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    EB Research Partnership

    Mission

    EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

    New York NY | EIN: 27-2417202
    Profile managed by nonprofit | Is this your nonprofit?
    501(c)(3) organization
    132 East 43rd Street, Suite 432,
    New York NY 10017
    https://www.ebresearch.org/
    646-844-0902

    EB Research Partnership

    Mission

    EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

    New York NY | EIN: 27-2417202
    Profile managed by nonprofit | Is this your nonprofit?
    501(c)(3) organization
    132 East 43rd Street, Suite 432,
    New York NY 10017
    https://www.ebresearch.org/
    646-844-0902

    Beacon Report

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    • Good
    • Needs Improvement
    • Poor
    • Not Scored
    • Additional Information
    Accountability Panel
    ScoreMetric
    100%
    Website Reported on Tax Form:Yes
    100%
    No Material Diversion of Assets:Yes
    100%
    Financial Statements:Yes
    100%
    Audit Oversight Committee:Yes
    100%
    No Loans Reported To or From Officers:Yes
    100%
    Records Retention Policy:Yes
    100%
    Tax Form Disclosed on Website:Yes
    Science behind the numbers(opens in new tab)