National Fragile X Foundation

Mission

The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Fragile X is a family of genetic conditions, which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by gene changes in the same gene, called the FMR1 gene. Fragile X includes: fragile X syndrome, fragile X-associated tremor/ataxia syndrome, and fragile X-associated primary ovarian insufficiency.

Vision

A world where every family is empowered to successfully navigate the Fragile X journey.

Goals

1.We will facilitate all research activities to help families understand their value in the research process and the opportunities to participate in order to advance effective treatments and a cure.
2.We will provide valuable educational tools and resources to families to help manage the day-to-day challenges of life with Fragile X.
3.We will empower families to successfully advocate for themselves and their children to successfully navigate the Fragile X journey.

WASHINGTON DC | EIN: 84-0960471

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1012 14TH ST NW STE 500,
WASHINGTON DC 20005-3406

Mail donations to: 1012 14th Street NW, Suite 500,
Washington DC 20005

https://www.fragilex.org

800-688-8765

National Fragile X Foundation

Mission

Vision

A world where every family is empowered to successfully navigate the Fragile X journey.

Goals

1.We will facilitate all research activities to help families understand their value in the research process and the opportunities to participate in order to advance effective treatments and a cure.
2.We will provide valuable educational tools and resources to families to help manage the day-to-day challenges of life with Fragile X.
3.We will empower families to successfully advocate for themselves and their children to successfully navigate the Fragile X journey.

WASHINGTON DC | EIN: 84-0960471

Profile managed by nonprofit | Is this your nonprofit?

501(c)(3) organization

1012 14TH ST NW STE 500,
WASHINGTON DC 20005-3406

Mail donations to: 1012 14th Street NW, Suite 500,
Washington DC 20005

https://www.fragilex.org

800-688-8765

Beacon Report

Great
Good
Needs Improvement
Poor
Not Scored
Additional Information

Program Expense Ratio:80.27% of total expenses

SCORE100%

Liabilities to Assets Ratio:35.18% of total assets

SCORE100%

Working Capital:1.24 years of reserves

SCORE100%

Fundraising Efficiency:$0.09 to raise a dollar

SCORE100%

Evaluation area metrics
Score	Metric
100%	Program Expense Ratio:80.27% of total expenses
100%	Liabilities to Assets Ratio:35.18% of total assets
100%	Working Capital:1.24 years of reserves
100%	Fundraising Efficiency:$0.09 to raise a dollar

Science behind the numbers

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Mission

Mission

Beacon Report