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FRISCO TX | IRS ruling year: 2005 | EIN: 61-1462062
Good Days is a national nonprofit 501(c)(3) charitable organization that lifts the burdens of chronic illness through assistance, advocacy, and awareness. Our vision ... (More)
Good Days is a national nonprofit 501(c)(3) charitable organization that lifts the burdens of chronic illness through assistance, advocacy, and awareness. Our vision is a world in which no one has to choose between access to care and everyday necessities so that people can have more good days. Since our founding in 2003, Good Days has provided more than 800,000 grants for healthcare resources. Throughout 2021 alone, we supported more than 260,000 individuals who faced a medical diagnosis that severely threatened their quality of life and financial wellbeing. (Less)
Great
This charity's score is 100%, earning it a Four-Star rating.
This overall score is calculated from multiple beacon scores: 32% Accountability & Finance, 50% Impact & Results, 7% Leadership & Adaptability, 10% Culture & Community. Learn more about our criteria and methodology.
We recognize that not all metrics and beacons equally predict a charity’s success. The percentage each beacon contributes to the organization’s overall rating depends on the number of beacons an organization has earned.
Use the tool below to select different beacons to see how the weighting shifts when only one, two, or three beacons are earned.
Rating histories are available for a growing number of rated organizations. Check back later to see if this organization has a rating history!
Review Before Proceeding - Reported SettlementOn June 24, 2020, The New York Times reported on a settlement entered into by Chronic Disease Fund Inc. in an article titled, “Regeneron Funneled Kickbacks Through a Patient Charity, Federal Lawsuit Claims.” For more information regarding this matter, please see The New York Times article.
On June 24, 2020, The Wall Street Journal published an article titled, "Justice Department Sues Regeneron Over Payments to Copay-Assistance Charity." For more information, please see The Wall Street Journal article.
On June 24, 2020, The New York Times published an article titled, "Regeneron Funneled Kickbacks Through a Patient Charity, Federal Lawsuit Claims." For more information, please see The New York Times article.
On September 27, 2021, FiercePharma published an article titled, "Biogen used charity giving to illegally boost multiple sclerosis drug sales, Humana lawsuit says." For more information, please see the FiercePharma article.
For more information about our alerts methodology, see here.
Chronic Disease Fund Inc. dba Good Days has earned a 100% for the Accountability & Finance beacon. See the metrics below for more information.
This beacon provides an assessment of a charity's financial health (financial efficiency, sustainability, and trustworthiness) and its commitment to governance practices and policies.
This Accountability & Finance score represents IRS Form 990 data up until FY 2021, which is the most recent Form 990 currently available to us.
Learn more
Full Credit
Partial Credit
No Credit
Not ApplicableBoard Composition - 5/6 - 35/35 ptsBoard Composition - 5/6 - 35/35 pts
Charity Navigator looks for at least 3 board members, with more than 50% of those members identified as independent (not salaried).
The presence of an independent governing body is strongly recommended by many industry professionals to allow for full deliberation and diversity of thinking on governance and other organizational matters.
Source: IRS Form 990
Independent Audit or Financial Review - N/A - 0/0 ptsIndependent Audit or Financial Review - N/A - 0/0 pts
An Audit, Review, or Compilation provides important information about financial accountability and accuracy. Organizations are scored based on their Total Revenue Amount:
| Total Revenue Amount | Expectation to Receive Credit |
|---|---|
| $1 million or higher | Expected to complete an audit |
| $500,000 - $1 million | Expected to complete an audit, review, or compilation |
| Less than $500,000 | No expectation (removed from scoring methodology) |
Source: IRS Form 990
Conflict of Interest Policy - Listed - 5/5 ptsConflict of Interest Policy - Listed - 5/5 pts
Charity Navigator looks for the existence of a conflict of interest policy on the Form 990 as an accountability and transparency measure.
This policy protects the organization and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer, director and/or key employee of the organization.
Source: IRS Form 990
Board Meeting Minutes - Documented - 5/5 ptsBoard Meeting Minutes - Documented - 5/5 pts
Charity Navigator looks to confirm on the Form 990 that the organization has this process in place as an accountability and transparency measure.
An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference.
Source: IRS Form 990
Document Retention and Destruction - Listed - 5/5 ptsDocument Retention and Destruction - Listed - 5/5 pts
Charity Navigator looks for the existence of a document retention and destruction policy per the Form 990 as an accountability and transparency measure.
This policy establishes guidelines for the handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promote data integrity.
Source: IRS Form 990
Whistleblower Policy - Listed - 5/5 ptsWhistleblower Policy - Listed - 5/5 pts
Charity Navigator looks for the existence of a whistleblower policy per the Form 990 as an accountability and transparency measure.
This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report financial or other types of mismanagement.
Source: IRS Form 990
Website - Listed - 5/5 ptsWebsite - Listed - 5/5 pts
Charity Navigator looks for a website on the Form 990 as an accountability and transparency metric.
Nonprofits act in the public trust and reporting publicly on activities is an important component.
Source: IRS Form 990
Full CreditPartial CreditNo CreditNot ApplicableLiabilities to Assets Ratio - 8.64% - 15/15 ptsLiabilities to Assets Ratio - 8.64% - 15/15 pts
The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990). This ratio is an indicator of an organization’s solvency and/or long-term sustainability.
| Liabilities to Assets Ratio | Amount of Credit Received |
|---|---|
| Less than 50% | Full Credit |
| 50% - 59.9% | Partial Credit |
| 60% or more | No Credit |
Source: IRS Form 990
Program Expense Ratio - 98.03% - 25/25 ptsProgram Expense Ratio - 98.03% - 25/25 pts
The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s). This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.
| Program Expense Percentage | Amount of Credit Received |
|---|---|
| 70% or higher | Full Credit |
| 60% - 69.9% | Partial Credit |
| 50% - 59.9% | Zero Points for Program Expense Score |
| Below 50% | Zero Points for Both Program Expense AND Liabilities to Assets Scores |
Source: IRS Form 990
No Data Available
Revenue and expense data is not available for this organization. This data is only available if this charity has at least one year of electronically-filed Form 990 data filed within the last six years.
No Data Available
Key Persons data is currently unavailable for this organization. This data is only available if this charity has at least one year of electronically-filed Form 990 data filed within the last six years.
Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website
Activities:
Activity data not reported from the IRS
Foundation Status:
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (Chronic Disease Fund Inc. dba Good Days) or EIN (611462062) in the 'Search Term' field.
This organization was impacted by COVID-19 in a way that effected their financial health in 2020. This normally would have reduced their star rating. Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them, and doing this pauses our revision of their rating. Charities may submit their own pandemic responses through their nonprofit portal.
Chronic Disease Fund Inc. dba Good Days reported being impacted by COVID-19 in the following ways:
Staffing
How COVID-19 impacted the organization's operations financially:
Our organization continued to provide assistance and resources for life saving and life extending treatments to people in need of access to care. Even the pandemic affected everyone across our country, people still unfortunately get sick and need help from organizations like Good Days.
How COVID-19 impacted the organization's delivery of programs:
There was no significant impact to our organization. We were able to deploy our remote operational plan to allow our Care Navigators to remotely continue to service people seeking access to care.
How this organization adapted to changing conditions caused by COVID-19:
Operationally, we were able to adapt without any significant impact. Our goal was to protect our team members and their families by implementing our remote operational plan, which allowed our team members to work from home and maintain social distancing. This allowed our Care Navigators to continue to perform their duties without having to worry about certain aspects of the pandemic.
Innovations the organization intends to continue permanently after the pandemic:
The remote operational plan was expanded to ensure all elements of our immediate business needs were met. We will continue to keep this emergency plan available, but we will continue to expand our ability to do it better with future system automation and enhancements.
Chronic Disease Fund Inc. dba Good Days has earned a 100% for the Impact & Results beacon. See the metrics below for more information.
This beacon estimates the actual impact a charity has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.
Learn more
Full CreditPartial CreditNo CreditNot Applicable
Program
Financial Assistance for Medical Conditions
Activities
Chronic Disease Fund provides financial assistance to patients with life-threatening, chronic or rare diseases.
Program Type
Financial Assistance for Patients with Medical Conditions
Beneficiaries Served
People with illnesses;People living in poverty
Program Geography
United States
Time Period of Data
1/1/2017 to 12/31/2017
Outcomes: Changes in the lives of those served by a nonprofit. They can be caused by the nonprofit.
Costs: The money spent by a nonprofit and its partners and beneficiaries.
Impact: Outcome caused by a nonprofit relative to its cost.
Cost-effectiveness: A judgment as to whether the cost was a good use of resources to cause the outcome.
Outcome Metric
Increase in income for a patient with medical conditions
Outcome Data Source
Ratings are based on data the nonprofit itself collects on its work. We use the most recent year with sufficient data. Typically, this data allows us to calculate direct changes in participants' lives, such as increased income.
Method for Attributing Outcomes
We don't know if the observed changes were caused by the nonprofit's program or something else happening at the same time (e.g., a participant got a raise). To determine causation, we take the outcomes we observe and subtract an estimate of the outcomes that would have happened even without the program (i.e., counterfactual outcomes).
We estimate the dollar amount of financial assistance attributable to the nonprofit by comparing the financial assistance given by the nonprofit to the financial assistance that would have been provided in the absence of the nonprofit (the “counterfactual”). In this case, we estimate the counterfactual to be zero based on two assumptions. First, we assume there is functionally no upper limit to the amount of cash transfers that continue to be valuable to patients as they are far from reaching the point of diminishing marginal returns, such that aid provided by one nonprofit does not displace aid provided by another. Second, we assume that nonprofits work independently and do not coordinate the provision of aid to the same patient. As a result, all aid provided by the nonprofit to patients with medical conditions can be directly attributable to the nonprofit.
Cost Data Source
After estimating the program's outcomes, we need to determine how much it cost to achieve those outcomes. All monetary costs are counted, whether they are borne by a nonprofit service deliverer or by the nonprofit’s public and private partners.
Cost Calculation
$249,630,960 program costs + $0 partner costs + $0 beneficiary costs = $249,630,960 total costs
We calculate impact, defined as the change in outcomes attributable to a program divided by the cost to achieve those outcomes.
Impact Calculation
$249,630,960 total costs / 245,652,987 of financial assistance provided = roughly $2,300 provides $2,300 in financial assistance to a patient in need.
Benchmark for Rating
Impact & Results scores of financial assistance to patients programs are based on income generated relative to cost. Programs receive an Impact & Results score of 100 if they increase income for a recipient by more than $1.50 for every $1 spent and a score of 80 if income increases by more than $0.85 for every $1 spent. If a nonprofit reports impact but doesn't meet the benchmark for cost-effectiveness, it earns a score of 65.
Determination
Highly cost-effective
No 990 Program Data Found
Chronic Disease Fund Inc. dba Good Days has earned a 100% for the Culture & Community beacon. See the metrics below for more information.
This beacon provides an assessment of the organization's culture and connectedness to the community it serves.
Learn more
Full CreditPartial CreditNo CreditNot ApplicableConstituent Feedback - Data Available - 100/100 ptsConstituent Feedback - Data Available - 100/100 pts
30% of beacon score
This organization reported that it is collecting feedback from the constituents and/or communities it serves. Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective.
Who are the people you serve with your mission? Describe briefly.
Good Days is a national non-profit advocacy organization that provides financial resources and patient advocacy for lifesaving and life-extending treatments to people in need that are affected by chronic and/or life-altering illnesses.
How is your organization collecting feedback from the people you serve?
SMS text surveys, Electronic surveys (by email, tablet, etc.), Paper surveys, Case management notes, Community meetings or town halls, Suggestion box/email, Other means
How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve
With whom does your organization share the feedback you got from the people you serve?
The people we serve, Our staff, Our board, Our funders, Our community partners
How has asking for feedback from the people you serve changed your relationship with them or shifted power - over decisions, resources, rules or in other ways - to them?
Feedback is essential to ensure that we are continuing to provide the highest level of service to those we serve as expected through our organization's culture and all regulatory and compliance requirements. By asking and receiving feedback, we are able to establish improved communication, consistency, transparency and trust with our internal and external clients/customers.
What challenges does your organization face in collecting feedback from the people you serve?
We don't have any major challenges to collecting feedback
Briefly describe a recent change that your organization made in response to feedback from the people you serve.
The development and rollout of our new Reimbursement App. It is available in the Apple and Google app stores. It was creates to improve the convenience and turnaround time in patients submitting claims for reimbursement. Additionally, we have enhanced our chat, SMS (text) and email offerings to better provide more efficient avenues of communication for those that we serve. This was especially beneficial for those that we serve during the pandemic.
Equity Practices - Data Available - 100/100 ptsEquity Practices - Data Available - 100/100 pts
70% of beacon score
This organization's score of 100 is a passing score. The organization reported that it is implementing 13 Equity Practices. Charity Navigator believes nonprofit organizations implementing effective equity policies and practices can enhance a nonprofit's decision-making, staff motivation, innovation, and effectiveness.
Equity Practices (7/7) | |
|---|---|
We review compensation data across the organization (and by staff levels) to identify disparities by race. | |
We ask team members to identify racial disparities in their programs and/or portfolios. | |
We analyze disaggregated data and root causes of race disparities that impact the organization/'s programs, portfolios, and the populations served. | |
We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support. | |
We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders. | |
We disaggregate data by demographics, including race, in every policy and program measured | |
We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization. | |
Equity Policies and Procedures (6/7) | |
|---|---|
We use a vetting process to identify vendors and partners that share our commitment to race equity. | |
We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions. | |
We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization. | |
We have community representation at the board level, either on the board itself or through a community advisory board. | |
We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability. | |
We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team. | |
We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization. | |
Chronic Disease Fund Inc. dba Good Days has earned a 100% for the Leadership & Adaptability beacon. See the metrics below for more information.
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
Learn more
Full CreditPartial CreditNo CreditNot ApplicableMission - 10/10 ptsMission - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission
THE ORGANIZATION'S GOAL IS TO IMPROVE THE HEALTH AND QUALITY OF LIFE OF QUALIFYING INDIVIDUALS WHO ARE DIAGNOSED WITH A CHRONIC OR LIFE ALTERING DISEASE BY PROVIDING CO-PAY, PREMIUM, AND/OR TRAVEL ASSISTANCE.
Vision - 10/10 ptsVision - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.
Our Purpose To lift the burdens of illness that force people to choose between available care and the necessities of everyday life. Our Position No one wants to get sick and no one should go without treatment that can prevent, delay or cure a life-altering disease. Our Call to Action We can’t do it alone. But together by caring, committing and connecting we can create more Good Days. Care. about those who need our help. Commit. to supporting Good Days. Connect. with our community.
Source: Nonprofit submitted responses
Goals - 20/20 ptsGoals - 20/20 pts
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: To continue to champion the mission to ensure that access to care programs remain available for those in need across the chronic and rare disease communities.
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Goal Two: Continue the expansion, growth and maturation of our CD Day Initiative to help increase awareness, education and recognition about reducing preventable illnesses with improved lifestyle choices.
Goal Type: This goal reflects our commitment to further our advocacy work for our organization and or cause area.
Goal Three: To continue to make access and results easier to obtain for anyone reaching out for assistance. This includes improved processes, services and technology.
Goal Type: Focus on core programs to achieve mission and scale back on programs not seen as core.
Leadership Development - 15/15 ptsLeadership Development - 15/15 pts
The nonprofit provides evidence of investment in leadership development
Development is an ongoing initiative for our team. In addition to industry webinars, we participate in key industry conferences (impacted due to COVID over the past 18 months), including the Health Advocate Summit most recently. Additionally, we are part of the United for Charitable Assistance Coalition that brings together numerous key patient assistance and advocacy organizations to stay abreast of industry changes and updates. Additionally, we hosted multiple webinars for as part of our Chronis Disease Day initiative that included key partners such as the CDC and NIH. We additionally participated in the UCA Coverage and Access forum.
Mobilizing for Mission - 15/15 ptsMobilizing for Mission - 15/15 pts
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
Strategic Partnerships
Networks of Collective Impact Efforts
Thought Leadership
Raising Awareness
Community Building
Policy Advocacy
We routinely engage in strategic partnerships through our Chronic Disease Day initiative (25 plus partners joined this year, 33 Governor proclamations). Additionally, we are an active member of the United for Charitable Assistance Coalition, which includes numerous patient advocacy and assistance organizations. This allows us to collective champion and fight for the chronic and rare disease communities. Though impacted by COVID, we routinely participate in key industry conferences throughout the year. We are an active member in our community as a member of the Frisco Chamber of Commerce and an active participant as an organization is local fundraising activities (i.e. Dallas Vision Walk, HIV/AID Walk). We are active on social media (Facebook, Instagram, LinkedIn) in addition to our quarterly newsletters. We also raise awareness through our annual Exchange event and Chronic Disease Day initiative.. Collectively with our partners and individually we are active in policy advocacy.
Adaptability Story - 30/30 ptsAdaptability Story - 30/30 pts
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
We were able to continue to assist people in need across the chronic and rare disease communities by implementing our remote operational plan. This allowed our Care Navigators to continue to service and meet the needs of anyone reaching out to us. Additionally, we were able to open a COVID-19 emergency relief program to assist people in need affected by the pandemic.
Impact & Results
Accountability & Finance
Culture & Community
Leadership & Adaptability
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