Rett Syndrome Research Trust

Mission

RSRT was launched in 2008 to drive research toward a cure for Rett syndrome and related MECP2 disorders. Our mission is urgent: 15,000 girls and women in the US and 350,000 globally live with the agonizing symptoms of Rett syndrome. RSRT funds more research than any other Rett organization in the U.S. and abroad. Since 2008, RSRT has awarded $77 million to research. An average of 94% of every dollar donated to RSRT goes directly to our research program. As one of the few neurological disorders to show dramatic symptom reversal in mice, Rett syndrome has attracted unprecedented interest from university and pharmaceutical scientists. Through innovative research and constant engagement with scientists, clinicians, industry, investors and affected families, RSRT is at the epicenter of this activity. We believe Rett can be cured, but time matters. A rigorous, coordinated, and agile research agenda will get us there as quickly as possible. Our ultimate goal is to become obsolete - by finding a cure.

Trumbull CT | EIN: 26-0687439
Profile managed by nonprofit | Is this your nonprofit?
501(c)(3) organization
67 Under Cliff Road,
Trumbull CT 06611
https://reverserett.org/
203-445-0041

Rett Syndrome Research Trust

Mission

RSRT was launched in 2008 to drive research toward a cure for Rett syndrome and related MECP2 disorders. Our mission is urgent: 15,000 girls and women in the US and 350,000 globally live with the agonizing symptoms of Rett syndrome. RSRT funds more research than any other Rett organization in the U.S. and abroad. Since 2008, RSRT has awarded $77 million to research. An average of 94% of every dollar donated to RSRT goes directly to our research program. As one of the few neurological disorders to show dramatic symptom reversal in mice, Rett syndrome has attracted unprecedented interest from university and pharmaceutical scientists. Through innovative research and constant engagement with scientists, clinicians, industry, investors and affected families, RSRT is at the epicenter of this activity. We believe Rett can be cured, but time matters. A rigorous, coordinated, and agile research agenda will get us there as quickly as possible. Our ultimate goal is to become obsolete - by finding a cure.

Trumbull CT | EIN: 26-0687439
Profile managed by nonprofit | Is this your nonprofit?
501(c)(3) organization
67 Under Cliff Road,
Trumbull CT 06611
https://reverserett.org/
203-445-0041

Beacon Report

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  • Good
  • Needs Improvement
  • Poor
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  • Additional Information
Accountability Panel
ScoreMetric
100%
Website Reported on Tax Form:Yes
100%
No Material Diversion of Assets:Yes
100%
Financial Statements:Yes
100%
Audit Oversight Committee:Yes
100%
No Loans Reported To or From Officers:Yes
100%
Records Retention Policy:Yes
100%
Tax Form Disclosed on Website:Yes
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