Support Charity Navigator

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The Ehlers-Danlos Society

Mission

The purpose or purposes for which the corporation is organized are: 1. To advance and accelerate research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). 2. To support the development of effective and equitable EDS and HSD therapies and work to improve the lives of individuals affected by EDS and HSD. 3. To create a world in which each person living with EDS and HSD has the right treatment and care at the right time for their specific needs.

New York NY | EIN: 38-2813140

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

447 Broadway, 2nd Fl #670,
New York NY 10013

https://www.ehlers-danlos.com

315-226-7795

The Ehlers-Danlos Society

Mission

New York NY | EIN: 38-2813140

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

447 Broadway, 2nd Fl #670,
New York NY 10013

https://www.ehlers-danlos.com

315-226-7795

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

Disclosing the charity’s website promotes transparency and provides access to the public.

Source: Public data from IRS Form 990. Fiscal Year 2025.

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes Disclosing the charity’s website promotes transparency and provides access to the public. Source: Public data from IRS Form 990. Fiscal Year 2025.
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

The Ehlers-Danlos Society

Mission

The Ehlers-Danlos Society

Mission

Beacon Report