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RALEIGH NC | IRS ruling year: 1990 | EIN: 56-1609591
Organization Mission
TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.
Ratings are calculated from one or more beacon scores. Currently, we require either an Accountability & Finance beacon or an Impact & Results beacon to be eligible for a Charity Navigator rating. Note: The absence of a rating does not indicate a positive or negative assessment; it only indicates that we have not yet evaluated this organization.
See rating report below to learn why this organization is not currently eligible.
We recognize that not all metrics and beacons equally predict a charity’s success. The percentage each beacon contributes to the organization’s overall rating depends on the number of beacons an organization has earned.
Use the tool below to select different beacons to see how the weighting shifts when only one, two, or three beacons are earned.
Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!
Not Currently Scored
The ALS Association North Carolina Chapter cannot currently be evaluated by our Accountability & Finance methodology because they have e-filed less than three full IRS Form 990s in the past six fiscal years
We recognize that organizations may skip e-filing on certain years, while otherwise meeting our methodology. However, we do not believe it appropriate to rate an organization based on this limited amount of data.
This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.
No Data Available
Salary data is coming soon.
Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website
Foundation Status:
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Subordinate - the organization is a subordinate in a group ruling. (BMF affiliation code: 9)
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (The ALS Association North Carolina Chapter) or EIN (561609591) in the 'Search Term' field.
Not Currently Scored
The ALS Association North Carolina Chapter cannot currently be evaluated by our Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
Score
This beacon provides an assessment of the organization's culture and connectedness to the community it serves.
Learn more
Full Credit
Partial Credit
No CreditConstituent Feedback - Data Available100/100 points Constituent Feedback - Data Available100/100 points
100% of beacon score
This organization reported that it is collecting feedback from the constituents and/or communities it serves. The methodology leveraged for Constituent Feedback is based on The Core Principles of Constituent Feedback, which describes listening and responding well to feedback. Charity Navigator participates in a consortium with other feedback experts and leading nonprofit infrastructure platforms to drive Constituent Feedback's advancement, promotion, and data collection.
Who are the people you serve with your mission? Describe briefly.
Individuals living with ALS and their families and caregivers
How is your organization collecting feedback from the people you serve?
Electronic surveys (by email, tablet, etc.), Paper surveys, Case management notes, Suggestion box/email
How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve
With whom does your organization share the feedback you got from the people you serve?
The people we serve, Our staff, Our board, Our funders, Our community partners
How has asking for feedback from the people you serve changed your relationship with them or shifted power - over decisions, resources, rules or in other ways - to them?
It helps us make informed decisions about our current and future program decisions. Asking for specific feedback from people living with ALS and their families about their daily experiences, is a key input in creating new programs, and ensuring that our families have the most positive experience with our organization.
What challenges does your organization face in collecting feedback from the people you serve?
It is difficult to get the people we serve to respond to requests for feedback, It is difficult to find the ongoing funding to support feedback collection, Staff find it hard to prioritize feedback collection and review due to lack of time
Briefly describe a recent change that your organization made in response to feedback from the people you serve.
Hosted an ALS Awareness Special, highlighting ALS advocacy, assistive technology and ALS research. This was in response to feedback concerning our cancellation of our annual Caregivers Conference due to Covid-19.
Equity Practices - No Data AvailableUnscored Equity Practices - No Data AvailableUnscored
This organization has not provided information regarding the Equity Practices it is presently implementing. As such, the organization has not earned a score on this metric. This assessment demonstrates the importance of implementing practices that contribute positively to an organization's overall culture, both internally and with respect to community engagement. Furthermore, equity centered frameworks and similar approaches have drawn much attention from donors, experts, and sector leaders who underscore its value to the nonprofit's overall health and capacity for mission success. Currently, the Equity Strategies Checklist assessment consists of practices and policies that promote racial equity in their operations and programs (per the Equity Strategies checklist administered by Candid). As we refine our DEI assessment, Charity Navigator partners with DEI consultants and field experts to broaden and deepen this work.
Score
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
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Full CreditPartial CreditNo CreditMission 10/10 points Mission 10/10 points
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission
Note: The organization did not respond to this question.
Vision 10/10 points Vision 10/10 points
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.
To create a world without ALS.
Source: Nonprofit submitted responses
Goals 20/20 points Goals 20/20 points
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: Provide, sustain, and expand premier services to the ALS community that exceeds level four on the Pathways to Excellence matrix.
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Goal Two: Promote the interdependence between care and research in our messaging and through our actions.
Goal Type: Focus on core programs to achieve mission and scale back on programs not seen as core.
Leadership Development 15/15 points Leadership Development 15/15 points
The nonprofit provides evidence of investment in leadership development
Describe an investment in leadership
Exceptional governance practices are key to developing healthy non-profit organizations. Staff and Board Members receive governance training to understand the roles and how they should work together in the most productive and balanced way. Many of our Board Members attend an 8 week Board Bootcamp to further their education.
Mobilizing for Mission 15/15 points Mobilizing for Mission 15/15 points
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
This organization mobilizes for mission in the following ways:
Raising Awareness
Community Building
Policy Advocacy
What are this organization’s external mobilizaton efforts?
We work closely with other non-profit organizations and leaders in the ALS Community to support rather than duplicate initiatives. An example of this is our sponsorship of Joe's Camp through the Joe Martin ALS Foundation. We financially sponsor the free camp for kids who are impacted by ALS and our Care Services staff participate in the camp activities and sessions. We also work to mobilize our constituents to support key legislation year-round.
Adaptability Story 30/30 points Adaptability Story 30/30 points
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
The Covid-19 pandemic forced us to rethink how we operate and how we deliver our programs and services. We adapted nearly everything we do to virtual processes, maintaining high levels of efficiency and productivity.
Impact & Results
Accountability & Finance
Culture & Community
Leadership & Adaptability
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