Friedreich's Ataxia Research Alliance

Mission

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich's ataxia (FA) through research. FA is a debilitating, life-shortening, degenerative neuromuscular disorder affecting one in 50,000 people in the United States. FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others who share this commitment, FARA believes we can help bring forward the first effective treatments and a cure for FA.

Vision

We believe transformative change lies at the intersection of people and science. We work in collabo

Goals

1.Fund >9M in research with priority to addressing mechanisms of cardiac dysfunction, metabolic changes in FA, and neuron development and dysfunction
2.Facilitate an FA treatment pipeline with 6 treatment approaches & >18 candidates in development or clinical trials
3.Grow the collaborative clinical research network to support next generation clinical trials

Downingtown PA | EIN: 52-2122720

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

533 West Uwchlan Avenue,
Downingtown PA 19335

https://www.curefa.org/

484-879-6160

Friedreich's Ataxia Research Alliance

Mission

Vision

We believe transformative change lies at the intersection of people and science. We work in collabo

Goals

1.Fund >9M in research with priority to addressing mechanisms of cardiac dysfunction, metabolic changes in FA, and neuron development and dysfunction
2.Facilitate an FA treatment pipeline with 6 treatment approaches & >18 candidates in development or clinical trials
3.Grow the collaborative clinical research network to support next generation clinical trials

Downingtown PA | EIN: 52-2122720

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

533 West Uwchlan Avenue,
Downingtown PA 19335

https://www.curefa.org/

484-879-6160

Beacon Report

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Good
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Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

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Mission

Mission

Beacon Report