Mission: PROMOTE RESEARCH, EDUCATION & PRACTICE IN THE FIELD OF INTELLECTUAL & DEVELOPMENTAL DISABILITIES.

American Assoc on Intellectual and Developmental Disabilities is a 501(c)(3) organization, with an IRS ruling year of 1951, and donations are tax-deductible.

Is this your nonprofit? Access the Nonprofit Portal to submit data and download your rating toolkit.


Contact Information

  www.aaidd.org

 8403 COLESVILLE RD STE 900
Silver Spring MD 20910-3369



...  ...  ...  ...  

Encompass Rating System by Charity Navigator


Overall Score

100

out of 100

This charity's score is a passing score.
This overall score is calculated from multiple beacon scores: 85% Finance & Accountability, 10% Leadership & Adaptability, and 5% Culture & Community


Learn about the Encompass Rating System: Overview | FAQ | Release Notes

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...   Finance & Accountability


This score provides an assessment of a nonprofit's financial health (stability, efficiency and sustainability) and its commitment to governance practices and policies.


Finance & Accountability Score

100

out of 100

The score earned by American Assoc on Intellectual and Developmental Disabilities is a passing score

This V4 of the Finance & Accountability Score provides a baseline measure of an organization’s health including the indicators listed in the report below.

This score represents Form 990 data from 2019, the latest year published by the IRS.



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Finance & Accountability Report

100

of 100 points

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Program Expense

Program Expense Ratio

83.22%

Higher effect on score

More data  


The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.


Program Expense Percentage

Amount of Credit Received

70% or higherFull Credit
60% - 69.9%Partial Credit
Below 50%Zero Points for Both Program Expense percentage AND Liabilities to Assets

Source: IRS Form 990

Board Composition

9/9 Independent

Higher effect on score


Charity Navigator looks for at least 3 board members, with more than 50% of those members identified as independent (not salaried).


The presence of an independent governing body is strongly recommended by many industry professionals to allow for full deliberation and diversity of thinking on governance and other organizational matters.


Source: IRS Form 990

Independent Audit or Financial Review

Audited

Higher effect on score


An Audit, Review, or Compilation provides important information about financial accountability and accuracy. Organizations are scored based on their Total Revenue Amount:

Total Revenue Amount

Expectation to Receive Credit

$1 million or higherExpected to complete an audit
$250,000 - $1 millionExpected to complete an audit, review, or compilation
Less than $250,000No expectation (removed from scoring methodology)

Source: IRS Form 990

Liabilities to Assets Ratio

17.20%

Lower effect on score


The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990). This ratio is an indicator of an organization’s solvency and/or long-term sustainability.

Liabilities to Assets Ratio

Amount of Credit Received

Less than 50%Full Credit
50% - 59.9%Partial Credit
60% or moreNo Credit

Source: IRS Form 990

Website

Listed

Lower effect on score


Charity Navigator looks for a website on the Form 990 as an accountability and transparency metric.


Nonprofits act in the public trust and reporting publicly on activities is an important component.


Source: IRS Form 990

Conflict of Interest Policy

Listed

Lower effect on score


Charity Navigator looks for the existence of a conflict of interest policy on the Form 990 as an accountability and transparency measure.


This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.


Source: IRS Form 990

Board Meeting Minutes

Documented

Lower effect on score


Charity Navigator looks to confirm on the Form 990 that the organization has this process in place as an accountability and transparency measure.


An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.


Source: IRS Form 990

Document Retention and Destruction

Listed

Lower effect on score


Charity Navigator looks for the existence of a document retention and destruction policy per the Form 990 as an accountability and transparency measure.


This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.


Source: IRS Form 990

Whistleblower Policy

Listed

Lower effect on score


Charity Navigator looks for the existence of a whistleblower policy per the Form 990 as an accountability and transparency measure.


This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.


Source: IRS Form 990

Additional Information

Unscored

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Total Revenue and Expenses

Total Revenue and Expenses

This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.

Salary of Key Persons

Presented here are up to five of this organization's highest compensated employees. This compensation data includes salary, cash bonuses, and expense accounts and is displayed exactly how it is reported to the IRS. The amounts include salary, cash bonuses, and expense accounts. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. Read the IRS policies for compensation reporting



MARGARET A NYGREN EDD, CHIEF EXECUTIVE OFFICER

$239,649


PAUL D AITKEN CPA CGMA, DIRECTOR, FINANCE & ADMINISTRATION

$142,252


RAVITA MAHARAJ PHD, DIRECTOR, ASSESSMENTS PROGRAM

$110,970


LAURA LEE MCINTYRE PHD, PRESIDENT

$0


ELIZABETH PERKINS PHD, IMMEDIATE PAST PRESIDENT

$0


Source: IRS Form 990 (page 7), filing year 2019

Business Master File Data

Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website


Activities:

Scientific research (diseases) (BMF activity code: 161)

Contact or sponsored scientific research for industry (BMF activity code: 180)

Other school related activities (BMF activity code: 059)


Foundation Status:

Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi) (BMF foundation code: 15)


Affiliation:

Central - the organization is a central type organization (no group exemption) of a National, Regional or Geographic grouping of organizations. (BMF affiliation code: 1)

Data Sources: IRS Forms 990

The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to view this organization's Forms 990 on the IRS website (if any are available).

Pandemic Response

Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them. Charities may submit their own pandemic responses through their nonprofit portal.


American Assoc on Intellectual and Developmental Disabilities reported being impacted by COVID-19 in the following ways:
  • Program Delivery

  • Revenue


How COVID-19 impacted the organization's operations financially:

The demand for in-person training and other services diminished during the public health emergency, which resulted in lower revenues for 2020.


How COVID-19 impacted the organization's delivery of programs:

In-person trainings were redesigned for online delivery and online platforms (Zoom, etc.) were used to support all other activities.


How this organization adapted to changing conditions caused by COVID-19:

The organization was able to rapidly pivot its delivery mechanisms for training and rapidly developed and delivered new content for ongoing professional education.


Innovations the organization intends to continue permanently after the pandemic:

Lessons learned in conducting online education will improve our future educational offerings.


...   Impact & Results


This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.


Impact & Results Score

Not Currently Scored

American Assoc on Intellectual and Developmental Disabilities cannot currently be evaluated by our Encompass Rating Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.

Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.

Learn more about Impact & Results.

Do you work at American Assoc on Intellectual and Developmental Disabilities? Join the waitlist for an updated Impact & Results score.


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Additional Information

Unscored

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Largest Programs

Largest Programs



American Assoc on Intellectual and Developmental Disabilities reported its three largest programs on its FY 2019 Form 990 as:


$1,864,376

Spent in most recent FY

60%

Percent of program expenses


PUBLICATIONS: AMERICAN ASSOCIATION ON INTELLECTUAL AND DEVELOPMENT DISABILITIES (AAIDD) EDUCATES THE PUBLIC ON AREAS OF INTELLECTUAL AND DEVELOPMENTAL DISABILITIES BOTH THROUGH ITS SCHOLARLY JOURNALS  ... (More)


$974,929

Spent in most recent FY

31%

Percent of program expenses


EDUCATION & TRAINING: IN ORDER TO FULFILL ITS CONSTITUTIONAL DIRECTIVE OF ENCOURAGING RESEARCH AND DISSEMINATING KNOWLEDGE IN THE FIELD OF INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, AMERICAN ASSOCIA ... (More)


$246,129

Spent in most recent FY

7%

Percent of program expenses


MEMBERSHIP: SPECIAL PROJECT ACTIVITIES KEEP MEMBERS INFORMED ON ISSUES THAT AFFECT PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES. THE MEMBERSHIP DEPARTMENT PROCESSES EACH MEMBER APPLICATION.


...   Leadership & Adaptability


This score provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.


Leadership & Adaptability Score

100

out of 100

The score earned by American Assoc on Intellectual and Developmental Disabilities is a passing score.

Encompass Rating V4 provides an evaluation of the organization's Leadership & Adaptability through the nonprofit organization submitting a survey response directly to Charity Navigator.


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Leadership & Adaptability Report

100

of 100 points

Mission

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s mission


PROMOTE RESEARCH, EDUCATION & PRACTICE IN THE FIELD OF INTELLECTUAL & DEVELOPMENTAL DISABILITIES.


Source: Nonprofit submitted responses

Vision

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.


AAIDD envisions a society that fully includes people with disabilities.


Source: Nonprofit submitted responses

Strategic Goals

The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.


Goal One: Enhance the capacity of professionals who work with individuals with intellectual and developmental disabilities.

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Goal Two: Promote the development of a society that fully includes individuals with intellectual and developmental disabilities.

Goal Type: This goal reflects our commitment to further our advocacy work for our organization and or cause area.


Goal Three: Sustain an effective, responsive, well managed, and responsibly-governed organization.

Goal Type: Invest in the capacity of our organization (financial, management, technical, etc.).


Source: Nonprofit submitted responses

Leadership Development

The nonprofit provides evidence of investment in leadership development


Describe an investment in leadership

AAIDD provides ongoing professional development opportunities, including courses, conferences, and webinars that advance professional capacity. In addition, AAIDD provides, mentorship, networking , and leadership development opportunities through its its Interest Networks and Committees.

Source: Nonprofit submitted responses

Mobilizing for Mission

The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.


This organization mobilizes for mission in the following ways:
  • Strategic Partnerships

  • Networks of Collective Impact Efforts

  • Thought Leadership

  • Raising Awareness

  • Community Building

  • Policy Advocacy

What are this organization’s external mobilizaton efforts?

AAIDD and its members are the thought leaders in research, practice, and policy information in the field of IDD. AAIDD partners with other national organizations to achieve shared national policy goals by developing and disseminating position statements and educating policy makers on the most current research findings. AAIDD routinely comments on proposed federal rule-making and has submitted numerous amicus (friend of the court) briefs in federal cases important to people with IDD. AAIDD publishes three (3) leading peer-reviewed scholarly journals and a catalogue of the most important books and assessment tools in the field of IDD. AAIDD hosts an annual conference and numerous online educational offerings. In addition, AAIDD sponsors and supports the conferences and trainings of its partner organizations. AAIDD disseminates useful information through its journals and books programs, educational programs, newsletters, social media, and commentary in the popular press.

Source: Nonprofit submitted responses

Story of Adaptability

The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.


AAIDD pivoted in both its operations and external activities to enable the delivery of important content remotely without a reduction in staffing. Utilizing its existing IT infrastructure, all staff were able to effectively work from home with very little notice. Much of the organization's core activities (publishing, developing educational content, promoting professional development, collaborations, and networking, and keeping members informed on important developments) were heavily reliant on technology prior to the public health emergency. In response to the pandemic, the in-person elements of this work were transitioned to the online environment. While this change has helped us push the boundaries of what is possible , a major lesson learned is that the personal connections are as highly valued as the content by the end users and we hope to be able to again offer those connections.

Source: Nonprofit submitted responses

...   Culture & Community


This score provides an assessment of the organization's engagement with the constituents it serves, a practice we term Constituent Feedback. When organizations listen to constituents, they are able to better deliver on programs and meet the needs of stakeholders. A future version of this Beacon will also assess an organization's people operations and its Diversity, Equity and Inclusion (DEI) metrics.


Culture & Community Score

100

out of 100

The score earned by American Assoc on Intellectual and Developmental Disabilities is a passing score.

Encompass Rating V4 provides an evaluation of an organization's Culture and Community by measuring its Constituent Feedback practices (see report below). Constituent Feedback data provides 100% of the basis for the initial evaluation of the Culture & Community Beacon.


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Culture & Community Report

100

of 100 points

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Constituent Feedback

Constituent Feedback

Full Credit


This organization reported that it is collecting feedback.


Here's how this organization is listening and learning from the people they serve:


How is your organization collecting feedback from the people you serve?

Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings or town halls


How is your organization using feedback from the people you serve?

To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve


With whom does your organization share the feedback you got from the people you serve?

The people we serve, Our staff, Our board


What challenges does your organization face in collecting feedback from the people you serve?

We don't have any major challenges to collecting feedback


Briefly describe a recent change that your organization made in response to feedback from the people you serve.

Note: The organization did not respond to this question.



Methodology


Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective. We've partnered with GuideStar by Candid to survey organizations about their feedback practices. Nonprofit organizations can fill out the How We Listen section of their Candid profile to receive a rating.


Charity Navigator awards full credit for this Beacon to every nonprofit that is eligible for an Encompass Rating that completes the survey, in recognition of their willingness to publicly share this information with the nonprofit and philanthropic communities. This data is not evaluated for quality at this time. Validation will be added in future iterations of this Beacon.

Analysis and Research


Like the overall Encompass Rating System, the Culture & Community Beacon is designed to evolve as metrics are developed and ready for integration. Our partnership with Feedback Labs and Guidestar by Candid, and other partners including Fund for Shared Insight, GlobalGiving, and Keystone Accountability, enables us to launch the first version of this beacon with Constituent Feedback information collected on Candid's site.


Feedback practices have been shown to support better Diversity, Equity, and Inclusion outcomes, an essential area of assessment that we intend to further expand and develop in the future. Feedback Labs has documented several studies which indicate that beyond achieving organizational goals, nonprofits that are attentive and responsive to concerns and ideas raised by beneficiaries establish stronger relationships with the people they serve, promote greater equity, and empower constituents in ways that can help to ensure better long-term outcomes. You can find resources to help nonprofits improve their feedback practices here.

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