Muscular Dystrophy Association

Mission

Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions. For nearly 75 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA's mission is to empower the people we serve to live longer, more independent lives. MDA’s mission is to empower the people we serve to live longer, more independent lives.

Vision

We envision a world where disability inclusion is the norm and research breakthroughs lead to treatments and cures for the neuromuscular disease community.

Goals

1.MDA’s new publishing platform, Quest Media, the redevelopment of mda.org including a Life Resources Center, and the MOVR (neuromuscular observational research) data-hub.
2.MDA Clinical & Scientific Conference, Recreation Programs: Summer Camp & Family Getaways, Care Center Network, Resource Center, expanded Gene Therapy Support Network, Community/Medical Education.
3.Professional development for data-informed decision making, infrastructure development w/ to bring staff capacity to a level both necessary and sufficient to achieve revenue and mission goals.

Chicago IL | EIN: 13-1665552

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1016 W Jackson Blvd #1073, STE 3550,
Chicago IL 60607

https://www.mda.org/

312-260-5900

Muscular Dystrophy Association

Mission

Vision

We envision a world where disability inclusion is the norm and research breakthroughs lead to treatments and cures for the neuromuscular disease community.

Goals

1.MDA’s new publishing platform, Quest Media, the redevelopment of mda.org including a Life Resources Center, and the MOVR (neuromuscular observational research) data-hub.
2.MDA Clinical & Scientific Conference, Recreation Programs: Summer Camp & Family Getaways, Care Center Network, Resource Center, expanded Gene Therapy Support Network, Community/Medical Education.
3.Professional development for data-informed decision making, infrastructure development w/ to bring staff capacity to a level both necessary and sufficient to achieve revenue and mission goals.

Chicago IL | EIN: 13-1665552

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1016 W Jackson Blvd #1073, STE 3550,
Chicago IL 60607

https://www.mda.org/

312-260-5900

Beacon Report

Great
Good
Needs Improvement
Poor
Not Scored
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Website Disclosures:5 of 5

SCORE95%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
95%	Website Disclosures:5 of 5

Science behind the numbers

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Mission

Mission

Beacon Report