Mission: TO HELP UNDERINSURED PEOPLE WITH LIFE-THREATENING, CHRONIC AND RARE DISEASES GET THE MEDICATIONS AND TREATMENT THEY NEED BY PAYING FOR THEIR OUT-OF-POCKET COSTS AND  ... (More)

Patient Access Network Foundation is a 501(c)(3) organization, with an IRS ruling year of 2004, and donations are tax-deductible.

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Contact Information

  www.panfoundation.org

 805 15TH ST NW STE 500
Washington DC 20005-2207



...  ...  ...  ...  

Encompass Rating System by Charity Navigator


Overall Score

100

out of 100

This charity's score is a passing score.
This overall score is calculated from multiple beacon scores: 35% Finance & Accountability, 50% Impact & Results, 10% Leadership & Adaptability, and 5% Culture & Community


Learn about the Encompass Rating System: Overview | FAQ | Release Notes

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...   Finance & Accountability


This score provides an assessment of a nonprofit's financial health (stability, efficiency and sustainability) and its commitment to governance practices and policies.


Finance & Accountability Score

100

out of 100

The score earned by Patient Access Network Foundation is a passing score

This V4 of the Finance & Accountability Score provides a baseline measure of an organization’s health including the indicators listed in the report below.

This score represents Form 990 data from 2019, the latest year published by the IRS.



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Finance & Accountability Report

100

of 100 points

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Program Expense

Program Expense Ratio

97.88%

Higher effect on score

More data  


The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.


Program Expense Percentage

Amount of Credit Received

70% or higherFull Credit
60% - 69.9%Partial Credit
Below 50%Zero Points for Both Program Expense percentage AND Liabilities to Assets

Source: IRS Form 990

Board Composition

12/12 Independent

Higher effect on score


Charity Navigator looks for at least 3 board members, with more than 50% of those members identified as independent (not salaried).


The presence of an independent governing body is strongly recommended by many industry professionals to allow for full deliberation and diversity of thinking on governance and other organizational matters.


Source: IRS Form 990

Independent Audit or Financial Review

Audited

Higher effect on score


An Audit, Review, or Compilation provides important information about financial accountability and accuracy. Organizations are scored based on their Total Revenue Amount:

Total Revenue Amount

Expectation to Receive Credit

$1 million or higherExpected to complete an audit
$250,000 - $1 millionExpected to complete an audit, review, or compilation
Less than $250,000No expectation (removed from scoring methodology)

Source: IRS Form 990

Liabilities to Assets Ratio

24.41%

Lower effect on score


The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990). This ratio is an indicator of an organization’s solvency and/or long-term sustainability.

Liabilities to Assets Ratio

Amount of Credit Received

Less than 50%Full Credit
50% - 59.9%Partial Credit
60% or moreNo Credit

Source: IRS Form 990

Website

Listed

Lower effect on score


Charity Navigator looks for a website on the Form 990 as an accountability and transparency metric.


Nonprofits act in the public trust and reporting publicly on activities is an important component.


Source: IRS Form 990

Conflict of Interest Policy

Listed

Lower effect on score


Charity Navigator looks for the existence of a conflict of interest policy on the Form 990 as an accountability and transparency measure.


This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.


Source: IRS Form 990

Board Meeting Minutes

Documented

Lower effect on score


Charity Navigator looks to confirm on the Form 990 that the organization has this process in place as an accountability and transparency measure.


An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.


Source: IRS Form 990

Document Retention and Destruction

Listed

Lower effect on score


Charity Navigator looks for the existence of a document retention and destruction policy per the Form 990 as an accountability and transparency measure.


This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.


Source: IRS Form 990

Whistleblower Policy

Listed

Lower effect on score


Charity Navigator looks for the existence of a whistleblower policy per the Form 990 as an accountability and transparency measure.


This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.


Source: IRS Form 990

Additional Information

Unscored

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Total Revenue and Expenses

Total Revenue and Expenses

This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.

Salary of Key Persons

Presented here are up to five of this organization's highest compensated employees. This compensation data includes salary, cash bonuses, and expense accounts and is displayed exactly how it is reported to the IRS. The amounts include salary, cash bonuses, and expense accounts. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. Read the IRS policies for compensation reporting



DANIEL KLEIN, PRESIDENT & CEO

$410,152


NECHUMAH GETZ, VICE PRESIDENT OF OPERATIONS

$221,465


AMY NILES, VICE PRESIDENT, EXTERNAL AFFAIRS

$220,077


SCOTT SCHLENOFF, CFO & TREASURER

$218,921


LEENA PATEL, DIRECTOR OF DEVELOPMENT

$171,901


Source: IRS Form 990 (page 7), filing year 2019

Business Master File Data

Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website


Activities:

Activity data not reported from the IRS


Foundation Status:

Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi) (BMF foundation code: 15)


Affiliation:

Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)

Data Sources: IRS Forms 990

The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to view this organization's Forms 990 on the IRS website (if any are available).

Pandemic Response

Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them. Charities may submit their own pandemic responses through their nonprofit portal.


Patient Access Network Foundation reported being impacted by COVID-19 in the following ways:
  • None


How COVID-19 impacted the organization's operations financially:

During the COVID-19 pandemic, the PAN Foundation maintained a strong financial position due to the generosity of its corporate and individual donors and conservative investment profile. Having a strong financial position also ensured that PAN could deliver a robust response to help patients affected by COVID-19.


How COVID-19 impacted the organization's delivery of programs:

It was clear from the onset of the pandemic that the population that PAN serves—older adults on Medicare with serious and chronic illnesses—would be most adversely impacted by the pandemic. Within three weeks of the pandemic’s onset, PAN launched its COVID-19 Financial Support Fund, which helped 8,500 Medicare beneficiaries who had been diagnosed with COVID-19 or affected by the pandemic get financial support for everyday essentials, such as food and groceries. PAN also created a financial resources directory to connect patients in need with other sources of financial aid during the pandemic.


How this organization adapted to changing conditions caused by COVID-19:

The PAN Foundation transitioned its entire workforce—including its patient call center with over 100 patient support specialists—to remote work when the public health emergency was declared. Thanks to our adaptability and preparedness, there was no interruption in the organization’s program delivery for nearly 70 disease-specific financial assistance programs, ensuring that patients could still get a grant to start and stay on treatment. PAN also conducted remote onboarding and training for 80 temporary employees who annually support the organization during the high patient enrollment period.


Innovations the organization intends to continue permanently after the pandemic:

Remote work has been a positive experience for the PAN Foundation. Approximately 70 percent of PAN’s workforce will continue to work remotely, including the professionals operating our patient call center. The switch to a hybrid workforce presents opportunities to hire the best professionals, regardless of location. PAN will continue to have some staff work in-person from its Washington, D.C. headquarters. The pandemic ultimately revealed PAN’s resiliency as an organization. We will continue to innovate to meet the needs of patients with serious illnesses and adapt to a continuously changing environment.


...   Impact & Results


This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.


Impact & Results Score

100

out of 100

Patient Access Network Foundation is highly cost-effective, earning a passing score.


Impact

$1,500 provides $1,500 in financial assistance to a patient in need.


Do you work at Patient Access Network Foundation? Join the waitlist for an updated Impact & Results score.


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Impact & Results Report

100

of 100 points


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Rated Program

Rated Program


Program

Financial Assistance for Medical Conditions

Activities

The nonprofit provides financial assistance to patients with life-threatening, chronic or rare diseases.

Program Type

Financial Assistance for Patients with Medical Conditions

Beneficiaries Served

People with illnesses; People living in poverty

Program Geography

United States

Time Period of Data

1/1/17 to 12/31/17


Learn how we assess the impact of nonprofits

Outcomes and Cost

Outcomes: Changes in the lives of those served by a nonprofit. They can be caused by the nonprofit.

Costs: The money spent by a nonprofit and its partners and beneficiaries.

Impact: Outcome caused by a nonprofit relative to its cost.

Cost-effectiveness: A judgment as to whether the cost was a good use of resources to cause the outcome.


Outcome Metric

Increase in income for a patient with medical conditions


Outcome Data Source

Ratings are based on data the nonprofit itself collects on its work. We use the most recent year with sufficient data. Typically, this data allows us to calculate direct changes in participants' lives, such as increased income.


Outcome data collected during the program. The nonprofit publicly reports data on the dollar value of all financial assistance provided to patients, which we use to calculate the additional income received.


Method for Attributing Outcomes

We don't know if the observed changes were caused by the nonprofit's program or something else happening at the same time (e.g., a participant got a raise). To determine causation, we take the outcomes we observe and subtract an estimate of the outcomes that would have happened even without the program (i.e., counterfactual outcomes).


We estimate the dollar amount of financial assistance attributable to the nonprofit by comparing the financial assistance given by the nonprofit to the financial assistance that would have been provided in the absence of the nonprofit (the "counterfactual"). In this case, we estimate the counterfactual to be zero based on two assumptions. First, we assume there is functionally no upper limit to the amount of cash transfers that continue to be valuable to patients as they are far from reaching the point of diminishing marginal returns, such that aid provided by one nonprofit does not displace aid provided by another. Second, we assume that nonprofits work independently and do not coordinate the provision of aid to the same patient. As a result, all aid provided by the nonprofit to patients with medical conditions can be directly attributable to the nonprofit.


Cost Data Source

After estimating the program's outcomes, we need to determine how much it cost to achieve those outcomes. All monetary costs are counted, whether they are borne by a nonprofit service deliverer or by the nonprofit’s public and private partners.


Program cost data reported by the nonprofit. Partner and beneficiary costs reported by the nonprofit or estimated by Charity Navigator.


Cost Calculation

$354,279,087 program costs + $0 partner costs + $0 beneficiary costs = $354,279,087 total costs


Impact and Determination

We calculate impact, defined as the change in outcomes attributable to a program divided by the cost to achieve those outcomes.

Impact Calculation

$354,279,087 total costs / 347,865,265 of financial assistance provided = roughly $1000 provides $1000 in financial assistance to a patient in need.

Benchmark for Rating

Impact & Results scores of financial assistance to patients programs are based on income generated relative to cost. Programs receive an Impact & Results score of 100 if they increase income for a recipient by more than $1.50 for every $1 spent and a score of 75 if income increases by more than $0.85 for every $1 spent. If a nonprofit reports impact but doesn't meet the benchmark for cost-effectiveness, it earns a score of 50.

Determination

Highly cost-effective

Nonprofit Comment

Before publishing, we ask every nonprofit we can to review our work, offer corrections and provide a comment.


This nonprofit did not provide a comment

Analysis Details


Analysis conducted in 2019 by ImpactMatters. An analyst searched the Form 990s, annual reports, audited financials and the website of the nonprofit to calculate impact and rate cost-effectiveness. A second analyst conducted quality control.

Additional Information

Unscored

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Largest Programs

Largest Programs



Patient Access Network Foundation reported its largest program on its FY 2019 Form 990 as:


$402,208,436

Spent in most recent FY

100%

Percent of program expenses


AT THE PAN FOUNDATION, WE ENVISION A NATION IN WHICH EVERYONE CAN GET ACCESS TO MEDICALLY NECESSARY PRESCRIPTION MEDICATIONS. WITH THE SUPPORT OF OUR GENEROUS DONORS AND IN COLLABORATION WITH HEALTHCA ... (More)


...   Leadership & Adaptability


This score provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.


Leadership & Adaptability Score

100

out of 100

The score earned by Patient Access Network Foundation is a passing score.

Encompass Rating V4 provides an evaluation of the organization's Leadership & Adaptability through the nonprofit organization submitting a survey response directly to Charity Navigator.


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Leadership & Adaptability Report

100

of 100 points

Mission

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s mission


To help underinsured people with life-threatening, chronic and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs and advocating for improved access and affordability.


Source: Nonprofit submitted responses

Vision

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.


We envision a nation in which everyone can get the healthcare they need.


Source: Nonprofit submitted responses

Strategic Goals

The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.


Goal One: Expand the safety net for underinsured people with life-threatening, chronic, and rare diseases to access the treatment they need.

Goal Type: New program(s) based on observed changes in needs among our constituencies/communities served.


Goal Two: Educate and drive policy and legislative change to reduce out-of-pocket healthcare costs for people living with life-threatening, chronic and rare diseases.

Goal Type: This goal reflects our commitment to further our advocacy work for our organization and or cause area.



Source: Nonprofit submitted responses

Leadership Development

The nonprofit provides evidence of investment in leadership development


Describe an investment in leadership

The PAN Foundation highly values leadership and professional development. In 2020, each member of the executive leadership team went through a 360-degree assessment and worked with an executive coach to further their leadership skills. PAN also offers staff reimbursement for professional development in order to acquire or sharpen skills.

Source: Nonprofit submitted responses

Mobilizing for Mission

The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.


This organization mobilizes for mission in the following ways:
  • Strategic Partnerships

  • Networks of Collective Impact Efforts

  • Thought Leadership

  • Raising Awareness

  • Policy Advocacy

What are this organization’s external mobilizaton efforts?

The PAN Foundation conducts external mobilization efforts on multiple fronts. We develop strategic partnerships with leading patient advocacy organizations and national public health organizations and participate in coalitions with groups such as All Copays Count Coalition, MAPRx, and the Coalition to Improve Cancer Care. These efforts complement PAN’s advocacy and thought leadership, which includes developing materials including issue briefs, research, and national polling and conducting outreach to policymakers to promote healthcare accessibility and affordability solutions. During the pandemic, PAN also launched a grassroots advocacy campaign, which resulted in more than 8,000 people across the country sending emails to their elected officials in Congress asking for healthcare reform and affordability for the Medicare Part D program.

Source: Nonprofit submitted responses

Story of Adaptability

The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.


The PAN Foundation was well positioned to adapt to the tremendous changes that took place in 2020. As an organization, we made a successful transition to remote work and operations. Thanks to our seamless virtual program delivery, PAN helped over 170,000 patients with their out-of-pocket costs for 70 disease-specific assistance programs. It was also clear at the onset of the pandemic that the people PAN serves—older adults on Medicare with serious and chronic illnesses—would be most impacted by the virus and social distancing requirements. PAN launched its COVID-19 Financial Support Fund, which helped 8,500 Medicare beneficiaries with COVID-19 or affected by the pandemic to get financial support for everyday essentials like food and groceries. Before the pandemic, the PAN Foundation had already been working to increase the number of safety net programs and services available to patients. During the pandemic, we launched seven new assistance programs, including a comprehensive transportation assistance program, which provides financial assistance to PAN grant recipients who need financial aid to cover the costs of getting to their medical appointments.

Source: Nonprofit submitted responses

...   Culture & Community


This score provides an assessment of the organization's engagement with the constituents it serves, a practice we term Constituent Feedback. When organizations listen to constituents, they are able to better deliver on programs and meet the needs of stakeholders. A future version of this Beacon will also assess an organization's people operations and its Diversity, Equity and Inclusion (DEI) metrics.


Culture & Community Score

100

out of 100

The score earned by Patient Access Network Foundation is a passing score.

Encompass Rating V4 provides an evaluation of an organization's Culture and Community by measuring its Constituent Feedback practices (see report below). Constituent Feedback data provides 100% of the basis for the initial evaluation of the Culture & Community Beacon.


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Culture & Community Report

100

of 100 points

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Constituent Feedback

Constituent Feedback

Full Credit


This organization reported that it is collecting feedback.


Here's how this organization is listening and learning from the people they serve:


How is your organization collecting feedback from the people you serve?

Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Suggestion box/email


How is your organization using feedback from the people you serve?

To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve


With whom does your organization share the feedback you got from the people you serve?

The people we serve, Our staff, Our board, Our funders, Our community partners


What challenges does your organization face in collecting feedback from the people you serve?

We don't have any major challenges to collecting feedback


Briefly describe a recent change that your organization made in response to feedback from the people you serve.

The PAN Foundation launched a comprehensive transportation assistance program that provides up to $500 in assistance for eligble transportation services to help patients get to their medical appointments. This program was designed and launched after conducting an in-depth survey of over 7,000 patients about their transportation challenges and needs. In addition, PAN also ran a pilot transportation program and solicited feedback through that entire process.



Methodology


Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective. We've partnered with GuideStar by Candid to survey organizations about their feedback practices. Nonprofit organizations can fill out the How We Listen section of their Candid profile to receive a rating.


Charity Navigator awards full credit for this Beacon to every nonprofit that is eligible for an Encompass Rating that completes the survey, in recognition of their willingness to publicly share this information with the nonprofit and philanthropic communities. This data is not evaluated for quality at this time. Validation will be added in future iterations of this Beacon.

Analysis and Research


Like the overall Encompass Rating System, the Culture & Community Beacon is designed to evolve as metrics are developed and ready for integration. Our partnership with Feedback Labs and Guidestar by Candid, and other partners including Fund for Shared Insight, GlobalGiving, and Keystone Accountability, enables us to launch the first version of this beacon with Constituent Feedback information collected on Candid's site.


Feedback practices have been shown to support better Diversity, Equity, and Inclusion outcomes, an essential area of assessment that we intend to further expand and develop in the future. Feedback Labs has documented several studies which indicate that beyond achieving organizational goals, nonprofits that are attentive and responsive to concerns and ideas raised by beneficiaries establish stronger relationships with the people they serve, promote greater equity, and empower constituents in ways that can help to ensure better long-term outcomes. You can find resources to help nonprofits improve their feedback practices here.

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