Vision

Anyone, anywhere in the world, who is impacted by ECD should feel hope and the strength of an engaged and empowered community dedicated to reducing the challenges of ECD.

Goals

1. 1.Enhance collaborative ECD and adult histiocytic research with a patient-centered approach
2. 2.Educate more medical personnel to dramatically improve the timeliness of ECD diagnoses
3. 3.Empower and strengthen a community of informed and connected patients, caregivers, and physicians