Vision

Project Alive is a powerful voice for children and adults with Hunter syndrome, bringing together families and advocates with researchers, industry, and regulators. The organization funds promising curative research, assists researchers and industry with designing research studies for our community, and advocates for the most effective and efficient system of clinical research, evaluation, and approval. Through its innovative campaigns and grassroots efforts, Project Alive has made significant advances in public awareness about Hunter syndrome and its symptoms, the need for early diagnosis, and available treatments and clinical trials.

Goals

1. 1.Support, empower, and educate those directly affected by MPS II through programs and community resources.
2. 2.Develop new streams of revenue through fundraising campaigns, donor initiatives, grants, and events and conferences.
3. 3.Support MPS II research by offering research grants, participating in research and scientific publications, and publishing the MPS II standard of care paper.