An EIN is a unique nine-digit number that identifies a business for tax purposes.
An EIN is a unique nine-digit number that identifies a business for tax purposes.
Organization Mission
TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
Rating Information
Not currently rated
Ratings are calculated from one or more beacon scores. Currently, we require either an Accountability & Finance beacon or an Impact & Measurement beacon to be eligible for a Charity Navigator rating. Note: The absence of a rating does not indicate a positive or negative assessment; it only indicates that we have not yet evaluated this organization.
See rating report below to learn why this organization is not currently eligible.
Historical Ratings
Charity Navigator's ratings previously did not consider Leadership & Adaptability, Culture & Community, or Impact & Measurement. The historic rating mainly reflects a version of today’s Accountability and Finance score. More information on our previous rating methodologies can be found on our rating methodology page.
Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!
The ALS Association North Carolina Chapter cannot currently be evaluated by our Accountability & Finance methodology because they have e-filed less than three full IRS Form 990s in the past six fiscal years
We recognize that organizations may skip e-filing on certain years, while otherwise meeting our methodology. However, we do not believe it appropriate to rate an organization based on this limited amount of data.
This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.
Salary of Key Persons - No Data Available
No Data Available
Salary of Key Persons data is currently unavailable for this organization. This data is only available if this charity has at least one year of electronically-filed Form 990 data filed within the last 3 years. In some cases, there may be an electronically-filed 990 on file but the nonprofit may have not included the information and therefore we cannot post it.
IRS Published Data (Business Master File) - Data Available
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Subordinate - the organization is a subordinate in a group ruling. (BMF affiliation code: 9)
Data Sources (IRS Forms 990) - Data Available
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage accountability and finance data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (The ALS Association North Carolina Chapter) or EIN (561609591) in the 'Search Term' field.
Impact & Measurement
Not Currently Scored
The ALS Association North Carolina Chapter cannot currently be evaluated by our Impact & Measurement methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
Does your organization collect feedback (i.e., perceptions, opinions, concerns) from the people meant to ultimately benefit from your mission?
Yes
Feedback Usage
100 out of 100 points
How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences
To identify bright spots and enhance positive service experiences
To make fundamental changes to our programs and/or operations
To inform the development of new programs/projects
To identify where we are less inclusive across demographic groups
To strengthen relationships with the people we serve
To understand client needs and how we can help them achieve their desired outcomes
Practices
100 out of 100 points
Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually
We take steps to get feedback from marginalized or under-represented people
We aim to collect feedback from as many people we serve as possible
We take steps to ensure people feel comfortable being honest with us
We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.)
We engage the people who provide feedback in looking for ways we can improve in response
We tell the people who gave us feedback how we acted on their feedback
Challenges
100 out of 100 points
What challenges does your organization face in collecting feedback from the people you serve?
It is difficult to get people to respond to requests for feedback
It is difficult to find the ongoing funding to support feedback collection
Equity Strategies™
Unscored
0% of Culture & Community score
Leadership & Adaptability
Score
100
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission.
TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
Vision Statement
10 out of 10 points
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.
To create a world without ALS.
Strategy Goals
20 out of 20 points
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: Provide, sustain, and expand premier services to the ALS community that exceeds level four on the Pathways to Excellence matrix.
Goal Two: Promote the interdependence between care and research in our messaging and through our actions.
Goal Three: Promote and support The ALS Association’s research initiatives, encourage all ALS clinics to engage in clinical research, and encourage patients to participate in clinical trials.
Leadership
30 out of 30 points
Full Credit
Partial Credit
No Credit
Investment in Leadership Development
15 out of 15 points
The nonprofit provides evidence of investment in leadership development.
Exceptional governance practices are key to developing healthy non-profit organizations. Staff and Board Members receive governance training to understand the roles and how they should work together in the most productive and balanced way. Many of our Board Members attend an 8 week Board Bootcamp to further their education.
External Focus on Mobilizing Mission
15 out of 15 points
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
We work closely with other non-profit organizations and leaders in the ALS Community to support rather than duplicate initiatives. An example of this is our sponsorship of Joe's Camp through the Joe Martin ALS Foundation. We financially sponsor the free camp for kids who are impacted by ALS and our Care Services staff participate in the camp activities and sessions. We also work to mobilize our constituents to support key legislation year-round.
Adaptability
30 out of 30 points
Full Credit
Partial Credit
No Credit
Investment in Leadership Development
30 out of 30 points
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
The Covid-19 pandemic forced us to rethink how we operate and how we deliver our programs and services. We adapted nearly everything we do to virtual processes, maintaining high levels of efficiency and productivity.