Largest Programs
The Brain Recovery Project dba Pediatric Epilepsy Surgery Alliance reported its three largest programs on its FY 2020 Form 990 as:
$92,318
Spent in most recent FY
67%
Percent of program expenses
PEDIATRIC EPILEPSY SURGERY INFORMATION AND RESOURCES:THE BRP IS A TRUSTED SOURCE OF INFORMATION FOR PARENTS AND CAREGIVERS, EPILEPSY PROFESSIONALS, SCHOOL TEAMS, AND THERAPISTS. THE PURPOSE OF THIS PR ... (More)
PEDIATRIC EPILEPSY SURGERY INFORMATION AND RESOURCES:THE BRP IS A TRUSTED SOURCE OF INFORMATION FOR PARENTS AND CAREGIVERS, EPILEPSY PROFESSIONALS, SCHOOL TEAMS, AND THERAPISTS. THE PURPOSE OF THIS PROGRAM IS TO PROVIDE INFORMATION AND EDUCATE PARENTS/CAREGIVERS OF CHILDREN WITH DRUG-RESISTANT EPILEPSY, AS WELL AS THE PUBLIC, ABOUT EPILEPSY SURGERY, GET CHILDREN EVALUATED FOR SURGERY FASTER, AND HELP PARENTS/CAREGIVERS UNDERSTAND AND IMPROVE POST-OPERATIVE OUTCOMES USING EVIDENCEBASED RESEARCH. THROUGH ITS WIDE RANGE OF WEB CONTENT, PRINT PUBLICATIONS, AND WEBINARS, THE PROGRAM'S GOAL IS TO ENSURE THAT PARENTS, CAREGIVERS, AND ALIGNED PROFESSIONALS HAVE THE TOOLS AND INFORMATION THEY NEED FROM DRUG-RESISTANT EPILEPSY DIAGNOSIS THROUGH THE LIFESPAN.THE BRP PROVIDES:- EDUCATION FOR PARENTS, CAREGIVERS, SCHOOL TEAMS, AND THERAPISTS AT WWW.BRAINRECOVERYPROJECT.ORG- PRINT PUBLICATIONS SPECIFIC TO DIAGNOSIS THROUGH POST-OPERATIVE FUNCTIONAL, MEDICAL, AND EDUCATION OUTCOMES AND INTERVENTIONS ARE AVAILABLE AT NO CHARGE TO PARENTS, CAREGIVERS, THERAPISTS, AND SCHOOL TEAMS. ALL ARE DOWNLOADABLE, AND MOST ARE TRANSLATED TO ENGLISH, SPANISH, FRENCH, CHINESE, AND TAGALOG. NEW PUBLICATIONS IN 2020 INCLUDE A 100+ PAGE GUIDE ON EDUCATION TRANSITION AFTER EPILEPSY SURGERY TO HELP FAMILIES NAVIGATE THE COMPLICATED MAZE OF TRANSITIONING TO ADULTHOOD FOR THEIR CHILD AFTER EPILEPSY SURGERY;- A BIENNIAL PATIENT-CENTERED NATIONAL CONFERENCE BRINGS TOGETHER LEADING MEDICAL, ALIGNED THERAPISTS, BEHAVIORISTS, EDUCATORS, RESEARCHERS, AND FAMILIES TO LEARN, BUILD COMMUNITY, AND GAIN SUPPORT. MOST SESSIONS FROM THE CONFERENCES ARE RECORDED AND PUBLISHED ON THE BRP'S YOUTUBE CHANNEL, WHICH EXCEEDED 60,000 VIEWS IN 2020 ALONE;- UPDATES ON PEDIATRIC EPILEPSY SURGERY, FINANCIAL AID, SPECIAL EDUCATION, TRANSITIONING TO ADULTHOOD, AND OTHER ISSUES THROUGH ELECTRONIC COMMUNICATIONS, WEBINARS, AND REGULAR WEBSITE POSTINGS AT WWW.BRAINRECOVERYPROJECT.ORG.-IN 2020 WE LAUNCHED A PUBLIC AWARENESS CAMPAIGN, "LET'S TALK ABOUT EPILEPSY SURGERY," TO HELP PARENTS OVERCOME BARRIERS TO PROMPT REFERRAL FOR AN EPILEPSY SURGERY EVALUATION AND HELP THEM NAVIGATE THE PRESURGICAL EVALUATION PROCESS. TO DATE, THIS CAMPAIGN HAS OVER 3,500 VIEWS ON OUR YOUTUBE CHANNEL.- PEER SUPPORT FOR PARENTS NAVIGATING EPILEPSY SURGERY EVALUATION, NEURODEVELOPMENTAL CHALLENGES THROUGH VARIOUS TOUCHPOINTS.HEALTH PROFESSIONAL OUTREACHTHE BRP PROVIDES HEALTH PROFESSIONALS WITH TOOLS TO ASSIST THEM IN PROVIDING THEIR PATIENTS AND CAREGIVERS WITH CURRENT EDUCATIONAL INFORMATION AND OPPORTUNITIES TO HELP THEM BETTER UNDERSTAND THE SURGICAL EVALUATION PROCESS, EPILEPSY SURGERY, POST-OPERATIVE FUNCTIONAL AND MEDICAL OUTCOMES, AND IMPROVE THEM. WE DO THIS BY:- ACTIVELY PARTICIPATING IN PROFESSIONAL ORGANIZATIONS AS MEMBERS, EXHIBITORS, OR BOTH SUCH AS THE AMERICAN EPILEPSY SOCIETY, THE ENDOCRINE SOCIETY, THE AMERICAN CONGRESS OF REHABILITATION MEDICINE, AND THE SOCIETY FOR THE NEURAL CONTROL OF MOVEMENT; - ENGAGING OUR SCIENTIFIC ADVISORY BOARD, A GROUP OF TOP-LEVEL SCIENTISTS AND CLINICIANS ADVISE THE ORGANIZATION ON OUR RESEARCH-RELATED EFFORTS AND CLINICIAN OUTREACH. ADVOCACYWE MOVE OUR MISSION FORWARD BY COLLABORATING AND ADVOCATING WITH HIGH-IMPACT ORGANIZATIONS. WE DO THIS THROUGH OUR ACTIVE PARTICIPATION IN ALLIANCES WITH OTHER ORGANIZATIONS, INCLUDING THE:- AMERICAN BRAIN COALITION;- THE RARE EPILEPSIES NETWORK;- EPILEPSY LEARNING HEALTHCARE SYSTEM OF THE EPILEPSY FOUNDATION OF AMERICA;- INFANTILE SPASMS ACTIONS NETWORK;- THE RARE AND CATASTROPHIC SEIZURES CONSORTIUM; AND,- THE EPILEPSY LEADERSHIP COUNCIL OF THE AMERICAN EPILEPSY SOCIETY.IN 2020, WE WERE PART OF THE EPILEPSY LEADERSHIP COUNCIL'S EPILEPSY RESEARCH BENCHMARK WORKGROUP. WE WORKED WITH THE NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE AND THE AMERICAN EPILEPSY SOCIETY ON WRITING NEW RESEARCH BENCHMARKS TO GUIDE FEDERAL AND NON-PROFIT FUNDING PRIORITIES. (Less)
$19,274
Spent in most recent FY
14%
Percent of program expenses
RESEARCH:WE CONTINUED TO COLLECT DATA IN THE GLOBAL PEDIATRIC EPILEPSY SURGERY REGISTRY TO UNDERSTAND THE DEVELOPMENTAL TRAJECTORY AFTER PEDIATRIC EPILEPSY SURGERY. THIS DATA COLLECTED RESULTED IN THE ... (More)
RESEARCH:WE CONTINUED TO COLLECT DATA IN THE GLOBAL PEDIATRIC EPILEPSY SURGERY REGISTRY TO UNDERSTAND THE DEVELOPMENTAL TRAJECTORY AFTER PEDIATRIC EPILEPSY SURGERY. THIS DATA COLLECTED RESULTED IN THE PUBLICATION OF TWO SCIENTIFIC ABSTRACTS AND PRESENTED A (Less)
$25,534
Spent in most recent FY
18%
Percent of program expenses
FINANCIAL ASSISTANCE:WE PROVIDE FINANCIAL SUPPORT TO FAMILIES IMPACTED BY PEDIATRIC EPILEPSY SURGERY. WE DO THIS BY:- SURGICAL EVALUATION TRAVEL SCHOLARSHIP: AS PART OF OUR EFFORT TO BREAK DOWN FINANC ... (More)
FINANCIAL ASSISTANCE:WE PROVIDE FINANCIAL SUPPORT TO FAMILIES IMPACTED BY PEDIATRIC EPILEPSY SURGERY. WE DO THIS BY:- SURGICAL EVALUATION TRAVEL SCHOLARSHIP: AS PART OF OUR EFFORT TO BREAK DOWN FINANCIAL BARRIERS TO A PROMPT REFERRAL FOR AN EPILEPSY SURGER (Less)