Mission: TO FUND PROMISING RESEARCH TO FIND A CURE FOR PSEUDOMYXOMA PERITONEI (PMP), APPENDIX CANCER, AND RELATED PERITONEAL SURFACE MALIGNANCIES (PSM), AND TO FUND EDUCATION ... (More)
Appendix Cancer Pseudomyxoma Peritonei Research Foundation is a 501(c)(3) organization, with an IRS ruling year of 2008, and donations are tax-deductible.
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Important note on the timeliness of ratings
The IRS is significantly delayed in processing nonprofits' annual tax filings (Forms 990). As a result, the Finance & Accountability score for Appendix Cancer Pseudomyxoma Peritonei Research Foundation is outdated and the overall rating may not be representative of its current operations. Please check with the charity directly for any questions you may have.
Encompass Rating System by Charity Navigator
Overall Score
100
out of 100
This charity's score is a passing score.
This overall score is calculated from multiple beacon scores: 90% Finance & Accountability and 10% Leadership & Adaptability
Learn about the Encompass Rating System: Overview | FAQ | Release Notes
Finance & Accountability
This score provides an assessment of a nonprofit's financial health (stability, efficiency and sustainability) and its commitment to governance practices and policies.
Finance & Accountability Score
100
out of 100
The score earned by Appendix Cancer Pseudomyxoma Peritonei Research Foundation is a passing score
This V6 of the Finance & Accountability Score provides a baseline measure of an organization's health including the indicators listed in the report below.
This score represents Form 990 data from 2019, the latest year electronically filed and published by the IRS.
Finance & Accountability Report
100
of 100 points
This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.
Program Expense Ratio
81.16%
Higher effect on score
More data
The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.
Program Expense Percentage | Amount of Credit Received |
|---|---|
| 70% or higher | Full Credit |
| 60% - 69.9% | Partial Credit |
| 50% - 59.9% | Zero Points for Program Expense Score |
| Below 50% | Zero Points for Both Program Expense AND Liabilities to Assets Scores |
Source: IRS Form 990
Board Composition
6/6 Independent
Higher effect on score
Charity Navigator looks for at least 3 board members, with more than 50% of those members identified as independent (not salaried).
The presence of an independent governing body is strongly recommended by many industry professionals to allow for full deliberation and diversity of thinking on governance and other organizational matters.
Source: IRS Form 990
Independent Audit or Financial Review
No review needed due to small charity size
No effect on score
An Audit, Review, or Compilation provides important information about financial accountability and accuracy. Organizations are scored based on their Total Revenue Amount:
Total Revenue Amount | Expectation to Receive Credit |
|---|---|
| $1 million or higher | Expected to complete an audit |
| $500,000 - $1 million | Expected to complete an audit, review, or compilation |
| Less than $500,000 | No expectation (removed from scoring methodology) |
Source: IRS Form 990
Liabilities to Assets Ratio
0.00%
Lower effect on score
The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990). This ratio is an indicator of an organization’s solvency and/or long-term sustainability.
Liabilities to Assets Ratio | Amount of Credit Received |
|---|---|
| Less than 50% | Full Credit |
| 50% - 59.9% | Partial Credit |
| 60% or more | No Credit |
Source: IRS Form 990
Website
Listed
Lower effect on score
Charity Navigator looks for a website on the Form 990 as an accountability and transparency metric.
Nonprofits act in the public trust and reporting publicly on activities is an important component.
Source: IRS Form 990
Conflict of Interest Policy
Listed
Lower effect on score
Charity Navigator looks for the existence of a conflict of interest policy on the Form 990 as an accountability and transparency measure.
This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.
Source: IRS Form 990
Board Meeting Minutes
Documented
Lower effect on score
Charity Navigator looks to confirm on the Form 990 that the organization has this process in place as an accountability and transparency measure.
An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.
Source: IRS Form 990
Document Retention and Destruction
Listed
Lower effect on score
Charity Navigator looks for the existence of a document retention and destruction policy per the Form 990 as an accountability and transparency measure.
This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.
Source: IRS Form 990
Whistleblower Policy
Listed
Lower effect on score
Charity Navigator looks for the existence of a whistleblower policy per the Form 990 as an accountability and transparency measure.
This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.
Source: IRS Form 990
Additional Information
Unscored
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Total Revenue and Expenses
This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.
Salary of Key Persons
No Data Available
Key Persons data is currently unavailable for this organization.
Business Master File Data
Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website
Activities:
Activity data not reported from the IRS
Foundation Status:
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)
Data Sources: IRS Forms 990
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to view this organization's Forms 990 on the IRS website (if any are available).
Pandemic Response
Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them. Charities may submit their own pandemic responses through their nonprofit portal.
Appendix Cancer Pseudomyxoma Peritonei Research Foundation reported being impacted by COVID-19 in the following ways:
Program Delivery
How COVID-19 impacted the organization's operations financially:
Financially our organization did not suffer any adverse effects due to the pandemic. We shifted our main fundraiser from an in-person to a virtual walk/run with successful results.
How COVID-19 impacted the organization's delivery of programs:
Educational programs shifted from in-person to virtual.
How this organization adapted to changing conditions caused by COVID-19:
Employees worked from home.
Innovations the organization intends to continue permanently after the pandemic:
Shifting our main fundraiser and educational programs to virtual opened up these programs to a much wider audience, and we will continue to utilize these formats in the future.
Previous: Finance & Accountability / Next: Leadership & Adaptability
Impact & Results
This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.
Impact & Results Score
Not Currently Scored
Appendix Cancer Pseudomyxoma Peritonei Research Foundation cannot currently be evaluated by our Encompass Rating Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
Do you work at Appendix Cancer Pseudomyxoma Peritonei Research Foundation? Join the waitlist for an updated Impact & Results score.
Additional Information
Unscored
This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.
Largest Programs
Appendix Cancer Pseudomyxoma Peritonei Research Foundation reported its three largest programs on its FY 2020 Form 990 as:
$129,800
Spent in most recent FY
67%
Percent of program expenses
AWARDED AND FUNDED RESEARCH GRANTS
$54,932
Spent in most recent FY
28%
Percent of program expenses
SYMPOSIUM PARTICIPATION/SCHOLARSHIPS & SPONSORSHIP
$6,600
Spent in most recent FY
3%
Percent of program expenses
PROVIDE EDUCATIONAL INFORMATION ON PMP TO PATIENTS, FAMILIES OF PATIENTS AND ANY OTHER INTERESTED PARTIES
Previous: Impact & Results / Next: Culture & Community
Leadership & Adaptability
This score provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
Leadership & Adaptability Score
100
out of 100
The score earned by Appendix Cancer Pseudomyxoma Peritonei Research Foundation is a passing score.
Encompass Rating V4 provides an evaluation of the organization's Leadership & Adaptability through the nonprofit organization submitting a survey response directly to Charity Navigator.
Leadership & Adaptability Report
100
of 100 points
Mission
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s mission
ACPMP RESEARCH FOUNDATION'S MISSION IS TO FUND PROMISING RESEARCH TO FIND A CURE FOR PSEUDOMYXOMA PERIONEI (PMP), APPENDIX CANCER AND RELATED PERITONEAL SURFACE MALIGNANCIES (PSM), AND TO FUND EDUCATIONAL PROGRAMS FOR PHYSICIANS AND PATIENTS ABOUT THESE DISEASES.
Source: Nonprofit submitted responses
Vision
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.
Better diagnosis, improved treatment, and ultimately a cure for every patient suffering from appendix cancer and pseudomyxoma peritonei.
Source: Nonprofit submitted responses
Strategic Goals
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: ACPMP is engaged in strategic work to expand our Board of Directors and our functional capacity to engage with our constituents, and broadening our skillsets to do so in finance, communications, etc.
Goal Type: Invest in the capacity of our organization (financial, management, technical, etc.).
Goal Two: We are expanding our grant programs including development of an in-house research grant program and some direct funding of worthy research initiatives.
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Goal Three: We are engaged in the second year of our Patient Advisory Council, which has proved to be a great connection to the community, understanding needs, and identifying volunteers.
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Source: Nonprofit submitted responses
Leadership Development
The nonprofit provides evidence of investment in leadership development
Describe an investment in leadership
ACPMP undertook a strategic review and subsequently the board has done a significant amount of research regarding roles and responsibilities and developing a plan for sustained success. We have also provided training and educational opportunities to our full time communications and development manager who has grown with the organization and is increasing her leadership skills.
Source: Nonprofit submitted responses
Mobilizing for Mission
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
This organization mobilizes for mission in the following ways:
Strategic Partnerships
Networks of Collective Impact Efforts
Thought Leadership
Raising Awareness
Community Building
Policy Advocacy
What are this organization’s external mobilizaton efforts?
ACPMP is an active member of the National Organization of Rare Disorders (NORD) and engages in NORD sponsored programs with other rare disease organizations. We have signed on and supported a number of initiatives at the federal level related to funding for and recognition of rare diseases through letter campaigns with other organizations. We engage in thought leadership through publication of summaries and making available scientific research studies, presenting at the Society of Surgical Oncology annual conference, and sponsoring physician attendance at the SOO conference as well as other US and international physician educational conferences. ACPMP has a very active social media presence and participates in raising awareness through events such as international and national Rare Disease Day. We also lobbied for and established August as Appendix Cancer Awareness Month.
Source: Nonprofit submitted responses
Story of Adaptability
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
ACPMP has experienced at least 2 significant external changes in the last year. One is pandemic related, in that the in-person events we have historically held (both from a fundraising and educational standpoint) have not been possible. The second is some issues we had with our outsourced research grant program. From a pandemic standpoint, we were able to work with three trusted partner medical institutions to establish a virtual meeting that was very highly attended and well-rated by both the institutions and the attendees. This was hard work to organize and harmonize across multiple institutions, but their hard work and our coordination and support resulted in an event that was highly successful. The second area for adapting related to our grant program, which had some performance issues and a lack of progress from our outsourced vendor. We took that information and decided that we could bring the program in-house, developing our our review board and process. This work is still underway but there has been a lot of progress and all signs point to the increased flexibility that comes with taking on this responsibility. We will be issuing our first "in-house" RFP for award this year, in 2022.
Source: Nonprofit submitted responses
Previous: Leadership & Adaptability
Culture & Community
This score provides an assessment of the organization's culture and connectedness to the community it serves. Learn more about how and why we rate Culture & Community.
Culture & Community Score
Not Currently Scored
Appendix Cancer Pseudomyxoma Peritonei Research Foundation is currently not eligible for a Culture & Community score because we have not received its Constituent Feedback or Diversity, Equity, & Inclusion data. Nonprofit organizations are encouraged to fill out the How We Listen and Equity Practices sections of their Candid profile.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
Culture & Community Report
Unscored
This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.
Diversity, Equity, & Inclusion
This organization has not provided information regarding the diversity, equity and inclusion (DEI) practices it is presently implementing. As such, the organization has not earned a score on this metric. Charity Navigator believes nonprofit organizations implementing effective DEI policies and practices can enhance a nonprofit's decision-making, staff motivation, innovation, and effectiveness.
Methodology
We are utilizing data collected by Candid to document and assess the DEI practices implemented by the organization. Nonprofit organizations are encouraged to fill out the Equity Strategies section of their Candid profiles to receive a rating.
Learn more about the methodology.
Constituent Feedback
Not Scored
This organization reported that it is collecting feedback from the constituents and/or communities it serves. However, it did not respond to one or more survey questions, and therefore is not eligible for a score on this metric. (View our beacon methodology.) Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective.
View this organization's Constituent Feedback Practices
Methodology
We've partnered with Candid to survey organizations about their feedback practices. Nonprofit organizations can fill out the How We Listen section of their Candid profile to receive a rating.
Learn more about the methodology.
Analysis and Research
Like the overall Encompass Rating System, the Culture & Community Beacon is designed to evolve as metrics are developed and ready for integration. Below you can find more information about the metrics we currently evaluate in this beacon and their relevance to nonprofit performance.
