Support Charity Navigator

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Project Alive

Mission

Project Alive exists to find a cure for Hunter syndrome through research and advocacy, and provide education and resources to the Hunter syndrome community.

Vision

Project Alive is a powerful voice for children and adults with Hunter syndrome, bringing together families and advocates with researchers, industry, and regulators. The organization funds promising curative research, assists researchers and industry with designing research studies for our community, and advocates for the most effective and efficient system of clinical research, evaluation, and approval. Through its innovative campaigns and grassroots efforts, Project Alive has made significant advances in public awareness about Hunter syndrome and its symptoms, the need for early diagnosis, and available treatments and clinical trials.

Goals

1.Support, empower, and educate those directly affected by MPS II through programs and community resources.
2.Develop new streams of revenue through fundraising campaigns, donor initiatives, grants, and events and conferences.
3.Support MPS II research by offering research grants, participating in research and scientific publications, and publishing the MPS II standard of care paper.

Spring Hill FL | EIN: 46-4617970

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

PO BOX 3521,
Spring Hill FL 34611

Mail donations to: PO Box 3521,
Spring Hill FL 34611

https://PROJECTALIVE.ORG

865-248-9092

Project Alive

Mission

Project Alive exists to find a cure for Hunter syndrome through research and advocacy, and provide education and resources to the Hunter syndrome community.

Vision

Goals

1.Support, empower, and educate those directly affected by MPS II through programs and community resources.
2.Develop new streams of revenue through fundraising campaigns, donor initiatives, grants, and events and conferences.
3.Support MPS II research by offering research grants, participating in research and scientific publications, and publishing the MPS II standard of care paper.

Spring Hill FL | EIN: 46-4617970

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

PO BOX 3521,
Spring Hill FL 34611

Mail donations to: PO Box 3521,
Spring Hill FL 34611

https://PROJECTALIVE.ORG

865-248-9092

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

Disclosing the charity’s website promotes transparency and provides access to the public.

Source: Public data from IRS Form 990. Fiscal Year 2025.

No Material Diversion of Assets:Yes

SCORE100%

Records Retention Policy:No

SCORE0%

Tax Form Disclosed on Website:No

SCORE0%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes Disclosing the charity’s website promotes transparency and provides access to the public. Source: Public data from IRS Form 990. Fiscal Year 2025.
100%	No Material Diversion of Assets:Yes
0%	Records Retention Policy:No
0%	Tax Form Disclosed on Website:No

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

Project Alive

Mission

Vision

Goals

Project Alive

Mission

Vision

Goals

Beacon Report