National Organization for Rare Disorders, Inc.

Mission

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Quincy MA | EIN: 13-3223946

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1900 Crown Colony Drive, Suite 310,
Quincy MA 02169

https://www.rarediseases.org/

203-744-0100

National Organization for Rare Disorders, Inc.

Mission

Quincy MA | EIN: 13-3223946

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1900 Crown Colony Drive, Suite 310,
Quincy MA 02169

https://www.rarediseases.org/

203-744-0100

Beacon Report

Great
Good
Needs Improvement
Poor
Not Scored
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Website Disclosures:3 of 5

SCORE50%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
50%	Website Disclosures:3 of 5

Science behind the numbers

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Mission

Mission

Beacon Report