Support Charity Navigator

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Myotonic Dystrophy Foundation

Mission

Our Vision We envision a world with treatments and a cure for myotonic dystrophy. Our Mission The mission of the Myotonic Dystrophy Foundation is Community, Care, and a Cure. We support and connect the myotonic dystrophy community. We provide resources and advocate for care. We accelerate research toward treatments and a cure. The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy (DM) disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, the Myotonic Dystrophy Foundation is often the only resource they are able to locate, and MDF has provided assistance and support for people living with DM in more than 139 countries around the world. Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the Myotonic Dystrophy Foundation community.

Oakland CA | EIN: 20-5014628

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

663 13TH ST STE 100,
Oakland CA 94612-1274

https://WWW.MYOTONIC.ORG

415-800-7777

Myotonic Dystrophy Foundation

Mission

Oakland CA | EIN: 20-5014628

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

663 13TH ST STE 100,
Oakland CA 94612-1274

https://WWW.MYOTONIC.ORG

415-800-7777

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:No

SCORE0%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
0%	Tax Form Disclosed on Website:No

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Myotonic Dystrophy Foundation

Mission

Myotonic Dystrophy Foundation

Mission

Beacon Report