Turner Syndrome Foundation Inc.

Mission

The goal of the Turner Syndrome Foundation is to support research initiatives and develop educational programs to increase professional awareness and enhance medical care of those who survive Turner Syndrome. Early diagnosis and comprehensive treatments over the lifespan will lead to a brighter and healthier future for all young girls and women. Our philosophy to keep life-changing resources free and accessible to patients is a key component of what sets us apart. We do not require membership dues or fees to access information and support.

Vision

The Turner Syndrome Foundation envisions a world where every girl and woman with Turner Syndrome is empowered with knowledge, supported by compassionate care, and embraced by a community that champions her health and well-being. We are committed to raising awareness, advancing education, and supporting groundbreaking research so that no family faces this journey alone. Guided by hope, advocacy, and collaboration, we strive to improve outcomes, expand opportunities, and inspire a future where girls and women with Turner Syndrome not only survive—but thrive.

Goals

1.We provide the tools and resources necessary to promote early diagnosis, improve comprehensive care, and support individuals across their lifespan.
2.With each initiative, we strengthen our voice, expand our reach, and move closer to a future where every girl and woman with Turner syndrome is empowered to thrive.
3.Strengthen infrastructure and invest in sustainable resources that allow us to deliver programs at a greater scale in perpetuity.

HAZLET NJ | EIN: 27-1409942

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501(c)(3) organization

1 BETHANY RD STE 1,
HAZLET NJ 07730-1665

https://WWW.TURNERSYNDROMEFOUNDATION.ORG

732-847-3385