Jeffrey Modell Foundation

Mission

The Jeffrey Modell Foundation was established by Vicki and Fred Modell in memory of their son Jeffrey, who died at the age of 15 of pneumonia due to an underlying Primary Immunodeficiency (PI) disease. The Foundation is dedicated to early and precise diagnosis, meaningful treatments, and ultimately cures of the ever increasing known PI Diseases. Our focus is: to affirm our absolute commitment to clinical and basic research in order to better understand and treat PI; to serve as a national and international source for the dissemination of information and education into the diagnosis and treatment of genetic immunodeficiencies; to serve as an advocate on behalf of patients and families to assure their access to excellent and comprehensive care; and to promote public awareness of the PI diseases through programs.

Vision

The Jeffrey Modell Foundation works tirelessly to create a world in which there are cures for PI by

Goals

1.The main goal of JMF is earliest possible diagnosis. PI is a genetic condition that is chronic, serious, and often fatal; however, early diagnosis through global newborn screening helps to save lives.
2.JMF is dedicated to ensuring access to appropriate, meaningful treatments for PI. Our “Roots & Wings” program provides travel support for critically ill children requiring lifesaving treatment.
3.The goal of JMF is to support efforts to develop a cure for PI through basic and clinical research, physician education, public awareness and advocacy, so that all children enjoy a healthy future.

New York NY | EIN: 13-3380237

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

780 Third Avenue,
New York NY 10017

https://www.info4pi.org/

212-819-0200

Jeffrey Modell Foundation

Mission

Vision

The Jeffrey Modell Foundation works tirelessly to create a world in which there are cures for PI by

Goals

1.The main goal of JMF is earliest possible diagnosis. PI is a genetic condition that is chronic, serious, and often fatal; however, early diagnosis through global newborn screening helps to save lives.
2.JMF is dedicated to ensuring access to appropriate, meaningful treatments for PI. Our “Roots & Wings” program provides travel support for critically ill children requiring lifesaving treatment.
3.The goal of JMF is to support efforts to develop a cure for PI through basic and clinical research, physician education, public awareness and advocacy, so that all children enjoy a healthy future.

New York NY | EIN: 13-3380237

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

780 Third Avenue,
New York NY 10017

https://www.info4pi.org/

212-819-0200

Beacon Report

Great
Good
Needs Improvement
Poor
Not Scored
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:No

SCORE0%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
0%	Tax Form Disclosed on Website:No

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Mission

Mission

Beacon Report