Mission:

ICAN PROVIDES ADVOCACY, INFORMATION AND STRATEGIC OPTIONS FOR LATE-STAGE CANCER PATIENTS


 www.askican.org
 |  27 W MORTEN AVE Phoenix AZ 85021-7246

International Cancer Advocacy Network is headquartered in Phoenix, AZ, has an EIN of 86-0818253, and is a 501(c)(3) organization. Donations are tax-deductible.  It is classified by the IRS as a Charitable Organization, with a ruling year of 1996.

(Source: IRS Business Master File and Form 990)


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Encompass Rating System by Charity Navigator


Charity Navigator’s Encompass Rating System evolves on a quarterly basis as we add new measures and indicators, which we call Beacons. Check back often to see how this organization’s score changes.

Learn about the Encompass Rating System: Announcement | FAQ | Release Notes


Charity Navigator provides 501(c)(3) nonprofits with an Encompass Rating when we have available data. Please see the sections below for more information on why this organization is not currently rated.

This organization cannot be evaluated by our Encompass Rating methodology due to only having one year of data

To ensure year-to-year consistency the Encompass Rating System’s Finance & Accountability beacon analyzes the three-year average of some data provided through the IRS 990.
Charity Navigator currently only has one year of consecutive e-filed Forms 990 from the IRS for International Cancer Advocacy Network under the EIN: 86-0818253.
Before Charity Navigator can evaluate this organization, International Cancer Advocacy Network will need to e-file for additional fiscal years.


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...   Finance & Accountability


Charity Navigator evaluates a nonprofit organization’s financial health including measures of stability, efficiency and sustainability. We also track accountability and transparency policies to ensure the good governance and integrity of the organization.


This organization is ineligible for a Finance & Accountability score. Find out why.

...   Impact & Results


Charity Navigator will evaluate available data on the results that a nonprofit organization achieves towards delivering on its stated mission. There are many ways to assess such impact and we intend to experiment and develop leveraging various methodologies.


Impact & Results Score (BETA)

Coming Soon

Encompass Rating Beta V1 does not provide an evaluation of the organization's program impact and the results of its work. If a nonprofit organization submitted their self-report impact data to any of our partners it will be displayed below.



Impact & Results Rating Highlights

This organization's programs include:

Amount Spent
% of Program Expense
Program Description

$244,991

100%

ICAN PROVIDES PATIENTS WITH CANCER CASE MANAGEMENT, CLINICAL TRIALS AND MOLECULAR PROFILING OPTIONS ACROSS THE U.S. AND IN 53 COUNTRIES. ICAN OFFERS CUTTING-EDGE INFORMAITON AND REFERRALS TO WORLD CLA ... (More)

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Impact & Results Report

(Score Coming Soon)


This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Overview

Overview


Impact & Results data is available for this charity from one or more of our data partner organizations.

Impact & Results scores are not available in Encompass Rating System Beta V1.

GuideStar Platinum Seal of Transparency

GuideStar is Charity Navigator's trusted partner in sharing information on how this organization seeks impact. GuideStar has recognized this organization with a Platinum Seal of Transparency for voluntarily and publicly sharing information about how they measure their progress and results. Click here for more information.

Note: Encompass Rating Beta V1 does not incorporate impact data into a charity's rating.


Results Reported in 2019

600,000

Total revenue earned to support advocacy efforts

NOTE from our Governance Committee: GuideStar's "Add Year" feature is simply not working. ICAN has customized metrics not displayed. Please call us or please email us at ICANmetrics@askican.org.


550,000

Dollars donated to support advocacy efforts

We are pleased to receive donations from grateful patients and their families, the overwhelming majority of which is spontaneously given and not directly solicited.


7

Number of advocate or trained spokesperson citations in the media

ICAN's CEO is one of the leading voices in state legislative affairs & coalitions re the issue of access to personalized medicine.


36

Number of briefings or presentations held

Members of ICAN's staff, boards, and professional medical and scientific councils, brief execs, members of the public, and selected medical/scientific audiences on precision oncology issues.


22

Number of stakeholders/stakeholder groups with whom communication has been achieved and expectations shared

ICAN works with a wide range of stakeholders in our multi-stakeholder Exon 20 Group as well as our coalition and collaboration efforts with other orgs in the rare cancer and solid tumor spaces.


650

Number of policymakers or candidates reached

State Legislators; Members of Congress. ICAN does not have any involvement with political candidates or political campaigns. ICAN engages in public policy advocacy on patient access/precision onc.


25

Number of votes for or against specific policies

Policies include patient safety and physician-patient communication issues as well as transparency issues. Holding steady is the metric used here because some years are more intense than others.


2,200

Number of hours of coaching

Molecular Profiling and Clinical Trials Matching Services, regarding ordering, interpretation, triaging for therapeutic sequencing purposes. The metric we use for this is Holding Steady.


123

Hours of consulting time accessed

Stakeholders across the research continuum seeking our work on patient-centricity and patient-focused drug development. Because of our 24/7/365 patient navigation services, we have to limit our time.


225

Hours of mentoring

Health Disparities Advocacy Team mentoring in Linda Jenckes Health Care Public Policy Program at ICAN and other programs at ICAN.


210

Number of testimonies offered

These numbers do not include spontaneous emailed testimonials from patients, patient families, scientists, and clinicians, received on a near daily basis at ICAN.


340

Number of Exon 20 Insertion and Point Mutations enrolled in ICAN's Direct Navigation Services via the Exon 20 Group

ICAN offers Direct Patient Navigation to exon 20 insertion patients who are battling this very rare subtype now found in numerous cancers.


14

Number of External Organizations with which ICAN Leaders are Actively Engaged that Benefit ICAN's Personalized Medicine Programs

ICAN's CEO, Chair of the Biomarkers Council, & Director of Governmental Affairs are engaged in BIO, AfPA, ASBM, Stand Up to Cancer Dream Teams, SWOG, IASLC, PCORI, & ASCO Molecular Tumor Board etc.


5

Number of published articles and/or posters presented at conferences

This metric applies to ICAN's Personalized Medicine Cancer Case Navigation Programs as well as (beginning in 2017) ICAN's multi-stakeholder working group/international coalition, the Exon 20 Group.


22

Number of Board Governance Documents Added to the ICAN Governance Project

ICAN's Board specializes in board governance issues/docs, and our leadership has mentored on this issue (nonprofit board policies) as well as lectured on these issues to other nonprofit executives.



ImpactMatters Data


We display the ImpactMatters ratings on particular programs of nonprofit organizations. Click here for more information about ImpactMatters ratings.

Note: Encompass Rating Beta V1 does not incorporate impact data into a charity's rating.


GlobalGiving


GlobalGiving is the largest global crowdfunding community connecting nonprofits, donors, and companies in nearly every country. For donors, GlobalGiving provides an additional layer of vetting and due diligence for each of its nonprofit partners every two years, which may include site visit verification. Learn more about GlobalGiving.


GlobalGiving Data is unavailable

We display the GlobalGiving ratings on particular programs of nonprofit organizations. Click here for more information about GlobalGiving ratings.

Note: Encompass Rating Beta V1 does not incorporate impact data into a charity's rating.


Classy


Classy created the Annual Classy Awards to recognize the innovative work of nonprofits around the world. Since 2009, thousands of organizations have been recognized through the Classy Awards. Nominees complete a data-driven framework that helps them to understand and articulate the impact of their programs.


...   Leadership & Adaptability


Charity Navigator will provide an assessment of the organization’s leadership capacity, strategic planning, and the ability to readily innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization’s mission.


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...   Culture & Community


Charity Navigator will provide an assessment of the organization’s people operations, connectedness and engagement with the constituents and communities served, and Diversity, Equity and Inclusion measures.


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