Vision

A world where every child with Long COVID is fully recognized, supported, and protected in research, in medical care, and in education.

Goals

1. 1.Translate pediatric Long COVID research into action by publishing plain-language explainers and family resources, sharing them through partnerships with pediatric hospitals, public health departments, and schools in 10+ states, and contributing family-informed expertise to federal pediatric research priorities through NIH RECOVER and the annual Pediatric Research and Policy Agenda.
2. 2.Strengthen infrastructure by implementing HubSpot for contact and outcome tracking, recruiting three board members with medical or policy expertise, and establishing advisory and finance committees to guide fundraising, evaluation, and strategic growth.
3. 3.Lead national collaboration to ensure children with Long COVID are recognized and supported by developing the 2026 Pediatric Research and Policy Agenda, expanding partnerships with public health and education agencies, and creating new family-informed policy and research initiatives that address emerging needs.