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Osteogenesis Imperfecta Foundation

Mission

The Osteogenesis Imperfecta Foundation (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta (OI). A genetic disorder known as brittle bone disease, OI is characterized by bones that break easily. Founded in 1970, the OI Foundation's mission is to improve the quality of life for people affected by OI through research, education, awareness, and mutual support. Since its inception, the OI Foundation has doubled funding for research every five years, for a total investment of almost $3 million. A biennial national conference provides more than 570 people with medical, research, and coping information.

Vision

The Osteogenesis Imperfecta Foundation wants to connect with every person with OI and share with them the resources we have to help guide them through their journey with OI. We want to be that welcoming organization that can connect people across the country and sometimes around the world so that they have access to the latest information on OI research and education and we want to provide spaces both in person and virtually for mutual support.

Goals

1.We want to expand our current information center to include information for new parents, those with a new diagnosis, adults with OI and those transitioning from pediatric to adult care. We want to ensure that information is available when someone needs it, during whatever stage of life they are in.
2.We want to expand the number of professionals involved in OI research so that we can continue providing new and improved treatments for those with OI. We would like to provide more funding for our Geisman Fellowships so that early stage investigators will stay involved and engaged in OI research.
3.We want to secure funding for our very important national conference and regional conference program so that everyone with OI has the opportunity to attend an OIF meeting. At these meetings people are able to connect with others with OI and meet medical professionals that they may be able to add to their care teams.

Gaithersburg MD | EIN: 23-7076021

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

656 Quince Orchard Road, Suite 650,
Gaithersburg MD 20878

https://oif.org/

301-947-0083

Osteogenesis Imperfecta Foundation

Mission

Vision

Goals

1.We want to expand our current information center to include information for new parents, those with a new diagnosis, adults with OI and those transitioning from pediatric to adult care. We want to ensure that information is available when someone needs it, during whatever stage of life they are in.
2.We want to expand the number of professionals involved in OI research so that we can continue providing new and improved treatments for those with OI. We would like to provide more funding for our Geisman Fellowships so that early stage investigators will stay involved and engaged in OI research.
3.We want to secure funding for our very important national conference and regional conference program so that everyone with OI has the opportunity to attend an OIF meeting. At these meetings people are able to connect with others with OI and meet medical professionals that they may be able to add to their care teams.

Gaithersburg MD | EIN: 23-7076021

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

656 Quince Orchard Road, Suite 650,
Gaithersburg MD 20878

https://oif.org/

301-947-0083

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Osteogenesis Imperfecta Foundation

Mission

Vision

Goals

Osteogenesis Imperfecta Foundation

Mission

Vision

Goals

Beacon Report