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    Familial Dysautonomia Foundation

    Mission

    The Familial Dysautonomia Foundation is a nonprofit organization supporting the best possible medical care and scientific research for the benefit of people afflicted with Familial Dysautonomia (FD). <br><br>The Foundation also conducts social service and public awareness programs for the benefit of the FD community and for those in the general population who may be at risk for FD. <br><br>FD is a rare genetic disease that affects the autonomic and sensory nervous systems of children from birth. The most striking symptoms of FD are reduced sensitivity to pain and temperature, and the inability to produce tears. But FD is much more than 'no pain and no tears', it affects every major system of the body, causing severe respiratory, cardiac, orthopedic, digestive and vision problems.

    New York NY | EIN: 13-6145280
    Profile managed by nonprofit | Is this your nonprofit?
    501(c)(3) organization

    Familial Dysautonomia Foundation

    Mission

    The Familial Dysautonomia Foundation is a nonprofit organization supporting the best possible medical care and scientific research for the benefit of people afflicted with Familial Dysautonomia (FD). <br><br>The Foundation also conducts social service and public awareness programs for the benefit of the FD community and for those in the general population who may be at risk for FD. <br><br>FD is a rare genetic disease that affects the autonomic and sensory nervous systems of children from birth. The most striking symptoms of FD are reduced sensitivity to pain and temperature, and the inability to produce tears. But FD is much more than 'no pain and no tears', it affects every major system of the body, causing severe respiratory, cardiac, orthopedic, digestive and vision problems.

    New York NY | EIN: 13-6145280
    Profile managed by nonprofit | Is this your nonprofit?
    501(c)(3) organization

    Beacon Report

    • Great
    • Good
    • Needs Improvement
    • Poor
    • Not Scored
    • Additional Information
    Accountability Panel
    ScoreMetric
    100%
    Website Reported on Tax Form:Yes
    100%
    No Material Diversion of Assets:Yes
    100%
    Financial Statements:Yes
    100%
    Records Retention Policy:Yes
    100%
    Tax Form Disclosed on Website:Yes
    Science behind the numbers(opens in new tab)