Support Charity Navigator

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Chelsea's Hope Lafora Children Research Fund

Mission

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Vision

A cure for Lafora disease.

Goals

1.Get the ION283 Safety Study fully-funded and support future development efforts of the ION283 asset. We must fund the remaining clinical costs ($150k), so all 10 patients can complete testing the potential treatment, then support efforts to make it widely available for our patient community.
2.Establish Clinical Centers of Excellence and Guidelines for clinicians to care for Lafora patients.
3.Expand resources to support and connect Lafora families worldwide. We seek to grow caregiver education and resources and improve platforms for families to connect, communicate, and engage with our cause.

LEXINGTON KY | EIN: 27-1008382

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

976 MAYWICK DR,
LEXINGTON KY 40504-3122

Mail donations to: 976 Maywick Dr.,
Lexington KY 40504

https://WWW.CHELSEASHOPE.ORG

859-913-0575