Support Charity Navigator

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Huntington's Disease Society of America

Mission

The Huntington's Disease Society of America (HDSA) is a national, voluntary health organization dedicated to improving the lives of people with Huntington's Disease and their families. Founded in 1967, HDSA promotes and supports research and medical efforts to eradicate Huntington's Disease; assists people and families affected by Huntington's Disease to cope with the problems presented by the disease; and educates the public and health professionals about Huntington's Disease. Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason.

Vision

A world free of Huntington’s disease.

Goals

1.By utilizing online platforms, HDSA was able to provide more resources for families affected by HD by introducing online support groups, telehealth services and more.
2.Implementing new protocols and systems, HDSA has taken massive strides in improving the overall management of finances and tech.
3.HDSA continues to be the world leader in Huntington’s disease communication and education.

New York NY | EIN: 13-3349872

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

505 Eighth Avenue, Suite 1402,
New York NY 10018

https://www.hdsa.org/

212-242-1968

Huntington's Disease Society of America

Mission

Vision

A world free of Huntington’s disease.

Goals

1.By utilizing online platforms, HDSA was able to provide more resources for families affected by HD by introducing online support groups, telehealth services and more.
2.Implementing new protocols and systems, HDSA has taken massive strides in improving the overall management of finances and tech.
3.HDSA continues to be the world leader in Huntington’s disease communication and education.

New York NY | EIN: 13-3349872

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

505 Eighth Avenue, Suite 1402,
New York NY 10018

https://www.hdsa.org/

212-242-1968

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:No

SCORE0%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
0%	Tax Form Disclosed on Website:No

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Huntington's Disease Society of America

Mission

Vision

Goals

Huntington's Disease Society of America

Mission

Vision

Goals

Beacon Report