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    Spinal Csf Leak Foundation
    This organization is not rated
    See Details
    Impact & Measurement
    Accountability & Finance
    Culture & Community
    Leadership & Adaptability
    Spinal Csf Leak Foundation
    Profile managed by nonprofit | Is this your nonprofit?
    501(c)(3) organization
    Donations are tax-deductible
    https://spinalcsfleak.org
    100 N HOWARD ST STE 5792 SPOKANE WA 99201-0508

    SPOKANE WA | IRS ruling year: 2014 | EIN: 47-1141080  
    An EIN is a unique nine-digit number that identifies a business for tax purposes.
    An EIN is a unique nine-digit number that identifies a business for tax purposes.
     
     

    Rating Information

    Not currently rated


    Ratings are calculated from one or more beacon scores. Currently, we require either an Accountability & Finance beacon or an Impact assessment to be eligible for a Charity Navigator rating. Note: The absence of a rating does not indicate a positive or negative assessment; it only indicates that we have not yet evaluated this organization.
    See rating report below to learn why this organization is not currently eligible.

    Historical Ratings
    Charity Navigator's ratings previously did not consider Leadership & Adaptability, Culture & Community, or Impact & Measurement. The historic rating mainly reflects a version of today’s Accountability and Finance score. More information on our previous rating methodologies can be found on our rating methodology page.
    Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!

    Rating Report

    Leadership & Adaptability
    Score

    100

    This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
    Learn more

    Strategy

    40 out of 40 points

    Full Credit
    Partial Credit
    No Credit
    Mission Statement
    10 out of 10 points
    The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission.
    To reduce the suffering of persons affected by intracranial hypotension or spinal cerebrospinal fluid leak.
    Vision Statement
    10 out of 10 points
    The nonprofit organization presents evidence of strategic thinking through articulating the organization's vision.
    For each person affected by intracranial hypotension or spinal cerebrospinal fluid leak to receive p
    Strategic Goals
    20 out of 20 points
    The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
    Goal One: FOCUS ON OUR MISSION AND PROGRAMS - Center the patient voice as we educate and raise awareness - Continue to include a diversity of experiences in our patient stories - Expand advocacy resources
    Goal Two: LEAD THE ADVANCEMENT OF RESEARCH - Shift from a “call for proposals” research funding model to a Foundation-directed model, including initiating a research network and patient registry
    Goal Three: FUNDRAISING & IMPACT - Expand our fundraising strategy to include more aggressive outreach to large donors - Create more monthly donors - Make sure our community understands what funds are used for

    Leadership

    30 out of 30 points

    Full Credit
    Partial Credit
    No Credit
    Investment in Leadership Development
    15 out of 15 points
    The nonprofit provides evidence of investment in leadership development.
    Attending webinars and online training to learn best practices in nonprofit leadership.
    External Focus on Mobilizing Mission
    15 out of 15 points
    The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
    • Strategic Partnerships
    • Collaborative Engagement
    • Thought Leadership
    • Social Promotion
    • Civic Engagement
    • Public Policy Advocacy

    Adaptability

    30 out of 30 points

    Full Credit
    Partial Credit
    No Credit
    Adaptability Practices
    30 out of 30 points
    The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year
    Our library of video and narrative format patient stories continues to grow, featuring 25 video stories with accompanying narrative, 10 narrative-only stories, and two narrative stories with audio. But during the COVID-19 pandemic, we had to adapt: We could no longer film patient storytellers in person, so we had to come up with a way to film our patient stories remotely. We did this by investing in video equipment we could send to each storyteller and created written and video instructions for self-taping. Our new, pandemic-era filming process now includes shipping all audiovisual equipment to our patient storytellers and guiding them through the set-up and filming process. In addition to the video and written instructions we provide, our interviewer and video producer meet with the patient storytellers for about an hour via Zoom or FaceTime to help with technical set-up and making sure the camera, sound, and lighting are all working properly. Once everything is ready to go, we begin our interview. Afterwards, we provide shipping for the equipment to either return to our video producer or go on to the next storyteller. Our continued goal in storytelling is for the diversity of patient stories to reflect the broad range of affected individuals, clinical presentations, clinical courses, and outcomes. The flexibility provided by our new self-filming process means more access to more kinds of patients, who are now able to share their stories from the comfort of their own homes.