Mission: SEE MISSION STATEMENT BELOWTO RAISE THE AWARNESS AND FUNDS NECESSARY TO OVERCOME PEDIATRIC BRAIN TUMORS AND TO HELP THE CHILDREN AND FAMILIES AFFECTED BY THEM

The Matthew Larson Foundation for Pediatric Brain Tumors is a 501(c)(3) organization, with an IRS ruling year of 2007, and donations are tax-deductible.

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Contact Information

  www.ironmatt.org

  965 LILY POND LN
Franklin Lks NJ 07417-1056


 Important note on the timeliness of ratings

The IRS is significantly delayed in processing nonprofits' annual tax filings (Forms 990). As a result, the Finance & Accountability score for The Matthew Larson Foundation for Pediatric Brain Tumors is outdated and the overall rating may not be representative of its current operations. Please check with the charity directly for any questions you may have.


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Encompass Rating System by Charity Navigator


Overall Score

100

out of 100

This charity's score is a passing score.
This overall score is calculated from multiple beacon scores: 80% Finance & Accountability, 10% Leadership & Adaptability, and 10% Culture & Community


Learn about the Encompass Rating System: Overview | FAQ | Release Notes

Next: Impact & Results

...   Finance & Accountability


This score provides an assessment of a nonprofit's financial health (stability, efficiency and sustainability) and its commitment to governance practices and policies.


Finance & Accountability Score

100

out of 100

The score earned by The Matthew Larson Foundation for Pediatric Brain Tumors is a passing score

This V6 of the Finance & Accountability Score provides a baseline measure of an organization's health including the indicators listed in the report below.

This score represents Form 990 data from 2020, the latest year electronically filed and published by the IRS.



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Finance & Accountability Report

100

of 100 points

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Program Expense

Program Expense Ratio

91.36%

Higher effect on score

More data  


The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.


Program Expense Percentage

Amount of Credit Received

70% or higherFull Credit
60% - 69.9%Partial Credit
50% - 59.9%Zero Points for Program Expense Score
Below 50%Zero Points for Both Program Expense AND Liabilities to Assets Scores

Source: IRS Form 990

Board Composition

22/22 Independent

Higher effect on score


Charity Navigator looks for at least 3 board members, with more than 50% of those members identified as independent (not salaried).


The presence of an independent governing body is strongly recommended by many industry professionals to allow for full deliberation and diversity of thinking on governance and other organizational matters.


Source: IRS Form 990

Independent Audit or Financial Review

Audited

Higher effect on score


An Audit, Review, or Compilation provides important information about financial accountability and accuracy. Organizations are scored based on their Total Revenue Amount:

Total Revenue Amount

Expectation to Receive Credit

$1 million or higherExpected to complete an audit
$500,000 - $1 millionExpected to complete an audit, review, or compilation
Less than $500,000No expectation (removed from scoring methodology)

Source: IRS Form 990

Liabilities to Assets Ratio

0.26%

Lower effect on score


The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990). This ratio is an indicator of an organization’s solvency and/or long-term sustainability.

Liabilities to Assets Ratio

Amount of Credit Received

Less than 50%Full Credit
50% - 59.9%Partial Credit
60% or moreNo Credit

Source: IRS Form 990

Website

Listed

Lower effect on score


Charity Navigator looks for a website on the Form 990 as an accountability and transparency metric.


Nonprofits act in the public trust and reporting publicly on activities is an important component.


Source: IRS Form 990

Conflict of Interest Policy

Listed

Lower effect on score


Charity Navigator looks for the existence of a conflict of interest policy on the Form 990 as an accountability and transparency measure.


This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.


Source: IRS Form 990

Board Meeting Minutes

Documented

Lower effect on score


Charity Navigator looks to confirm on the Form 990 that the organization has this process in place as an accountability and transparency measure.


An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.


Source: IRS Form 990

Document Retention and Destruction

Listed

Lower effect on score


Charity Navigator looks for the existence of a document retention and destruction policy per the Form 990 as an accountability and transparency measure.


This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.


Source: IRS Form 990

Whistleblower Policy

Listed

Lower effect on score


Charity Navigator looks for the existence of a whistleblower policy per the Form 990 as an accountability and transparency measure.


This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.


Source: IRS Form 990

Additional Information

Unscored

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Total Revenue and Expenses

Total Revenue and Expenses

This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.

Salary of Key Persons

Presented here are up to five of this organization's highest compensated employees. This compensation data includes salary, cash bonuses, and expense accounts and is displayed exactly how it is reported to the IRS. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. In some cases, these amounts may include compensation from related organizations. Read the IRS policies for compensation reporting



KELLY LARSON, PRESIDENT

$0


KIRSTEN KINCADE, VICE PRESIDENT

$0


SUE KWON, SECRETARY

$0


MARK DURFEE, TREASURER

$0


NATALIE LARSON, ASST TREASURER

$0


Source: IRS Form 990 (page 7), filing year 2020

Business Master File Data

Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website


Activities:

Activity data not reported from the IRS


Foundation Status:

Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi) (BMF foundation code: 15)


Affiliation:

Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)

Data Sources: IRS Forms 990

The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to view this organization's Forms 990 on the IRS website (if any are available).

Pandemic Response

Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them. Charities may submit their own pandemic responses through their nonprofit portal.


The Matthew Larson Foundation for Pediatric Brain Tumors reported being impacted by COVID-19 in the following ways:
  • Program Delivery

  • Fundraising Capacity

  • Revenue

  • Staffing

  • Grants Received


How COVID-19 impacted the organization's operations financially:

We were unable to have in person fundraising events so the donations to our organization decreased. We were able to have one virtual event, but had to cancel 3 other events.


How COVID-19 impacted the organization's delivery of programs:

Patients find out about our services through the social workers at the hospitals. Since many patients were seen via online medical appointments they didn't interact with the social workers.


How this organization adapted to changing conditions caused by COVID-19:

We decided to go back to funding our smaller medical grants. We also sent emails to hospitals trying to get in touch with their oncology social workers. We have made a concerted effort to connect with pediatric oncology departments and social workers to increase awareness.


Innovations the organization intends to continue permanently after the pandemic:

We will make sure that people who can't attend our gala and silent auction will be able to get the link and access to bid on items remotely.


Previous: Finance & Accountability  / Next: Leadership & Adaptability

...   Impact & Results


This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.


Impact & Results Score

Not Currently Scored

The Matthew Larson Foundation for Pediatric Brain Tumors cannot currently be evaluated by our Encompass Rating Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.

Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.

Learn more about Impact & Results.

Do you work at The Matthew Larson Foundation for Pediatric Brain Tumors? Join the waitlist for an updated Impact & Results score.


Back to Overall

Additional Information

Unscored

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Largest Programs

Largest Programs



The Matthew Larson Foundation for Pediatric Brain Tumors reported its two largest programs on its FY 2020 Form 990 as:


$467,173

Spent in most recent FY

55%

Percent of program expenses


IRONMATT PROVIDES ASSISTANCE TO QUALIFIED FAMILIES WHO HAVE A CHILD UNDERGOING TREATMENT FOR A BRAIN OR CENTRAL NERVOUS SYSTEM (CNS) CANCER. HARDSHIPS ASSOCIATED WITH HAVING A CHILD DIAGNOSED WITH A C ... (More)


$381,472

Spent in most recent FY

44%

Percent of program expenses


THE FOUNDATION (AKA "IRONMATT") FUNDS CUTTING-EDGE RESEARCH TO ULTIMATELY FIND A CURE FOR PEDIATRIC BRAIN TUMORS. IRONMATT ALSO SUPPORTS INVESTIGATORS LOOKING INTO WAYS TO LESSEN THE NEGATIVE LONG-TER ... (More)


Previous: Impact & Results  / Next: Culture & Community

...   Leadership & Adaptability


This score provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.


Leadership & Adaptability Score

100

out of 100

The score earned by The Matthew Larson Foundation for Pediatric Brain Tumors is a passing score.

Encompass Rating V4 provides an evaluation of the organization's Leadership & Adaptability through the nonprofit organization submitting a survey response directly to Charity Navigator.


Back to Overall

Leadership & Adaptability Report

100

of 100 points

Mission

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s mission


SUPPORT PEDIATRIC BRAIN TUMOR RESEARCH AND RAISE AWARENESS AND FUNDS NECESSARY TO OVERCOME PEDIATRIC BRAIN TUMORS AND TO HELP FINANCIALLY SUPPORT THE CHILDREN AND FAMILIES AFFECTED BY THEM.


Source: Nonprofit submitted responses

Vision

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.


BUILD A NETWORK COMMITTED TO REDUCING FAMILY HARDSHIP, FUNDING PEDIATRIC BRAIN TUMOR RESEARCH AND GIVING CHILDREN THE OPPORTUNITY TO LIVE.


Source: Nonprofit submitted responses

Strategic Goals

The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.


Goal One: INCREASE AND EXPAND OUR FAMILY ASSISTANCE PROGRAM. GENERATE A CONSISTENT REFERRAL MECHANISM FOR HEALTHCARE PROFESSIONALS CARING FOR PATIENTS WITH A PEDIATRIC BRAIN TUMOR AND HELP MORE FAMILIES.

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Goal Two: WE RECENTLY HIRED A DIRECTOR OF DEVELOPMENT TO GUIDE US AS THE FOUNDATION IS GROWING. WE PLAN TO INCREASE PHILANTHROPIC REVENUE THROUGH CORPORATE SUPPORT, GRANT WRITING AND DEVELOP A PR PROGRAM.

Goal Type: Invest in the capacity of our organization (financial, management, technical, etc.).


Goal Three: WE ARE GOING TO EXPAND OUR RESEARCH INITIATIVES. INVESTING IN A LIST SERVE, ADVERTISING IN MEDICAL JOURNALS AND OBTAIN GUIDANCE FROM OUR MEDICAL ADVISORY COMMITTEE WILL HELP US ACCOMPLISH THIS GOAL.

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Source: Nonprofit submitted responses

Leadership Development

The nonprofit provides evidence of investment in leadership development


Describe an investment in leadership

We have hired a full time Director of Development who is a seasoned professional with 30 years of experience working for prominent non-profit organizations. We have recruited and added key new members to our Board of Directors who are in leadership positions at successful companies. We have embarked on a new Strategic Planning initiative to develop a five year sustainability and growth model.

Source: Nonprofit submitted responses

Mobilizing for Mission

The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.


This organization mobilizes for mission in the following ways:
  • Strategic Partnerships

  • Thought Leadership

  • Raising Awareness

What are this organization’s external mobilizaton efforts?

We engage in strategic partnerships with other organizations in a variety of ways. We work with many non-profit health systems around the country to support their pediatric brain tumor patients through our Family Assistance Program. Our Medical Advisory Committee is comprised of 13 well respected physicians from prominent healthcare facilities and they help us to select important cancer research initiatives to support with our grants program. We have provided six figure research grants at major institutions such as Johns Hopkins, Stanford University and Memorial Sloan Kettering. We engage in thought leadership activities by attending national and regional medical conferences and CSW conferences to increase awareness and promote our mission. We raise awareness of our mission through our special events, direct mail, informative email blasts and social media platforms. We are happy to have a relationship with "The Children's Place" that supports families in our Family Assistance Program

Source: Nonprofit submitted responses

Story of Adaptability

The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.


Due to Covid 19, hospital admissions and visits were down around the country. Many Social Workers had less face to face interaction with their pediatric patients. We made a special effort to reach out to our Social Worker network of contacts around the country to remind them that we are here for their patients and families. We have hired a Director of Development to focus on increasing philanthropic revenue. We reached out to many of our generous donors to remind them that their continued support is needed. We have empowered the Board of Directors to build a new Strategic Plan with a focus on growth and sustainability for the next five years. We conducted our first ever virtual gala that was very successful.

Source: Nonprofit submitted responses

Previous: Leadership & Adaptability

...   Culture & Community


This score provides an assessment of the organization's culture and connectedness to the community it serves. Learn more about how and why we rate Culture & Community.


Culture & Community Score

100

out of 100

The Matthew Larson Foundation for Pediatric Brain Tumors has earned a passing score. The organization provided data about how it listens to constituents (Constituent Feedback) and its Diversity, Equity, & Inclusion (DEI) practices (see report below).

The Culture & Community Beacon is comprised of the following metrics:

  • Constituent Feedback: 100/100 (30% of beacon score)

  • Diversity, Equity, & Inclusion: 100/100 (70% of beacon score)


Back to Overall

Culture & Community Report

100

of 100 points

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Constituent Feedback

Diversity, Equity, & Inclusion

100/100 points

70% of beacon score


This organization's score of 100 is a passing score. The organization reported that it is implementing 14 diversity, equity and inclusion (DEI) practices. Charity Navigator believes nonprofit organizations implementing effective DEI policies and practices can enhance a nonprofit's decision-making, staff motivation, innovation, and effectiveness.


View this organization's DEI Strategies


Methodology


We are utilizing data collected by Candid to document and assess the DEI practices implemented by the organization. Nonprofit organizations are encouraged to fill out the Equity Strategies section of their Candid profiles to receive a rating.


Learn more about the methodology.

Constituent Feedback

100/100 points

30% of beacon score


This organization reported that it is collecting feedback from the constituents and/or communities it serves. Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective.


View this organization's Constituent Feedback Practices




Methodology


We've partnered with Candid to survey organizations about their feedback practices. Nonprofit organizations can fill out the How We Listen section of their Candid profile to receive a rating.


Learn more about the methodology.

Analysis and Research


Like the overall Encompass Rating System, the Culture & Community Beacon is designed to evolve as metrics are developed and ready for integration. Below you can find more information about the metrics we currently evaluate in this beacon and their relevance to nonprofit performance.


Constituent Feedback


Diversity, Equity, and Inclusion

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