Support Charity Navigator

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Prader-Willi Syndrome Association (USA)

Mission

Organized in 1975, Prader-Willi Syndrome Association (USA) is dedicated to serving individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals. To provide information, education, and support services to its members, PWSA offers: a toll-free telephone number for information and referrals; a bimonthly newsletter, The Gathered View; publications and audiovisual presentations about PWS; an annual national conference for families and professionals; a nationwide network of local chapters, parents, and professionals; research funding to expand knowledge and treatment options; and representation on the international level. PWS is a complex non-hereditary birth defect resulting from an abnormality on the 15th chromosome.

Sarasota FL | EIN: 41-1306908

Is this your nonprofit?

501(c)(3) organization

8588 Potter Park Drive, Suite 500,
Sarasota FL 34238

https://www.pwsausa.org/

800-926-4797

Prader-Willi Syndrome Association (USA)

Mission

Sarasota FL | EIN: 41-1306908

Is this your nonprofit?

501(c)(3) organization

8588 Potter Park Drive, Suite 500,
Sarasota FL 34238

https://www.pwsausa.org/

800-926-4797

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Prader-Willi Syndrome Association (USA)

Mission

Prader-Willi Syndrome Association (USA)

Mission

Beacon Report