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491 BALTIMORE PIKE 177
Springfield PA 19064-3810
Springfield PA | IRS ruling year: 2008 | EIN: 26-2890160
TO FUND PROMISING RESEARCH TO FIND A CURE FOR PSEUDOMYXOMA PERITONEI (PMP), APPENDIX CANCER, AND RELATED PERITONEAL SURFACE MALIGNANCIES (PSM), AND TO FUND EDUCATION ... (More)
TO FUND PROMISING RESEARCH TO FIND A CURE FOR PSEUDOMYXOMA PERITONEI (PMP), APPENDIX CANCER, AND RELATED PERITONEAL SURFACE MALIGNANCIES (PSM), AND TO FUND EDUCATIONAL PROGRAMS FOR PHYSICIANS AND PATIENTS ABOUT THESE DISEASES. (Less)
Great
This charity's score is 100%, earning it a Four-Star rating. If this organization aligns with your passions and values, you can give with confidence.
This overall score is calculated from multiple beacon scores: 90% Accountability & Finance, 10% Leadership & Adaptability. Learn more about our criteria and methodology.
We recognize that not all metrics and beacons equally predict a charity’s success. The percentage each beacon contributes to the organization’s overall rating depends on the number of beacons an organization has earned.
Use the tool below to select different beacons to see how the weighting shifts when only one, two, or three beacons are earned.
Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!
The IRS is significantly delayed in processing nonprofits' annual tax filings (Forms 990). As a result, the Accountability & Finance score for Appendix Cancer Pseudomyxoma Peritonei Research Foundation is outdated and the overall rating may not be representative of its current operations. Please check with the charity directly for any questions you may have.
Appendix Cancer Pseudomyxoma Peritonei Research Foundation has earned a 100% for the Accountability & Finance beacon. See the metrics below for more information.
This beacon provides an assessment of a charity's financial health (financial efficiency, sustainability, and trustworthiness) and its commitment to governance practices and policies.
This Accountability & Finance score represents IRS Form 990 data up until FY 2019, which is the most recent Form 990 currently available to us.
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Full Credit
Partial Credit
No Credit
Not ApplicableBoard Composition - 6/6 - 35/35 ptsBoard Composition - 6/6 - 35/35 pts
Charity Navigator looks for at least 3 board members, with more than 50% of those members identified as independent (not salaried).
The presence of an independent governing body is strongly recommended by many industry professionals to allow for full deliberation and diversity of thinking on governance and other organizational matters.
Source: IRS Form 990
Independent Audit or Financial Review - N/A - 0/0 ptsIndependent Audit or Financial Review - N/A - 0/0 pts
An Audit, Review, or Compilation provides important information about financial accountability and accuracy. Organizations are scored based on their Total Revenue Amount:
| Total Revenue Amount | Expectation to Receive Credit |
|---|---|
| $1 million or higher | Expected to complete an audit |
| $500,000 - $1 million | Expected to complete an audit, review, or compilation |
| Less than $500,000 | No expectation (removed from scoring methodology) |
Source: IRS Form 990
Conflict of Interest Policy - Listed - 5/5 ptsConflict of Interest Policy - Listed - 5/5 pts
Charity Navigator looks for the existence of a conflict of interest policy on the Form 990 as an accountability and transparency measure.
This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.
Source: IRS Form 990
Board Meeting Minutes - Documented - 5/5 ptsBoard Meeting Minutes - Documented - 5/5 pts
Charity Navigator looks to confirm on the Form 990 that the organization has this process in place as an accountability and transparency measure.
An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.
Source: IRS Form 990
Document Retention and Destruction - Listed - 5/5 ptsDocument Retention and Destruction - Listed - 5/5 pts
Charity Navigator looks for the existence of a document retention and destruction policy per the Form 990 as an accountability and transparency measure.
This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.
Source: IRS Form 990
Whistleblower Policy - Listed - 5/5 ptsWhistleblower Policy - Listed - 5/5 pts
Charity Navigator looks for the existence of a whistleblower policy per the Form 990 as an accountability and transparency measure.
This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.
Source: IRS Form 990
Website - Listed - 5/5 ptsWebsite - Listed - 5/5 pts
Charity Navigator looks for a website on the Form 990 as an accountability and transparency metric.
Nonprofits act in the public trust and reporting publicly on activities is an important component.
Source: IRS Form 990
Full CreditPartial CreditNo CreditNot ApplicableLiabilities to Assets Ratio - 0.00% - 15/15 ptsLiabilities to Assets Ratio - 0.00% - 15/15 pts
The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990). This ratio is an indicator of an organization’s solvency and/or long-term sustainability.
| Liabilities to Assets Ratio | Amount of Credit Received |
|---|---|
| Less than 50% | Full Credit |
| 50% - 59.9% | Partial Credit |
| 60% or more | No Credit |
Source: IRS Form 990
Program Expense Ratio - 81.16% - 25/25 ptsProgram Expense Ratio - 81.16% - 25/25 pts
The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.
| Program Expense Percentage | Amount of Credit Received |
|---|---|
| 70% or higher | Full Credit |
| 60% - 69.9% | Partial Credit |
| 50% - 59.9% | Zero Points for Program Expense Score |
| Below 50% | Zero Points for Both Program Expense AND Liabilities to Assets Scores |
Source: IRS Form 990
This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.
No Data Available
Key Persons data is currently unavailable for this organization. This data is only available if this charity has at least one year of electronically-filed Form 990 data filed within the last six years.
Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website
Activities:
Activity data not reported from the IRS
Foundation Status:
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (Appendix Cancer Pseudomyxoma Peritonei Research Foundation) or EIN (262890160) in the 'Search Term' field.
This organization was impacted by COVID-19 in a way that effected their financial health in 2020. This normally would have reduced their star rating. Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them, and doing this pauses our revision of their rating. Charities may submit their own pandemic responses through their nonprofit portal.
Appendix Cancer Pseudomyxoma Peritonei Research Foundation reported being impacted by COVID-19 in the following ways:
Program Delivery
How COVID-19 impacted the organization's operations financially:
Financially our organization did not suffer any adverse effects due to the pandemic. We shifted our main fundraiser from an in-person to a virtual walk/run with successful results.
How COVID-19 impacted the organization's delivery of programs:
Educational programs shifted from in-person to virtual.
How this organization adapted to changing conditions caused by COVID-19:
Employees worked from home.
Innovations the organization intends to continue permanently after the pandemic:
Shifting our main fundraiser and educational programs to virtual opened up these programs to a much wider audience, and we will continue to utilize these formats in the future.
Not Currently Scored
Appendix Cancer Pseudomyxoma Peritonei Research Foundation cannot currently be evaluated by our Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
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Appendix Cancer Pseudomyxoma Peritonei Research Foundation reported its three largest programs on its FY 2020 Form 990 as:
Spent in most recent FY
Percent of program expenses
AWARDED AND FUNDED RESEARCH GRANTS
Spent in most recent FY
Percent of program expenses
SYMPOSIUM PARTICIPATION/SCHOLARSHIPS & SPONSORSHIP
Spent in most recent FY
Percent of program expenses
PROVIDE EDUCATIONAL INFORMATION ON PMP TO PATIENTS, FAMILIES OF PATIENTS AND ANY OTHER INTERESTED PARTIES
Appendix Cancer Pseudomyxoma Peritonei Research Foundation cannot currently be evaluated by our Culture & Community methodology because we have not received data from the charity regarding its Constituent Feedback or Equity Practices strategies.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
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Appendix Cancer Pseudomyxoma Peritonei Research Foundation has earned a 100% for the Leadership & Adaptability beacon. See the metrics below for more information.
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
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Full CreditPartial CreditNo CreditNot ApplicableMission - 10/10 ptsMission - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission
ACPMP RESEARCH FOUNDATION'S MISSION IS TO FUND PROMISING RESEARCH TO FIND A CURE FOR PSEUDOMYXOMA PERIONEI (PMP), APPENDIX CANCER AND RELATED PERITONEAL SURFACE MALIGNANCIES (PSM), AND TO FUND EDUCATIONAL PROGRAMS FOR PHYSICIANS AND PATIENTS ABOUT THESE DISEASES.
Vision - 10/10 ptsVision - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.
Better diagnosis, improved treatment, and ultimately a cure for every patient suffering from appendix cancer and pseudomyxoma peritonei.
Source: Nonprofit submitted responses
Goals - 20/20 ptsGoals - 20/20 pts
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: ACPMP is engaged in strategic work to expand our Board of Directors and our functional capacity to engage with our constituents, and broadening our skillsets to do so in finance, communications, etc.
Goal Type: Invest in the capacity of our organization (financial, management, technical, etc.).
Goal Two: We are expanding our grant programs including development of an in-house research grant program and some direct funding of worthy research initiatives.
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Goal Three: We are engaged in the second year of our Patient Advisory Council, which has proved to be a great connection to the community, understanding needs, and identifying volunteers.
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Leadership Development - 15/15 ptsLeadership Development - 15/15 pts
The nonprofit provides evidence of investment in leadership development
ACPMP undertook a strategic review and subsequently the board has done a significant amount of research regarding roles and responsibilities and developing a plan for sustained success. We have also provided training and educational opportunities to our full time communications and development manager who has grown with the organization and is increasing her leadership skills.
Mobilizing for Mission - 15/15 ptsMobilizing for Mission - 15/15 pts
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
Strategic Partnerships
Networks of Collective Impact Efforts
Thought Leadership
Raising Awareness
Community Building
Policy Advocacy
ACPMP is an active member of the National Organization of Rare Disorders (NORD) and engages in NORD sponsored programs with other rare disease organizations. We have signed on and supported a number of initiatives at the federal level related to funding for and recognition of rare diseases through letter campaigns with other organizations. We engage in thought leadership through publication of summaries and making available scientific research studies, presenting at the Society of Surgical Oncology annual conference, and sponsoring physician attendance at the SOO conference as well as other US and international physician educational conferences. ACPMP has a very active social media presence and participates in raising awareness through events such as international and national Rare Disease Day. We also lobbied for and established August as Appendix Cancer Awareness Month.
Adaptability Story - 30/30 ptsAdaptability Story - 30/30 pts
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
ACPMP has experienced at least 2 significant external changes in the last year. One is pandemic related, in that the in-person events we have historically held (both from a fundraising and educational standpoint) have not been possible. The second is some issues we had with our outsourced research grant program. From a pandemic standpoint, we were able to work with three trusted partner medical institutions to establish a virtual meeting that was very highly attended and well-rated by both the institutions and the attendees. This was hard work to organize and harmonize across multiple institutions, but their hard work and our coordination and support resulted in an event that was highly successful. The second area for adapting related to our grant program, which had some performance issues and a lack of progress from our outsourced vendor. We took that information and decided that we could bring the program in-house, developing our our review board and process. This work is still underway but there has been a lot of progress and all signs point to the increased flexibility that comes with taking on this responsibility. We will be issuing our first "in-house" RFP for award this year, in 2022.
Impact & Results
Accountability & Finance
Culture & Community
Leadership & Adaptability
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