_background_gradient_position":null,"_background_gradient_position_tablet":null,"_background_gradient_position_mobile":null,"_background_image":null,"_background_image_tablet":null,"_background_image_mobile":null,"_background_position":null,"_background_position_tablet":null,"_background_position_mobile":null,"_background_xpos":null,"_background_xpos_tablet":null,"_background_xpos_mobile":null,"_background_ypos":null,"_background_ypos_tablet":null,"_background_ypos_mobile":null,"_background_attachment":null,"_background_repeat":null,"_background_repeat_tablet":null,"_background_repeat_mobile":null,"_background_size":null,"_background_size_tablet":null,"_background_size_mobile":null,"_background_bg_width":null,"_background_bg_width_tablet":null,"_background_bg_width_mobile":null,"_background_video_link":null,"_background_video_start":null,"_background_video_end":null,"_background_play_once":null,"_background_play_on_mobile":null,"_background_privacy_mode":null,"_background_video_fallback":null,"_background_slideshow_gallery":null,"_background_slideshow_loop":null,"_background_slideshow_slide_duration":null,"_background_slideshow_slide_transition":null,"_background_slideshow_transition_duration":null,"_background_slideshow_background_size":null,"_background_slideshow_background_size_tablet":null,"_background_slideshow_background_size_mobile":null,"_background_slideshow_background_position":null,"_background_slideshow_background_position_tablet":null,"_background_slideshow_background_position_mobile":null,"_background_slideshow_lazyload":null,"_background_slideshow_ken_burns":null,"_background_slideshow_ken_burns_zoom_direction":null,"_background_hover_background":"","_background_hover_color":null,"_background_hover_color_stop":null,"_background_hover_color_stop_tablet":null,"_background_hover_color_stop_mobile":null,"_background_hover_color_b":null,"_background_hover_color_b_stop":null,"_background_hover_color_b_stop_tablet":null,"_background_hover_color_b_stop_mobile":null,"_background_hover_gradient_type":null,"_background_hover_gradient_angle":null,"_background_hover_gradient_angle_tablet":null,"_background_hover_gradient_angle_mobile":null,"_background_hover_gradient_position":null,"_background_hover_gradient_position_tablet":null,"_background_hover_gradient_position_mobile":null,"_background_hover_image":null,"_background_hover_image_tablet":null,"_background_hover_image_mobile":null,"_background_hover_position":null,"_background_hover_position_tablet":null,"_background_hover_position_mobile":null,"_background_hover_xpos":null,"_background_hover_xpos_tablet":null,"_background_hover_xpos_mobile":null,"_background_hover_ypos":null,"_background_hover_ypos_tablet":null,"_background_hover_ypos_mobile":null,"_background_hover_attachment":null,"_background_hover_repeat":null,"_background_hover_repeat_tablet":null,"_background_hover_repeat_mobile":null,"_background_hover_size":null,"_background_hover_size_tablet":null,"_background_hover_size_mobile":null,"_background_hover_bg_width":null,"_background_hover_bg_width_tablet":null,"_background_hover_bg_width_mobile":null,"_background_hover_video_link":null,"_background_hover_video_start":null,"_background_hover_video_end":null,"_background_hover_play_once":null,"_background_hover_play_on_mobile":null,"_background_hover_privacy_mode":null,"_background_hover_video_fallback":null,"_background_hover_slideshow_gallery":null,"_background_hover_slideshow_loop":null,"_background_hover_slideshow_slide_duration":null,"_background_hover_slideshow_slide_transition":null,"_background_hover_slideshow_transition_duration":null,"_background_hover_slideshow_background_size":null,"_background_hover_slideshow_background_size_tablet":null,"_background_hover_slideshow_background_size_mobile":null,"_background_hover_slideshow_background_position":null,"_background_hover_slideshow_background_position_tablet":null,"_background_hover_slideshow_background_position_mobile":null,"_background_hover_slideshow_lazyload":null,"_background_hover_slideshow_ken_burns":null,"_background_hover_slideshow_ken_burns_zoom_direction":null,"_background_hover_transition":{"unit":"px","size":"","sizes":[]},"_border_border":"","_border_width":null,"_border_width_tablet":null,"_border_width_mobile":null,"_border_color":null,"_border_radius":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_border_radius_tablet":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_border_radius_mobile":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_box_shadow_box_shadow_type":"","_box_shadow_box_shadow":null,"_box_shadow_box_shadow_position":null,"_border_hover_border":"","_border_hover_width":null,"_border_hover_width_tablet":null,"_border_hover_width_mobile":null,"_border_hover_color":null,"_border_radius_hover":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_border_radius_hover_tablet":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_border_radius_hover_mobile":{"unit":"px","top":"","right":"","bottom":"","left":"","isLinked":true},"_box_shadow_hover_box_shadow_type":"","_box_shadow_hover_box_shadow":null,"_box_shadow_hover_box_shadow_position":null,"_border_hover_transition":{"unit":"px","size":"","sizes":[]},"_mask_switch":"","_mask_shape":null,"_mask_image":null,"_mask_image_tablet":null,"_mask_image_mobile":null,"_mask_size":null,"_mask_size_tablet":null,"_mask_size_mobile":null,"_mask_size_scale":null,"_mask_size_scale_tablet":null,"_mask_size_scale_mobile":null,"_mask_position":null,"_mask_position_tablet":null,"_mask_position_mobile":null,"_mask_position_x":null,"_mask_position_x_tablet":null,"_mask_position_x_mobile":null,"_mask_position_y":null,"_mask_position_y_tablet":null,"_mask_position_y_mobile":null,"_mask_repeat":null,"_mask_repeat_tablet":null,"_mask_repeat_mobile":null,"hide_desktop":"","hide_tablet":"","hide_mobile":"","_attributes":"","custom_css":""}

Phelan McDermid Syndrome Foundation

Mission

To make today better and the future brighter for everyone living with Phelan-McDermid syndrome — from the moment of diagnosis to the delivery of treatments and cures.

Vision

A future free of Phelan-McDermid syndrome

Goals

1.Create opportunities to network, share, inform, & support families in the PMSF community through educational webinars & podcasts, conferences, support groups, & programs for newly diagnosed families.
2.Build and manage a targeted research portfolio, including natural history studies, genetic registry, clinical trials, educational materials, and travel assistance.
3.Create a culture of philanthropy that raises awareness through board and staff education, collecting audio and video family stories, & training a national corps of volunteers to promote awareness.

OSPREY FL | EIN: 04-3673104

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

8 SORRENTO DR,
OSPREY FL 34229-9610

https://pmsf.org

941-485-8000

Phelan McDermid Syndrome Foundation

Mission

To make today better and the future brighter for everyone living with Phelan-McDermid syndrome — from the moment of diagnosis to the delivery of treatments and cures.

Vision

A future free of Phelan-McDermid syndrome

Goals

1.Create opportunities to network, share, inform, & support families in the PMSF community through educational webinars & podcasts, conferences, support groups, & programs for newly diagnosed families.
2.Build and manage a targeted research portfolio, including natural history studies, genetic registry, clinical trials, educational materials, and travel assistance.
3.Create a culture of philanthropy that raises awareness through board and staff education, collecting audio and video family stories, & training a national corps of volunteers to promote awareness.

OSPREY FL | EIN: 04-3673104

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

8 SORRENTO DR,
OSPREY FL 34229-9610

https://pmsf.org

941-485-8000

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

Disclosing the charity’s website promotes transparency and provides access to the public.

Source: Public data from IRS Form 990. Fiscal Year 2025.

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes Disclosing the charity’s website promotes transparency and provides access to the public. Source: Public data from IRS Form 990. Fiscal Year 2025.
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Phelan McDermid Syndrome Foundation

Mission

Vision

Goals

Phelan McDermid Syndrome Foundation

Mission

Vision

Goals

Beacon Report