National Scleroderma Foundation

Mission

A relentless force in finding a cure and improving the lives of people affected by scleroderma, the National Scleroderma Foundation advances medical research, promotes disease awareness, and provides support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation is the leading nonprofit funder of peer-reviewed research to discover the cause, understand the mechanisms, and overcome scleroderma forever. Our signature National Scleroderma Conference and Kids Get Scleroderma, Too! conference provide access to world-renowned scleroderma experts and are the central meeting ground of the scleroderma community.

Vision

A relentless force in finding a cure and improving the lives of people affected by scleroderma, the

Goals

1.To create one national, unified organization with strong chapters serving people with scleroderma wherever they are.
2.Position chapters to achieve (1) Actual or virtual coverage for any patient or caregiver; and (2) Greater focus on services, while still driving grassroots fundraising activities.
3.Implement technology platform(s) and enhance user content to better meet needs of people with scleroderma.

Danvers MA | EIN: 52-1375827

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

55 Ferncroft Road, Suite 315,
Danvers MA 01923

https://www.scleroderma.org/

800-722-4673

National Scleroderma Foundation

Mission

Vision

A relentless force in finding a cure and improving the lives of people affected by scleroderma, the

Goals

1.To create one national, unified organization with strong chapters serving people with scleroderma wherever they are.
2.Position chapters to achieve (1) Actual or virtual coverage for any patient or caregiver; and (2) Greater focus on services, while still driving grassroots fundraising activities.
3.Implement technology platform(s) and enhance user content to better meet needs of people with scleroderma.

Danvers MA | EIN: 52-1375827

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

55 Ferncroft Road, Suite 315,
Danvers MA 01923

https://www.scleroderma.org/

800-722-4673

Beacon Report

Great
Good
Needs Improvement
Poor
Not Scored
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

Science behind the numbers

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Mission

Mission

Beacon Report