National Fragile X Foundation

Mission

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X includes: fragile X syndrome, fragile X-associated tremor/ataxia syndrome, and fragile X-associated primary ovarian insufficiency.

Vision

A world where every family is empowered to successfully navigate the Fragile X journey.

Goals

1.We will facilitate all research activities to help families understand their value in the research process and the opportunities to participate in order to advance effective treatments and a cure.
2.We will provide valuable educational tools and resources to families to help manage the day-to-day challenges of life with Fragile X.
3.We will empower families to successfully advocate for themselves and their children to successfully navigate the Fragile X journey.

WASHINGTON DC | EIN: 84-0960471

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1012 14TH ST NW STE 500,
WASHINGTON DC 20005-3406

Mail donations to: 1012 14th Street NW, Suite 500,
Washington DC 20005

https://www.fragilex.org

800-688-8765

National Fragile X Foundation

Mission

Vision

A world where every family is empowered to successfully navigate the Fragile X journey.

Goals

1.We will facilitate all research activities to help families understand their value in the research process and the opportunities to participate in order to advance effective treatments and a cure.
2.We will provide valuable educational tools and resources to families to help manage the day-to-day challenges of life with Fragile X.
3.We will empower families to successfully advocate for themselves and their children to successfully navigate the Fragile X journey.

WASHINGTON DC | EIN: 84-0960471

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1012 14TH ST NW STE 500,
WASHINGTON DC 20005-3406

Mail donations to: 1012 14th Street NW, Suite 500,
Washington DC 20005

https://www.fragilex.org

800-688-8765

Beacon Report

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Good
Needs Improvement
Poor
Not Scored
Additional Information

Website Reported on Tax Form:Yes

SCORE100%

No Material Diversion of Assets:Yes

SCORE100%

Financial Statements:Yes

SCORE100%

Audit Oversight Committee:Yes

SCORE100%

No Loans Reported To or From Officers:Yes

SCORE100%

Records Retention Policy:Yes

SCORE100%

Tax Form Disclosed on Website:Yes

SCORE100%

Accountability Panel
Score	Metric
100%	Website Reported on Tax Form:Yes
100%	No Material Diversion of Assets:Yes
100%	Financial Statements:Yes
100%	Audit Oversight Committee:Yes
100%	No Loans Reported To or From Officers:Yes
100%	Records Retention Policy:Yes
100%	Tax Form Disclosed on Website:Yes

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Mission

Mission

Beacon Report