Support Charity Navigator

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International Rett Syndrome Foundation

Mission

The International Rett Syndrome Foundation (IRSF) funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services. IRSF coordinates, cultivates, accelerates, and funds research that will produce a cure for Rett syndrome and reveal and develop treatments that will make the lives of people living with Rett syndrome richer and free of pain and discomfort. IRSF also assists families of individuals living with Rett syndrome and advocates for and raises awareness about individuals with Rett Syndrome.

Vision

To create a world without Rett syndrome

Goals

1.We will deliver treatments and a cure for Rett syndrome. We want these treatments and cures as soon as possible, so we invest in projects today that ensure development moves faster tomorrow.
2.To ensure no family faces Rett alone. We come alongside families with support wherever they are on the journey. Each faces nearly constant challenges, and all need compassionate and practical support.
3.To ensure families living with Rett will have access to expert care. Our Centers of Excellence Network allows families to access clinics that provide expert care for their loved ones with Rett.

Cincinnati OH | EIN: 31-1682518

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

4500 Cooper Rd, Suite 204,
Cincinnati OH 45242

https://www.rettsyndrome.org

513-874-3020

International Rett Syndrome Foundation

Mission

Vision

To create a world without Rett syndrome

Goals

1.We will deliver treatments and a cure for Rett syndrome. We want these treatments and cures as soon as possible, so we invest in projects today that ensure development moves faster tomorrow.
2.To ensure no family faces Rett alone. We come alongside families with support wherever they are on the journey. Each faces nearly constant challenges, and all need compassionate and practical support.
3.To ensure families living with Rett will have access to expert care. Our Centers of Excellence Network allows families to access clinics that provide expert care for their loved ones with Rett.

Cincinnati OH | EIN: 31-1682518

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

4500 Cooper Rd, Suite 204,
Cincinnati OH 45242

https://www.rettsyndrome.org

513-874-3020

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

Disclosing the charity’s website promotes transparency and provides access to the public.

Source: Public data from IRS Form 990. Fiscal Year 2024.

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:No

SCORE0%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes Disclosing the charity’s website promotes transparency and provides access to the public. Source: Public data from IRS Form 990. Fiscal Year 2024.
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
0%	Tax Form Disclosed on Website:No

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

International Rett Syndrome Foundation

Mission

Vision

Goals

International Rett Syndrome Foundation

Mission

Vision

Goals

Beacon Report