Support Charity Navigator

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Cystinosis Research Foundation

Mission

The mission of the Cystinosis Research Foundation is to support bench, clinical and translational research for better treatments and a cure for cystinosis. Through our aggressively funded research agenda, the Cystinosis Research Foundation issues grants for bench and clinical research studies bi-annually in order to accelerate research progress and ensure that cystinosis research is ongoing and focused on novel treatments and a cure. The Cystinosis Research Foundation is dedicated to educating the public and the medical community about cystinosis to ensure early diagnosis and proper treatment. CRF is the largest private fund provider of cystinosis research grants in the world. CRF has raised over $74 million for cystinosis research. It has awarded 255 multi-year grants and is funding researchers in 13 countries.

Newport Beach CA | EIN: 32-0067668

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

3501 Jamboree Ave., STE 6100,
Newport Beach CA 92660-2959

Mail donations to: 3501 Jamboree Ave., STE 6100,
Newport Beach CA 92660-2959

https://www.cystinosisresearch.org

949-223-7610

Cystinosis Research Foundation

Mission

Newport Beach CA | EIN: 32-0067668

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

3501 Jamboree Ave., STE 6100,
Newport Beach CA 92660-2959

Mail donations to: 3501 Jamboree Ave., STE 6100,
Newport Beach CA 92660-2959

https://www.cystinosisresearch.org

949-223-7610

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Cystinosis Research Foundation

Mission

Cystinosis Research Foundation

Mission

Beacon Report