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8751 BRECKSVILLE RD STE 150
Cleveland OH 44141-1951
Cleveland OH | IRS ruling year: 1999 | EIN: 22-3611011
PDSA'S MISSION IS TO ENHANCE THE LIVES OF PEOPLE WITH IMMUNE THROMBOCYTOPENIA (ITP) AND OTHER PLATELET DISORDERS THROUGH EDUCATION, ADVOCACY, RESEARCH AND SUPPORT.
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This charity's score is 100%, earning it a Four-Star rating. If this organization aligns with your passions and values, you can give with confidence.
This overall score is calculated from multiple beacon scores: 90% Accountability & Finance, 10% Leadership & Adaptability. Learn more about our criteria and methodology.
We recognize that not all metrics and beacons equally predict a charity’s success. The percentage each beacon contributes to the organization’s overall rating depends on the number of beacons an organization has earned.
Use the tool below to select different beacons to see how the weighting shifts when only one, two, or three beacons are earned.
Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!
The IRS is significantly delayed in processing nonprofits' annual tax filings (Forms 990). As a result, the Accountability & Finance score for Platelet Disorder Support Association Inc. is outdated and the overall rating may not be representative of its current operations. Please check with the charity directly for any questions you may have.
Platelet Disorder Support Association Inc. has earned a 100% for the Accountability & Finance beacon. See the metrics below for more information.
This beacon provides an assessment of a charity's financial health (financial efficiency, sustainability, and trustworthiness) and its commitment to governance practices and policies.
This Accountability & Finance score represents IRS Form 990 data up until FY 2020, which is the most recent Form 990 currently available to us.
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Full Credit
Partial Credit
No Credit
Not ApplicableBoard Composition - 9/9 - 25/25 ptsBoard Composition - 9/9 - 25/25 pts
Charity Navigator looks for at least 3 board members, with more than 50% of those members identified as independent (not salaried).
The presence of an independent governing body is strongly recommended by many industry professionals to allow for full deliberation and diversity of thinking on governance and other organizational matters.
Source: IRS Form 990
Independent Audit or Financial Review - Audited - 20/20 ptsIndependent Audit or Financial Review - Audited - 20/20 pts
An Audit, Review, or Compilation provides important information about financial accountability and accuracy. Organizations are scored based on their Total Revenue Amount:
| Total Revenue Amount | Expectation to Receive Credit |
|---|---|
| $1 million or higher | Expected to complete an audit |
| $500,000 - $1 million | Expected to complete an audit, review, or compilation |
| Less than $500,000 | No expectation (removed from scoring methodology) |
Source: IRS Form 990
Conflict of Interest Policy - Listed - 3/3 ptsConflict of Interest Policy - Listed - 3/3 pts
Charity Navigator looks for the existence of a conflict of interest policy on the Form 990 as an accountability and transparency measure.
This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.
Source: IRS Form 990
Board Meeting Minutes - Documented - 3/3 ptsBoard Meeting Minutes - Documented - 3/3 pts
Charity Navigator looks to confirm on the Form 990 that the organization has this process in place as an accountability and transparency measure.
An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.
Source: IRS Form 990
Document Retention and Destruction - Listed - 3/3 ptsDocument Retention and Destruction - Listed - 3/3 pts
Charity Navigator looks for the existence of a document retention and destruction policy per the Form 990 as an accountability and transparency measure.
This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.
Source: IRS Form 990
Whistleblower Policy - Listed - 3/3 ptsWhistleblower Policy - Listed - 3/3 pts
Charity Navigator looks for the existence of a whistleblower policy per the Form 990 as an accountability and transparency measure.
This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.
Source: IRS Form 990
Website - Listed - 3/3 ptsWebsite - Listed - 3/3 pts
Charity Navigator looks for a website on the Form 990 as an accountability and transparency metric.
Nonprofits act in the public trust and reporting publicly on activities is an important component.
Source: IRS Form 990
Full CreditPartial CreditNo CreditNot ApplicableLiabilities to Assets Ratio - 6.80% - 15/15 ptsLiabilities to Assets Ratio - 6.80% - 15/15 pts
The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990). This ratio is an indicator of an organization’s solvency and/or long-term sustainability.
| Liabilities to Assets Ratio | Amount of Credit Received |
|---|---|
| Less than 50% | Full Credit |
| 50% - 59.9% | Partial Credit |
| 60% or more | No Credit |
Source: IRS Form 990
Program Expense Ratio - 83.97% - 25/25 ptsProgram Expense Ratio - 83.97% - 25/25 pts
The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.
| Program Expense Percentage | Amount of Credit Received |
|---|---|
| 70% or higher | Full Credit |
| 60% - 69.9% | Partial Credit |
| 50% - 59.9% | Zero Points for Program Expense Score |
| Below 50% | Zero Points for Both Program Expense AND Liabilities to Assets Scores |
Source: IRS Form 990
This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.
No Data Available
Key Persons data is currently unavailable for this organization. This data is only available if this charity has at least one year of electronically-filed Form 990 data filed within the last six years.
Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website
Activities:
Activity data not reported from the IRS
Foundation Status:
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (Platelet Disorder Support Association Inc.) or EIN (223611011) in the 'Search Term' field.
This organization was impacted by COVID-19 in a way that effected their financial health in 2020. This normally would have reduced their star rating. Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them, and doing this pauses our revision of their rating. Charities may submit their own pandemic responses through their nonprofit portal.
Platelet Disorder Support Association Inc. reported being impacted by COVID-19 in the following ways:
Program Delivery
Fundraising Capacity
Revenue
How COVID-19 impacted the organization's operations financially:
Our fundraising contributions were down 34% and overall donations were down 18%.
How COVID-19 impacted the organization's delivery of programs:
Due to social distancing we had to hold all of our programs virtually rather than in person. This includes are annual conference, support group meetings, and walk/run events.
How this organization adapted to changing conditions caused by COVID-19:
We pivoted to all virtual programs for the first time.
Innovations the organization intends to continue permanently after the pandemic:
We will continue to offer a virtual component to many of our programs, i.e., our annual conference, to enable a wider audience to participate.
Not Currently Scored
Platelet Disorder Support Association Inc. cannot currently be evaluated by our Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
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Platelet Disorder Support Association Inc. reported its largest program on its FY 2020 Form 990 as:
Spent in most recent FY
Percent of program expenses
2020 WAS A UNIQUE YEAR FOR PDSA DUE TO THE CORONAVIRUS PANDEMIC. BUT THESE DRASTIC CHALLENGES PRESENTED AN OPPORTUNITY FOR PDSA TO REACH SO MANY MORE PATIENTS, CAREGIVERS, HEALTH CARE PROFESSIONALS AN ... (More)
2020 WAS A UNIQUE YEAR FOR PDSA DUE TO THE CORONAVIRUS PANDEMIC. BUT THESE DRASTIC CHALLENGES PRESENTED AN OPPORTUNITY FOR PDSA TO REACH SO MANY MORE PATIENTS, CAREGIVERS, HEALTH CARE PROFESSIONALS AND RESEARCHERS AND IT WAS THE ORGANIZATIONS BUSIEST YEAR BY FAR. SINCE THE BEGINNING OF THE COVID-19 PANDEMIC, QUESTIONS AND CONCERNS AROUND TREATMENT DECISIONS AND ISSUES OF BLEEDING AND CLOTTING BROUGHT ON BY THE COVID-19 VIRUS AND VACCINES HAS GREATLY IMPACTED THE ITP PATIENT AND PHYSICIAN COMMUNITY. RECOGNIZING A NEED FOR GUIDANCE AND SUPPORT, THE PDSA STAFF AND MEDICAL ADVISORS TOOK SWIFT ACTION FROM THE ONSET, OFFERING UPDATED EDUCATIONAL AND SCIENTIFIC INFORMATION ON COVID-19 AND ITP ON OUR WEBSITE, PDSA.ORG, WHICH HAS AVERAGED 100,000 MONTHLY VISITORS OVER THE COURSE OF 2020; THROUGH RESEARCH ARTICLES AND COMMENTARY WRITTEN FOR PDSA'S MONTHLY E-NEWS AND 28-PAGE QUARTERLY NEWSLETTER, THE PLATELET NEWS, AND VIA SOCIAL MEDIA CHANNELS. PDSA'S 60 LOCAL SUPPORT GROUPS HELD MEETINGS VIRTUALLY AND ADDED A PDSA MEDICAL ADVISOR ON MANY OF THE CALLS TO ANSWER PATIENT/CAREGIVER QUESTIONS, WHICH WERE PRIMARILY FOCUSED ON COVID-19 AND ITP, TREATMENT PREFERENCES, AND VACCINES. IN APRIL 2020, WE ORGANIZED OUR FIRST VIRTUAL TOWN HALL, FACTS OVER FEAR: COVID-19 & ITP WITH US AND GLOBAL ITP EXPERTS, A WORLD- RENOWNED IMMUNOLOGIST AND THE INFECTIOUS DISEASE EXPERT AT THE NIH. THE LIVE EVENT INCLUDED MORE THAN 700 PARTICIPANTS FROM 44 COUNTRIES. WE HELD A 2ND COVID-19 & ITP TOWN HALL AT THE END OF JULY AS PART OF ITP CONFERENCE 2020. WE BUILD OUR OWN VIRTUAL CONFERENCE PLATFORM AND THIS THREE-DAY EVENT HAD MORE THAN 700 PARTICIPANTS FROM MORE THAN 200 COUNTRIES. CONCERN WITHIN THE ITP COMMUNITY CONTINUED TO GROW AS ADDITIONAL REPORTS OF THROMBOCYTOPENIA CASES FOLLOWING COVID-19 VACCINATION MADE THE NEWS. CALLS AND EMAILS TO THE PDSA OFFICE AND TO OUR FB PAGE INCREASED AND WE WERE ANSWERING ON AVERAGE 10 PER DAY VIA OUR ITP HELPLINE. THIS WAS IN ADDITION TO PDSA'S REGULAR PROGRAMS AND RESOURCES, INCLUDING THE ITP POKE-R-CLUB FOR KIDS, COLLEGE SCHOLARSHIP PROGRAM, UPDATING AND TRANSLATING NUMEROUS EDUCATIONAL BOOKLETS, ATTENDING AND EXHIBITING AT SCIENTIFIC MEETINGS (VIRTUAL), AUTHORING MULTIPLE SCIENTIFIC PUBLICATIONS, AWARDING TWO 20,000 GRANTS TO INVESTIGATORS CONDUCTING INNOVATIVE ITP RESEARCH, AND OVERSEEING THE WEBSITE GLOBALITP.ORG AND THE INTERNATIONAL ITP ALLIANCE, WHICH HAS GROWN TO 32 PATIENT ASSOCIATIONS FROM 27 COUNTRIES. (Less)
Platelet Disorder Support Association Inc. cannot currently be evaluated by our Culture & Community methodology because we have not received data from the charity regarding its Constituent Feedback or Equity Practices strategies.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
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Platelet Disorder Support Association Inc. has earned a 100% for the Leadership & Adaptability beacon. See the metrics below for more information.
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
Learn more
Full CreditPartial CreditNo CreditNot ApplicableMission - 10/10 ptsMission - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission
PDSA'S MISSION IS TO ENHANCE THE LIVES OF PEOPLE WITH IMMUNE THROMBOCYTOPENIA (ITP) AND OTHER PLATELET DISORDERS THROUGH EDUCATION, ADVOCACY, RESEARCH AND SUPPORT.
Vision - 10/10 ptsVision - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.
To be recognized as the premier resource for patients, their families, health care providers and government agencies who want to know abut the symptoms and treatment of ITP and other platelet disorders.
Source: Nonprofit submitted responses
Goals - 20/20 ptsGoals - 20/20 pts
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: To increase awareness of ITP, its symptoms and treatments among health care providers, at the international, national, state, and local levels.
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Goal Two: Serve as a comprehensive resource on the ITP patient experience and provide input and guidance in new drug development research, while providing greater support for patient-focused research projects.
Goal Type: This goal reflects our commitment to further our advocacy work for our organization and or cause area.
Goal Three: Support the development of and provide funding for national ITP Treatment Centers (Centers of Excellence).
Goal Type: New program(s) based on observed changes in needs among our constituencies/communities served.
Leadership Development - 15/15 ptsLeadership Development - 15/15 pts
The nonprofit provides evidence of investment in leadership development
Whenever possible, online training is sponsored by the PDSA to improve skills of the staff. For example, the Administrative Manager completed an online training course for Quickbooks in 2021.
Mobilizing for Mission - 15/15 ptsMobilizing for Mission - 15/15 pts
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
Strategic Partnerships
Networks of Collective Impact Efforts
Thought Leadership
Raising Awareness
Policy Advocacy
PDSA participated in several virtual meetings: ASH 62nd Annual Meeting, Immunoglobulin National Society National Conference, National Organization for Rare Disorders 2020 Breakthrough Summit, Thrombosis & Hemostasis Summit of North America, Foundation for Women & Girls with Blood Disorders 2020 Conference, 25th Congress of the European Hematology Association, and presented at EHA, THSNA, and ASH. We also collaborate with our Advocacy Partners, AARDA, A-Plus, ASH, CPAG, FDA Alliance, Genetic Alliance, IAPO, ICON, NORD, PPTA, and THSNA. We have a robust social media presence on Facebook (15,900 members), Instagram (1,618 followers), Twitter (1,533 followers), YouTube (119,290 views) and the PDSA Discussion Group (10,502 members). We are also a member of the ITP International Alliance, The intercontinental partnership of ITP patient support organizations committed to education, awareness and establishing a global voice for immune thrombocytopenia patients.
Adaptability Story - 30/30 ptsAdaptability Story - 30/30 pts
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
As the pandemic quickly advanced around the globe, we at PDSA mobilized to respond to the evolving situation and to further support, educate, and meet the growing needs of the ITP community through dedicated webinars, our monthly e-News and quarterly Platelet News, and on our website and social media platforms. We adapted our local support group meetings and Pump It Up For Platelets events to virtual settings to ensure the ITP community stayed safe and connected. We developed an online conference platform in the space of two months to be able to host our annual conference virtually, which was the largest in PDSA's history, attracting over 670 registrants from 25 countries and 45 states. In addition, we continued our advocacy work by participating in the following virtual meetings: ASH, IgNS, NORD, THSNA, FWGBD, EHA, and the UK and Ireland ITP Support Association Convention, with presentations at ASH, EHA, and THSNA. In addition, PDSA hosted two virtual Town Halls Meetings on COVID-19 & ITP.
Impact & Results
Accountability & Finance
Culture & Community
Leadership & Adaptability
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