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    Project ALS

    Mission

    Jenifer Estess, her family, and friends, started Project ALS in 1998, when Jenifer was diagnosed with amyotrophic lateral sclerosis (ALS). Upon discovering that there were no effective treatments, Project ALS set out to put medicine into place. The mission today is to bring the best science to ALS patients in the form of effective treatments and, ultimately, a cure. Project ALS has raised over $70 million, currently directing 87% to research programs. The majority of fundraising proceeds goes to support investigations in genetics, drug discovery, stem cells, and disease pathways. The hallmark of Project ALS research is collaboration. Researchers who were competitors now play on the same team, meet regularly, share data openly, and work rationally, constructively, and aggressively toward shared goals.

    New York NY | EIN: 13-4019464
    Profile managed by nonprofit | Is this your nonprofit?
    501(c)(3) organization
    801 Riverside Drive, #6G,
    New York NY 10032
    https://projectals.org/
    855-900-2257

    Project ALS

    Mission

    Jenifer Estess, her family, and friends, started Project ALS in 1998, when Jenifer was diagnosed with amyotrophic lateral sclerosis (ALS). Upon discovering that there were no effective treatments, Project ALS set out to put medicine into place. The mission today is to bring the best science to ALS patients in the form of effective treatments and, ultimately, a cure. Project ALS has raised over $70 million, currently directing 87% to research programs. The majority of fundraising proceeds goes to support investigations in genetics, drug discovery, stem cells, and disease pathways. The hallmark of Project ALS research is collaboration. Researchers who were competitors now play on the same team, meet regularly, share data openly, and work rationally, constructively, and aggressively toward shared goals.

    New York NY | EIN: 13-4019464
    Profile managed by nonprofit | Is this your nonprofit?
    501(c)(3) organization
    801 Riverside Drive, #6G,
    New York NY 10032
    https://projectals.org/
    855-900-2257

    Beacon Report

    • Great
    • Good
    • Needs Improvement
    • Poor
    • Not Scored
    • Additional Information
    Accountability Panel
    ScoreMetric
    100%
    Website Reported on Tax Form:Yes
    100%
    No Material Diversion of Assets:Yes
    100%
    Financial Statements:Yes
    100%
    Audit Oversight Committee:Yes
    100%
    No Loans Reported To or From Officers:Yes
    100%
    Records Retention Policy:Yes
    100%
    Tax Form Disclosed on Website:Yes
    Science behind the numbers(opens in new tab)