Support Charity Navigator

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The Desmoid Tumor Research Foundation Inc.

Mission

The Desmoid Tumor Research Foundation (DTRF) empowers and unites everyone committed to finding answers for the desmoid tumor community. We aggressively fund desmoid tumor research, accelerate the development of improved therapies, drive collaborations among clinicians and researchers worldwide, and support patients and doctors through education. Our goal is to find a cure for each and every patient diagnosed with this rare disease.

Vision

We ultimately aim to achieve a cure for desmoid tumors. We aim for a world where there are approved

Goals

1.Increase research - Priority #1: Act as a research catalyst and field builder to accelerate collaboration, discovery, translation, and trial readiness.
2.Expand patient education and support - Priority #2: Provide patients, caregivers, and clinicians with access to current, consistent, and evidence-based information and education to support informed decision-making and high-quality care.
3.Mobilize an engaged global community of desmoid patients, caregivers, and advocates - Priority #3: Engage and activate patients, caregivers, and advocates as partners in fundraising, awareness, advocacy, and research participation.

Philadelphia PA | EIN: 61-1493017

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

121 S Broad Street, 15th Floor,
Philadelphia PA 19107

Mail donations to: 121 S Broad Street, 15th Floor,
Philadelphia PA 19107

https://WWW.DTRF.ORG

215-760-3977

The Desmoid Tumor Research Foundation Inc.

Mission

Vision

We ultimately aim to achieve a cure for desmoid tumors. We aim for a world where there are approved

Goals

1.Increase research - Priority #1: Act as a research catalyst and field builder to accelerate collaboration, discovery, translation, and trial readiness.
2.Expand patient education and support - Priority #2: Provide patients, caregivers, and clinicians with access to current, consistent, and evidence-based information and education to support informed decision-making and high-quality care.
3.Mobilize an engaged global community of desmoid patients, caregivers, and advocates - Priority #3: Engage and activate patients, caregivers, and advocates as partners in fundraising, awareness, advocacy, and research participation.

Philadelphia PA | EIN: 61-1493017

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

121 S Broad Street, 15th Floor,
Philadelphia PA 19107

Mail donations to: 121 S Broad Street, 15th Floor,
Philadelphia PA 19107

https://WWW.DTRF.ORG

215-760-3977

Beacon Report

Great
Good
Needs Improvement
Poor
Incomplete
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

Disclosing the charity’s website promotes transparency and provides access to the public.

Source: Public data from IRS Form 990. Fiscal Year 2024.

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:No

SCORE0%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:No

SCORE0%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes Disclosing the charity’s website promotes transparency and provides access to the public. Source: Public data from IRS Form 990. Fiscal Year 2024.
100%	No Material Diversion of Assets:Yes
0%	Financial Statements:No
100%	Records Retention Policy:Yes
0%	Tax Form Disclosed on Website:No

Science behind the numbers

Nonprofit Resources

Nonprofit Resources

The Desmoid Tumor Research Foundation Inc.

Mission

Vision

Goals

The Desmoid Tumor Research Foundation Inc.

Mission

Vision

Goals

Beacon Report