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The Association for Frontotemporal Degeneration

Mission

As the leading organization focused exclusively on frontotemporal degeneration (FTD), AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. Every day, we work to provide information, education, and support to persons diagnosed with FTD and their families; increase awareness of FTD among medical and healthcare professionals on how to improve care; promote a greater understanding among the general public about the nature and occurrence of FTD and the needs of those who are coping with it; advocate with public officials to promote programs that provide appropriate, affordable, and high-quality, long-term health care and social services; and support research that can lead to better diagnostic processes, therapies, and a cure for FTD.

Vision

Frontotemporal degeneration (FTD) is the most common dementia for people under 60 and is believed to affect more than 60,000 Americans, though this is likely an undercount, as the disease is often misdiagnosed or undiagnosed. FTD causes irreversible, progressive changes in behavior, personality, language, and movement. Currently, there are no FDA-approved, disease-modifying treatments or therapies available. AFTD envisions a world with compassionate care, effective support, and a future free of FTD.

Goals

1.Advance diagnosis, treatments, and cures for all.
2.Ensure that high-quality care and support are accessible to anyone affected by FTD at every stage of their journey.
3.Advance awareness and advocate for policy change to improve the lives of those impacted by FTD.

King of Prussia PA | EIN: 41-2073220

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

2700 Horizon Drive, Suite 120,
King of Prussia PA 19406-2726

https://www.theaftd.org

866-507-7222

The Association for Frontotemporal Degeneration

Mission

Vision

Goals

1.Advance diagnosis, treatments, and cures for all.
2.Ensure that high-quality care and support are accessible to anyone affected by FTD at every stage of their journey.
3.Advance awareness and advocate for policy change to improve the lives of those impacted by FTD.

King of Prussia PA | EIN: 41-2073220

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

2700 Horizon Drive, Suite 120,
King of Prussia PA 19406-2726

https://www.theaftd.org

866-507-7222

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

The Association for Frontotemporal Degeneration

Mission

Vision

Goals

The Association for Frontotemporal Degeneration

Mission

Vision

Goals

Beacon Report