EB Research Partnership

Mission

EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

New York NY | EIN: 27-2417202
Profile managed by nonprofit | Is this your nonprofit?
501(c)(3) organization

EB Research Partnership

Mission

EB Research Partnership is the largest nonprofit funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth. EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities. Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

New York NY | EIN: 27-2417202
Profile managed by nonprofit | Is this your nonprofit?
501(c)(3) organization

Beacon Report

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Accountability Panel
ScoreMetric
100%
Website Reported on Tax Form:Yes
100%
No Material Diversion of Assets:Yes
100%
Financial Statements:Yes
100%
Audit Oversight Committee:Yes
100%
No Loans Reported To or From Officers:Yes
100%
Records Retention Policy:Yes
100%
Tax Form Disclosed on Website:Yes
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