Fibrolamellar Cancer Foundation

Mission

The principal purpose of the Fibrolamellar Cancer Foundation (FCF) is to encourage, drive and fund research that will substantially improve outcomes for patients with fibrolamellar carcinoma (FLC), a rare form of liver cancer that primarily occurs in adolescents and young adults who have no history of liver disease. Given the urgent need for clinically-proven therapies for this disease, our mission is three-fold: (1) find a cure and effective treatment options for FLC; (2) connect and support the fibrolamellar community; and (3) raise awareness of this disease.

Vision

The principal purpose of the Foundation is to encourage, drive and fund research that will substantially improve outcomes for fibrolamellar patients and find a cure for the disease

Goals

1.Fund and expand research efforts to advance understanding of the drivers of fibrolamellar carcinoma, identify possible therapies, and improve patient outcomes.
2.Drive collaboration and engagement among patients, researchers, clinicians and industry to accelerate research progress, support rapid information sharing and ensure patient-focused results.
3.Provide disease and treatment information to drive awareness of the disease, educate those affected by FLC, and to inform clinicians and researchers of the latest advances in the field.

GREENWICH CT | EIN: 27-0341021

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

20 HORSENECK LANE 2ND FLOOR,
GREENWICH CT 06830-6327

https://WWW.FIBROFOUNDATION.ORG

203-340-7800

Fibrolamellar Cancer Foundation

Mission

Vision

The principal purpose of the Foundation is to encourage, drive and fund research that will substantially improve outcomes for fibrolamellar patients and find a cure for the disease

Goals

1.Fund and expand research efforts to advance understanding of the drivers of fibrolamellar carcinoma, identify possible therapies, and improve patient outcomes.
2.Drive collaboration and engagement among patients, researchers, clinicians and industry to accelerate research progress, support rapid information sharing and ensure patient-focused results.
3.Provide disease and treatment information to drive awareness of the disease, educate those affected by FLC, and to inform clinicians and researchers of the latest advances in the field.

GREENWICH CT | EIN: 27-0341021

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

20 HORSENECK LANE 2ND FLOOR,
GREENWICH CT 06830-6327

https://WWW.FIBROFOUNDATION.ORG

203-340-7800

Beacon Report

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Good
Needs Improvement
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Not Scored
Additional Information

Program Expense Ratio:87.42% of total expenses

SCORE100%

Liabilities to Assets Ratio:32.33% of total assets

SCORE100%

Working Capital:1.90 years of reserves

SCORE100%

Fundraising Efficiency:$0.00 to raise a dollar

SCORE100%

Evaluation area metrics
Score	Metric
100%	Program Expense Ratio:87.42% of total expenses
100%	Liabilities to Assets Ratio:32.33% of total assets
100%	Working Capital:1.90 years of reserves
100%	Fundraising Efficiency:$0.00 to raise a dollar

Science behind the numbers

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Mission

Mission

Beacon Report