Friedreich's Ataxia Research Alliance

Mission

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich's ataxia (FA) through research. FA is a debilitating, life-shortening, degenerative neuromuscular disorder affecting one in 50,000 people in the United States. FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others who share this commitment, FARA believes we can help bring forward the first effective treatments and a cure for FA.

Downingtown PA | EIN: 52-2122720
Profile managed by nonprofit | Is this your nonprofit?
501(c)(3) organization
533 West Uwchlan Avenue,
Downingtown PA 19335
https://www.curefa.org/
484-879-6160

Friedreich's Ataxia Research Alliance

Mission

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich's ataxia (FA) through research. FA is a debilitating, life-shortening, degenerative neuromuscular disorder affecting one in 50,000 people in the United States. FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others who share this commitment, FARA believes we can help bring forward the first effective treatments and a cure for FA.

Downingtown PA | EIN: 52-2122720
Profile managed by nonprofit | Is this your nonprofit?
501(c)(3) organization
533 West Uwchlan Avenue,
Downingtown PA 19335
https://www.curefa.org/
484-879-6160

Beacon Report

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Website Reported on Tax Form:Yes
SCORE100%

Disclosing the charity’s website promotes transparency and provides access to the public.

Source: Public data from IRS Form 990. Fiscal Year 2024.

Accountability Panel
ScoreMetric
100%
Website Reported on Tax Form:Yes

Disclosing the charity’s website promotes transparency and provides access to the public.

Source: Public data from IRS Form 990. Fiscal Year 2024.

100%
No Material Diversion of Assets:Yes
100%
Financial Statements:Yes
100%
Audit Oversight Committee:Yes
100%
No Loans Reported To or From Officers:Yes
100%
Records Retention Policy:Yes
100%
Tax Form Disclosed on Website:Yes
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