Charcot-Marie-Tooth Association

Mission

The Charcot-Marie-Tooth Association (CMTA) was founded in 1983 to generate the resources to find a cure for CMT, a genetic neurological disorder that affects some 3 million people of all races and ethnic groups worldwide. The disease kills the long nerves to the feet and hands. As the nerves to the extremities weaken and die, the muscles around them atrophy and patients lose normal use of their feet, legs, hands and arms. In fulfillment of its mission, the CMTA funds a multifaceted research program called the Strategy to Accelerate Research, which brings together the world's leading CMT researchers to collaborate with the National Institutes of Health, universities, and pharmaceutical, biotechnology, and research service companies in partnerships that are driving progress toward treatments and cures for CMT. While the CMTA searches for a cure, it also creates awareness about this orphan disease and works to improve the quality of life of all those affected by it.

Vision

A world without CMT.

Goals

1.We have invested more than $33 million in STAR to date. We have supported more than 50 projects and studies yearly.
2.We have 65 Centers of Excellence worldwide. We offer Camp Footprint on both coasts. We have a Youth Council for ages 13-18 and our COMPASS group for young people aged 19-30. We have over 91 Volunteer led Branches and host an annual Patient Summit to connect and update the CMT Community in resources and research.
3.The CMTA’s Patients as Partners in Research platform grew to over 6,100 participants covering 47 CMT subtypes ensuring and facilitating broad CMT patient representation and engagement in research.

Glenolden PA | EIN: 22-2480896

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

P.O. Box 105,
Glenolden PA 19036

https://www.cmtausa.org

800-606-2682

Charcot-Marie-Tooth Association

Mission

Vision

A world without CMT.

Goals

1.We have invested more than $33 million in STAR to date. We have supported more than 50 projects and studies yearly.
2.We have 65 Centers of Excellence worldwide. We offer Camp Footprint on both coasts. We have a Youth Council for ages 13-18 and our COMPASS group for young people aged 19-30. We have over 91 Volunteer led Branches and host an annual Patient Summit to connect and update the CMT Community in resources and research.
3.The CMTA’s Patients as Partners in Research platform grew to over 6,100 participants covering 47 CMT subtypes ensuring and facilitating broad CMT patient representation and engagement in research.

Glenolden PA | EIN: 22-2480896

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

P.O. Box 105,
Glenolden PA 19036

https://www.cmtausa.org

800-606-2682

Beacon Report

Great
Good
Needs Improvement
Poor
Not Scored
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:No

SCORE0%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
0%	Records Retention Policy:No
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Error attempting donation

You're too fast!

Mission

Mission

Beacon Report