National MPS Society

Mission

The National MPS Society exists to find cures for MPS (Mucopolysaccharidoses) and ML (Mucolipidosis). We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases. Since 1974 the Society has supported individuals and families affected with MPS and related diseases. MPS and related diseases are genetic lysosomal storage diseases caused by the body's inability to produce specific enzymes. While the symptoms of MPS and ML may vary from one syndrome to another, there are many similarities. Affected individuals often have mental retardation, cloudy corneas, short stature, stiff joints, incontinence, speech and hearing impairment, chronic runny nose, hernia, heart disease, hyperactivity, depression, pain and a dramatically shortened life span.

Vision

Our vision is to be recognized as the global leader in MPS and ML research funding and support for those impacted by MPS and ML.

Goals

1.Adhere to the best practices of high-performing non-profits that lead to organizational excellence.
2.Fund the best research and advance the field of young researchers. Serve the MPS and ML community continuously, leading to treatments and cures, effectively supporting individuals and families, and leading grassroots advocacy efforts.
3.Grow finances steadily and aggressively to invest in research, family support programs, grassroots advocacy, and awareness efforts

Durham NC | EIN: 11-2734849

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1007 Slater Rd., Suite 220,
Durham NC 27703

https://mpssociety.org/

919-806-0101

National MPS Society

Mission

Vision

Our vision is to be recognized as the global leader in MPS and ML research funding and support for those impacted by MPS and ML.

Goals

1.Adhere to the best practices of high-performing non-profits that lead to organizational excellence.
2.Fund the best research and advance the field of young researchers. Serve the MPS and ML community continuously, leading to treatments and cures, effectively supporting individuals and families, and leading grassroots advocacy efforts.
3.Grow finances steadily and aggressively to invest in research, family support programs, grassroots advocacy, and awareness efforts

Durham NC | EIN: 11-2734849

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1007 Slater Rd., Suite 220,
Durham NC 27703

https://mpssociety.org/

919-806-0101

Beacon Report

Great
Good
Needs Improvement
Poor
Not Scored
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

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Mission

Mission

Beacon Report