Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)

Mission

The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America), is the only national non-profit that provides all-inclusive care to those with Epidermolysis Bullosa (EB). <br>Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) - "The Worst Disease you've never heard of". <br>We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. <br>EB is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters or tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists.

Boulder CO | EIN: 11-2519726
Profile managed by nonprofit | Is this your nonprofit?
501(c)(3) organization
1023 Walnut Street, Suite 100,
Boulder CO 80302
https://www.debra.org/
833-332-7287

Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)

Mission

The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America), is the only national non-profit that provides all-inclusive care to those with Epidermolysis Bullosa (EB). <br>Our mission is to improve the lives of those impacted by Epidermolysis Bullosa (EB) - "The Worst Disease you've never heard of". <br>We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. <br>EB is a group of rare disorders caused by a mutation in one of 18 genes. People with EB share the lifelong challenge of extremely fragile skin that blisters or tears from minor friction or trauma. The list of medical complications EB causes may be long and often requires multiple interventions from a range of medical specialists.

Boulder CO | EIN: 11-2519726
Profile managed by nonprofit | Is this your nonprofit?
501(c)(3) organization
1023 Walnut Street, Suite 100,
Boulder CO 80302
https://www.debra.org/
833-332-7287

Beacon Report

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Accountability Panel
ScoreMetric
100%
Website Reported on Tax Form:Yes
100%
No Material Diversion of Assets:Yes
100%
Financial Statements:Yes
0%
Audit Oversight Committee:No
0%
No Loans Reported To or From Officers:No
100%
Records Retention Policy:Yes
0%
Tax Form Disclosed on Website:No
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