Cure Rare Disease Inc.

Mission

Our mission is to enable and finance the development of life-saving genetic medicines for rare and ultra-rare patient populations previously deemed too rare to treat. To realize this, our unique ecosystem facilitates collaboration between world-renowned researchers and clinicians, policy experts and our generous donors. Together, we are fundamentally changing the rare and ultra-rare disease experience and burden for millions of people around the world with our discoveries and methods—while bringing hope to patients waiting for a cure.

Vision

A world where families do not have to fear a rare disease diagnosis.

Goals

1.Advance our first generation of therapeutics into clinical trials.
2.Advance new therapeutic delivery modalities to reduce cost, improve equitable access and make therapeutics safer.
3.Establish a reimbursement mechanism for the development of therapeutics for ultra-rare diseases to reduce the burden on patient families.

Woodbridge CT | EIN: 82-2473513

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

4 Research Drive,
Woodbridge CT 06525

https://cureraredisease.org

380-225-1879

Cure Rare Disease Inc.

Mission

Vision

A world where families do not have to fear a rare disease diagnosis.

Goals

1.Advance our first generation of therapeutics into clinical trials.
2.Advance new therapeutic delivery modalities to reduce cost, improve equitable access and make therapeutics safer.
3.Establish a reimbursement mechanism for the development of therapeutics for ultra-rare diseases to reduce the burden on patient families.

Woodbridge CT | EIN: 82-2473513

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

4 Research Drive,
Woodbridge CT 06525

https://cureraredisease.org

380-225-1879

Beacon Report

Great
Good
Needs Improvement
Poor
Not Scored
Additional Information

Program Expense Ratio:90.15% of total expenses

SCORE100%

Liabilities to Assets Ratio:42.15% of total assets

SCORE100%

Working Capital:1.45 years of reserves

SCORE100%

Fundraising Efficiency:$0.03 to raise a dollar

SCORE100%

Evaluation area metrics
Score	Metric
100%	Program Expense Ratio:90.15% of total expenses
100%	Liabilities to Assets Ratio:42.15% of total assets
100%	Working Capital:1.45 years of reserves
100%	Fundraising Efficiency:$0.03 to raise a dollar

Science behind the numbers

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Mission

Mission

Beacon Report