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Ambler PA | IRS ruling year: 2003 | EIN: 90-0108854
Beyond Celiac is the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discove ... (More)
Beyond Celiac is the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure for celiac disease. Beyond Celiac believes in a patient-centered healthcare model that is grounded in science, promotes collaboration and supports a comprehensive approach to health and wellness. By engaging with the top scientists in the field, awarding research grants, and supporting the community, Beyond Celiac envisions a world in which people with celiac disease can live healthy lives and eat without fear - a world Beyond Celiac. (Less)
Great
This charity's score is 93%, earning it a Four-Star rating. If this organization aligns with your passions and values, you can give with confidence.
This overall score is calculated from multiple beacon scores: 85% Accountability & Finance, 10% Leadership & Adaptability, 5% Culture & Community. Learn more about our criteria and methodology.
We recognize that not all metrics and beacons equally predict a charity’s success. The percentage each beacon contributes to the organization’s overall rating depends on the number of beacons an organization has earned.
Use the tool below to select different beacons to see how the weighting shifts when only one, two, or three beacons are earned.
| Date Published | Form 990 FYE | Overall Score | Overall Rating |
| Rating Version: 2.1 | |||
| 2/1/2022 | 2020 | 91.75 | |
| 3/1/2021 | 2019 | 91.67 | |
| 2/1/2021 | 2019 | 91.20 | |
This organization received multiple star ratings within this fiscal year, due to an update to its Accountability and Transparency data and/or the receipt of an amended Form 990. | |||
| 7/1/2020 | 2018 | 89.52 |  |
| 8/1/2019 | 2018 | 89.14 | |
| 8/1/2018 | 2017 | 92.38 | |
| 7/1/2017 | 2016 | 91.74 | |
| 4/1/2017 | 2015 | 93.32 | |
The IRS is significantly delayed in processing nonprofits' annual tax filings (Forms 990). As a result, the Accountability & Finance score for Beyond Celiac is outdated and the overall rating may not be representative of its current operations. Please check with the charity directly for any questions you may have.
Beyond Celiac has earned a 92% for the Accountability & Finance beacon. See the metrics below for more information.
This beacon provides an assessment of a charity's financial health (financial efficiency, sustainability, and trustworthiness) and its commitment to governance practices and policies.
This Accountability & Finance score represents IRS Form 990 data up until FY 2020, which is the most recent Form 990 currently available to us.
Learn more
Full Credit
Partial Credit
No Credit
Not Applicable
Charity Navigator looks to confirm on the Form 990 that the organization has these governance practices in place.
Sources Include: IRS Form 990
| Independent Voting Board Members ... (More) The presence of an independent governing body is strongly recommended by many industry professionals to allow for full deliberation and diversity of thinking on governance and other organizational matters. Our analysts check the Form 990 to determine if the independent Board members are a voting majority and also at least five in number. (Less) | |
| No Material Diversion of Assets ... (More) A diversion of assets – any unauthorized conversion or use of the organization's assets other than for the organization's authorized purposes, including but not limited to embezzlement or theft – can seriously call into question a charity's financial integrity. We check the charity's last two Forms 990 to see if the charity has reported any diversion of assets. If the charity does report a diversion, then we check to see if it complied with the Form 990 instructions by describing what happened and its corrective action. This metric will be assigned to one of the following categories:
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| Audited Financials Prepared by Independent Accountant ... (More) Audited financial statements provide important information about financial accountability and accuracy. They should be prepared by an independent accountant with oversight from an audit committee. (It is not necessary that the audit committee be a separate committee. Often at smaller charities, it falls within the responsibilities of the finance committee or the executive committee.) The committee provides an important oversight layer between the management of the organization, which is responsible for the financial information reported, and the independent accountant, who reviews the financials and issues an opinion based on its findings. We check the charity's Form 990 reporting to see if it meets this criteria.
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| Does Not Provide Loan(s) to or Receive Loan(s) From Related Parties ... (More) Making loans to related parties such as key officers, staff, or Board members, is not standard practice in the sector as it may divert the charity's funds away from its charitable mission and can lead to real and perceived conflict-of-interest problems. This practice is discouraged by sector trade groups which point to the Sarbanes-Oxley Act when they call for charities to refrain from making loans to directors and executives. And the IRS is concerned enough with the practice that it requires charities to disclose on their Form 990 any loans to or from current and former officers, directors, trustees, key employees, and other "disqualified persons." Furthermore, some state laws go so far as to prohibit loans to board members and officers. And although employees and trustees are permitted to make loans to charities, this practice can also result in real and/or perceived conflict of interest problems for the charity. Furthermore, it is problematic because it is an indicator that the organization is not financially secure. (Less) | |
| Documents Board Meeting Minutes ... (More) An official record of the events that take place during a board meeting ensures that a contemporaneous document exists for future reference. Charities are not required to make their Board meeting minutes available to the public. As such, we are not able to review and critique their minutes. For this performance metric, we are checking to see if the charity reports on its Form 990 that it does keep those minutes. In the future, we will also track and rate whether or not a charity keeps minutes for its committee meetings. (Less) | |
| Distributes 990 to Board Before Filing ... (More) Providing copies of the Form to the governing body in advance of filing is considered a best practice, as it allows for thorough review by the individuals charged with overseeing the organization. The Form 990 asks the charity to disclose whether or not it has followed this best practice. If the charity has not distributed its Form 990 to the board before filing, then we deduct 4 points from its Accountability and Transparency score. (Less) | |
| Does not Compensate Board Members ... (More) The IRS requires that any compensation paid to members of the charity's governing body be listed on the Form 990. Furthermore, all members of the governing body need to be listed whether or not they are compensated. It is not unusual for some members of the board to have compensation listed. The executive director of the organization frequently has a seat on the board, for instance, and is compensated for being a full time staff member. However, it is rare for a charity to compensate individuals only for serving on its Board of Directors. Although this sort of board compensation is not illegal, it is not considered a best practice. (Less) | |
Charity Navigator looks to confirm on the Form 990, or for some metrics on the charity's website, that the organization has these policies in place.
Sources Include: IRS Form 990 and organization's website
| Conflict of Interest ... (More) Such a policy protects the organization, and by extension those it serves, when it is considering entering into a transaction that may benefit the private interest of an officer or director of the organization. Charities are not required to share their conflict of interest policies with the public. Although we can not evaluate the substance of its policy, we can tell you if the charity has one in place based on the information it reports on its Form 990. If the charity does not have a Conflict of Interest policy, then we deduct 4 points from its Accountability and Transparency score. (Less) | |
| Whistleblower ... (More) This policy outlines procedures for handling employee complaints, as well as a confidential way for employees to report any financial mismanagement. Here we are reporting on the existence of a policy as reported by the charity on its Form 990. (Less) | |
| Records Retention and Destruction ... (More) Such a policy establishes guidelines for handling, backing up, archiving and destruction of documents. These guidelines foster good record keeping procedures that promotes data integrity. Here we are reporting on the existence of a policy as reported by the charity on its Form 990. If the charity does not have a Records Retention and Destruction Policy, then we deduct 4 points from its Accountability and Transparency score. (Less) | |
| CEO Compensation Process ... (More) This process indicates that the organization has a documented policy that it follows year after year. The policy should indicate that an objective and independent review process of the CEO's compensation has been conducted which includes benchmarking against comparable organizations. We check to be sure that the charity has reported on its Form 990 its process for determining its CEO pay. (Less) | |
| Donor Privacy ... (More) Donors can be reluctant to contribute to a charity when their name, address, or other basic information may become part of donor lists that are exchanged or sold, resulting in an influx of charitable solicitations from other organizations. Our analysts check the charity's website to see if the organization has a donor privacy policy in place and what it does and does not cover. Privacy policies are assigned to one of the following categories:
The privacy policy must be specific to donor information. A general website policy which references "visitor" or "user" personal information will not suffice. A policy that refers to donor information collected on the website is also not sufficient as the policy must be comprehensive and applicable to both online and offline donors. The existence of a privacy policy of any type does not prohibit the charity itself from contacting the donor for informational, educational, or solicitation purposes. (Less) | |
Charity Navigator looks to confirm on the Form 990, or for some metrics on the charity's website, that the organization makes this information easily accessible.
Sources Include: IRS Form 990 and organization's website
| CEO Salary Listed on 990 ... (More) Charities are required to list their CEO's name and compensation on the Form 990. Our analysts check to be sure that the charities complied with the Form 990 instructions and included this information in their filing. (Less) | |
| Board of Directors Listed on Website ... (More) Our analysts check to see if the charity lists Board members on its website. Publishing this information enables donors and other stakeholders to ascertain the make up of the charity's governing body. This enables stakeholders to report concerns to the Board. Charity Navigator does not cross-check the Board members listed on the website with that reported on the Form 990, because the latter often isn't available until more than a year after the charity's fiscal year ends. In that time, the charity's Board members may have changed, and the charity typically reflects those more recent changes on the website. (Less) | |
| Key Staff Listed on Website ... (More) It is important for donors and other stakeholders to know who runs the organization day-to-day. Charity Navigator does not cross-check the leadership listed on the website with that reported on the Form 990 because the latter often isn't available until more than a year after the charity's fiscal year ends. In that time, the charity's leadership may have changed and the charity typically reflects those more recent changes on the website. In other words, since the Form 990 isn't especially timely, it can not be used to verify the leadership information published on the charity's site. (Less) | |
| Audited Financial Statements Listed on Website ... (More) We check the charity's website to see if it has published its audited financial statements for the fiscal year represented by the most recently filed IRS Form 990. It is important for donors to have easy access to this financial report to help determine if the organization is managing its financial resources well. We currently rate charities on whether or not they publish their audit on their website. (Less) | |
| Form 990 Available on Website ... (More) We check the charity's website to see if it has published its most recently filed IRS Form 990 (a direct link to the charity's 990 on an external site is sufficient). It is important for donors to have easy access to this financial report to help determine if the organization is managing its financial resources well. (Less) | |
Full CreditPartial CreditNo CreditNot ApplicableLiabilities to Assets Ratio - 8.10% - 10/10 ptsLiabilities to Assets Ratio - 8.10% - 10/10 pts
The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990).
Part of our goal in rating the financial performance of charities is to help donors assess the financial capacity and sustainability of a charity. As do organizations in other sectors, charities must be mindful of their management of total liabilites in relation to their total assets. This ratio is an indicator of an organization’s solvency and or long term sustainability. Dividing a charity's total liabilities by its total assets yields this percentage.
Source: IRS Form 990
Working Capital Ratio - 0.92 years - 7.5/10 ptsWorking Capital Ratio - 0.92 years - 7.5/10 pts
Determines how long a charity could sustain its level of spending using its net available assets, or working capital, as reported on its most recently filed Form 990. We include in a charity's working capital unrestricted and temporarily restricted net assets, and exclude permanently restricted net assets. Dividing these net available assets in the most recent year by a charity's average total expenses, yields the working capital ratio. We calculate the charity's average total expenses over its three most recent fiscal years.
Source: IRS Form 990
Fundraising Efficiency - $0.22 - 5/10 ptsFundraising Efficiency - $0.22 - 5/10 pts
The amount spent to raise $1 in charitable contributions. To calculate a charity's fundraising efficiency, we divide its average fundraising expenses by the average total contributions it receives. We calculate the charity's average expenses and average contributions over its three most recent fiscal years.
Source: IRS Form 990
Administrative Expense Ratio - 7.50% - 10/10 ptsAdministrative Expense Ratio - 7.50% - 10/10 pts
As reported by charities on their IRS Form 990, this measure reflects what percent of its total budget a charity spends on overhead, administrative staff and associated costs, and organizational meetings. Dividing a charity's average administrative expenses by its average total functional expenses yields this percentage. We calculate the charity's average expenses over its three most recent fiscal years.
Source: IRS Form 990
Fundraising Expense Ratio - 13.10% - 7.5/10 ptsFundraising Expense Ratio - 13.10% - 7.5/10 pts
This measure reflects what a charity spends to raise money. Fundraising expenses can include campaign printing, publicity, mailing, and staffing and costs incurred in soliciting donations, memberships, and grants. Dividing a charity's average fundraising expenses by its average total functional expenses yields this percentage. We calculate the charity's average expenses over its three most recent fiscal years.
Source: IRS Form 990
Program Expense Ratio - 79.20% - 8.34/10 ptsProgram Expense Ratio - 79.20% - 8.34/10 pts
The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s).
This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver. Dividing a charity's average program expenses by its average total functional expenses yields this percentage. We calculate the charity's average expenses over its three most recent fiscal years.
Source: IRS Form 990
Program Expense Growth - 10.20% - 10/10 ptsProgram Expense Growth - 10.20% - 10/10 pts
Organizations that demonstrate consistent annual growth in program expenses are able to outpace inflation and thus sustain their programs year to year. These organizations also supply givers with greater confidence by maintaining broad public support for their programs. We compute the average annual growth of program expenses using the following formula: [(Yn/Y0)(1/n)]-1, where Y0 is a charity's program expenses in the first year of the interval analyzed, Yn is the charity's program expenses in the most recent year, and n is the interval of years passed between Y0 and Yn.
Source: IRS Form 990
This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.
Presented here are this organizations key compensated staff members as identified by our analysts. This compensation data includes salary, cash bonuses and expense accounts and is displayed exactly how it is reported to the IRS. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. In some cases, these amounts may include compensation from related organizations. Read the IRS policies for compensation reporting
Alice Bast, CEO
$158,669 (8.61% of Total Expenses)
Current CEO and Board Chair can be found in the Leadership & Adaptability report below.
Source: IRS Form 990 (page 7), filing year 2020
Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website
Activities:
Activity data not reported from the IRS
Foundation Status:
Organization which receives a substantial part of its support from a governmental unit or the general public 170(b)(1)(A)(vi) (BMF foundation code: 15)
Affiliation:
Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)
The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to search for this organization's Forms 990 on the IRS website (if any are available). Simply enter the organization's name (Beyond Celiac) or EIN (900108854) in the 'Search Term' field.
This organization was impacted by COVID-19 in a way that effected their financial health in 2020. This normally would have reduced their star rating. Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them, and doing this pauses our revision of their rating. Charities may submit their own pandemic responses through their nonprofit portal.
Beyond Celiac reported being impacted by COVID-19 in the following ways:
Program Delivery
Fundraising Capacity
Revenue
Staffing
Grants Sent
How COVID-19 impacted the organization's operations financially:
Due to the pandemic, Beyond Celiac had to change or reschedule many of the planned in-person events which lowered both revenue and expenses. Most importantly, the impact of the pandemic delayed our mission to find a cure. For our science/research work, we made accommodations for our grantees who were tasked with shifting our program research efforts to developing a COVID-19 vaccine. Key researchers receiving a Beyond Celiac grant have found that some of the approaches being used in the celiac disease research will also be applied to the investigation of COVID-19, a significant and valuable adaptation.
How COVID-19 impacted the organization's delivery of programs:
Because of the COVID-19 pandemic, Beyond Celiac twice had to pivot our annual fall gala, our largest single fundraising event of our year, to a virtual format. The changes hindered event fundraising and, in some cases, put our original vendor/sponsor deposits at risk. Additionally, some clinical trial projects had to be postponed negatively impacting the project and associated revenue.
How this organization adapted to changing conditions caused by COVID-19:
All of the Beyond Celiac in-person community engagement events were converted to virtual programs. We also created new virtual programs to meet the needs of our community, including educational Town Hall meetings, mini-conferences, small virtual donor meetings replacing in-person events. For our science/research work, we made accommodations for our grantees who were tasked with shifting program research efforts to developing a COVID-19 vaccine. Key researchers receiving a Beyond Celiac grant have found that some of the approaches being used in celiac disease research will also be applied to the investigation of COVID-19, a significant and valuable adaptation.
Innovations the organization intends to continue permanently after the pandemic:
Programs that we expect to remain even after the pandemic is behind us include our virtual Town Hall series. Throughout the year, we will be hosting unique in-depth conversations with top experts in the field of celiac disease—including clinicians, scientists and advocates—as we aim to answer big questions about this serious genetic autoimmune disease brought to our attention by members of our celiac community. We also will continue our national virtual Step Beyond Celiac 5K series and the Beyond Celiac small donor cultivation events. A policy that we expect will remain is a remote work environment, which has been productive for our organization. While we may go back into office space, it will be smaller and more flexible, allowing us to continue to recruit staff without regard to geographic location and to save money on overhead.
Not Currently Scored
Beyond Celiac cannot currently be evaluated by our Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.
Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.
Learn More
Beyond Celiac reported its two largest programs on its FY 2020 Form 990 as:
Spent in most recent FY
Percent of program expenses
Diagnosis, Research, & Disease Management
Spent in most recent FY
Percent of program expenses
Great Kitchens
Beyond Celiac has earned a 100% for the Culture & Community beacon. See the metrics below for more information.
This beacon provides an assessment of the organization's culture and connectedness to the community it serves.
Learn more
Full CreditPartial CreditNo CreditNot ApplicableConstituent Feedback - Data Available - 100/100 ptsConstituent Feedback - Data Available - 100/100 pts
100% of beacon score
This organization reported that it is collecting feedback from the constituents and/or communities it serves. Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective.
Who are the people you serve with your mission? Describe briefly.
Beyond Celiac unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. Beyond Celiac serves the celiac disease and gluten sensitive community. These are people who have celiac disease, non-celiac gluten sensitivity (gluten sensitivity), their families and caretakers. In addition, we serve people who are concerned about having celiac disease or gluten sensivity and are seeking information about determining if they have celiac disease. Because the only treatment for celiac disease is the gluten-free diet, Beyond Celiac serves people who are associated with procuring, preparing and serving gluten-free food. This includes restaurants, chefs, schools and universities.
How is your organization collecting feedback from the people you serve?
Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings or town halls, Constituent (client or resident, etc.) advisory committees
How is your organization using feedback from the people you serve?
To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve
With whom does your organization share the feedback you got from the people you serve?
The people we serve, Our staff, Our board
How has asking for feedback from the people you serve changed your relationship with them or shifted power - over decisions, resources, rules or in other ways - to them?
The request for feedback from our community has been been very well received and brings the people we serve closer to our organization and the work that we are doing. Seeking feedback increases the trust that the people we serve have in our work and the information we share with them. Beyond Celiac relies on input from our community to ensure that we’re meeting their wants and needs when it comes to living with celiac disease. Because of this, Beyond Celiac created the Patient and Family Advisory Council, a group of passionate community members who are all affected by celiac disease in some way. We regularly look to this volunteer group. Their voice is at the center of everything we do at Beyond Celiac.
What challenges does your organization face in collecting feedback from the people you serve?
We don't have any major challenges to collecting feedback
Briefly describe a recent change that your organization made in response to feedback from the people you serve.
Beyond Celiac has developed and is conducting a series of virtual Town Hall meetings in direct response to a demonstrated interest from our community to hear from experts on specific topics related to celiac disease and asociated disorders.
Equity Practices - Data Available - UnscoredEquity Practices - Data Available - Unscored
The organization reported that it is currently only implementing 2 Equity Practices. At this time, organizations must implement 3 or more of these practices in order to be scored on this metric. Charity Navigator believes nonprofit organizations implementing effective equity policies and practices can enhance a nonprofit's decision-making, staff motivation, innovation, and effectiveness.
Equity Practices (0/7) | |
|---|---|
The organization did not respond to this question. | |
Equity Policies and Procedures (2/7) | |
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We use a vetting process to identify vendors and partners that share our commitment to race equity. | |
We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions. | |
We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization. | |
We have community representation at the board level, either on the board itself or through a community advisory board. | |
We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability. | |
We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team. | |
We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization. | |
Beyond Celiac has earned a 100% for the Leadership & Adaptability beacon. See the metrics below for more information.
This beacon provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.
Learn more
Full CreditPartial CreditNo CreditNot ApplicableMission - 10/10 ptsMission - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization's mission
THE NATIONAL FOUNDATION FOR CELIAC AWARENESS, DOING BUSINESS AS BEYOND CELIAC, UNITES WITH PATIENTS AND PARTNERS TO DRIVE DIAGNOSIS, ADVANCE RESEARCH AND ACCELERATE THE DISCOVERY OF NEW TREATMENTS AND A CURE. BEYOND CELIAC ENVISIONS A WORLD WHERE THE 1 IN 5 PEOPLE WHO ARE UNDIAGNOSED CAN RESTORE THEIR LIVES THROUGH A TIMELY AND ACCURATE DIAGNOSIS. BEYOND CELIAC SERVES THE 21 MILLION AMERICANS REQUIRING A GLUTEN-FREE DIET AS THE ONLY CURRENT TREATMENT. WE BELIEVE THAT PATIENTS DESERVE OPTIONS TO TREAT THIS CHRONIC AUTOIMMUNE DISEASE BEYOND THE GLUTEN-FREE DIET, WHICH HAS BEEN THE ONLY TREATMENT FOR CELIAC DISEASE. CURRENT RESEARCH IS PROVING THAT THE GLUTEN-FREE DIET IS NOT FULLY EFFECTIVE FOR MOST PEOPLE. WE AIM TO POSITIVELY IMPACT ALMOST EVERY ASPECT OF CELIAC DISEASE RESEARCH BY ELIMINATING A MAJOR BARRIER TO PROGRESS: THE LACK OF RELIABLE, IN-DEPTH PATIENT INFORMATION. OUR AGGRESSIVE RESEARCH AGENDA ADVANCES PATHWAYS TO NEW TREATMENTS AND, ONE DAY, A CURE.
Vision - 10/10 ptsVision - 10/10 pts
The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.
Since 2003, Beyond Celiac has been the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. By engaging with the top scientists in the field, awarding research grants, and supporting the community, finding treatment options and ultimately curing celiac disease will also advance research for other autoimmune diseases. We foresee a world where access to appropriate medical care and the standard of care that people diagnosed with celiac disease receive is consistent regardless of geography, social or economic boundaries. Beyond Celiac envisions a world in which people with celiac disease can live healthy lives and eat without fear – a world Beyond Celiac.
Source: Nonprofit submitted responses
Goals - 20/20 ptsGoals - 20/20 pts
The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.
Goal One: DEVELOPED A TRANSFORMATIONAL, PATIENT-CENTERED SCIENCE PLAN CHANGING THE FUTURE FOR THE 3.2M AMERICANS LIVING WITH CELIAC DISEASE, A SERIOUS AUTOIMMUNE DISEASE AND SECURING NEW TREATMENTS FOR A CURE.
Goal Type: Focus on core programs to achieve mission and scale back on programs not seen as core.
Goal Two: EXPAND THE BEYOND CELIAC NATIONWIDE FOOTPRINT, PROVIDING UNMATCHED SUPPORT FOR THE CELIAC DISEASE COMMUNITY. THE GO BEYOND CELIAC™ REGISTRY PROVIDES INFORMATION ABOUT THE CELIAC DISEASE EXPERIENCE.
Goal Type: Grow, expand, scale or increase access to the existing programs and services.
Goal Three: LAUNCHED A STRATEGIC PROJECT WITH NATIONAL MINORITY QUALITY FORUM (NMQF)TO “GEOMAP” CELIAC DISEASE AND NON-CELIAC GLUTEN SENSITIVITY ACROSS THE USA, WITH A FOCUS ON HEALTH DISPARITIES.
Goal Type: New program(s) based on observed changes in needs among our constituencies/communities served.
Leadership Development - 15/15 ptsLeadership Development - 15/15 pts
The nonprofit provides evidence of investment in leadership development
Beyond Celiac invests in leadership development as part of our commitment to develpment of our organization, including the following programs and training. - The National Health Council Executive Training attended by CEO & Board Member - Nonprofit Leadership Certificate program from Harvard Kennedy School - Support for Master of Public Health degree from The George Washington University - HeartMath training, Beyond Celiac/The Role of Heart in Human & Team Performance - Educational Development webinars attended by Development & Commmunications Department leaders - Nonprofit Innovation & Optimization Summit - Financial support for professional training for leadership and staff as selected for advancing their work with Beyond Celiac - Participation in the International Celiac Disease Symposium - Attendance at Digestive Disease National Coalition seminars - Participation in National Minority Quality Forum - Participation in Health Communications Conference
Mobilizing for Mission - 15/15 ptsMobilizing for Mission - 15/15 pts
The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.
Strategic Partnerships
Networks of Collective Impact Efforts
Thought Leadership
Raising Awareness
Community Building
Policy Advocacy
Hosting more than 2.3 million unique website visitors, shared social media content to more than 230,000 followers, providing our research e-newsletter and online videos, communications efforts, and related programs raise awareness and deepen community engagement while accelerating therapies toward a cure. The Reach Beyond Celiac Ambassador program builds supportive celiac patient networks.In partnership with celiac disease advocacy organizations, we call on legislators, FDA and NIH to advance bills and regulations related to improving life for the celiac disease and gluten sensitivity communities. We have active partnerships with pharmaceutcal companies and the food industry to support research in the field of celiac disease. We develop and host seminars, including the 2022 Research Symposium, that include representatives from pharmaceutical and insurance companies, the food industry, medical professionals, federal agencies and celiac disease patients to advance work in this field.
Adaptability Story - 30/30 ptsAdaptability Story - 30/30 pts
The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.
The most significant aspect of the external changes over the last year is that the entire Beyond Celiac staff moved from our office into our homes. In fact, we became homeless. Just as the pandemic arrived, the Beyond Celiac staff was one week away from moving into new office space. Our existing office building was sold with a complete overhaul of the building scheduled to begin in mid-March 2020. The pandemic caused the new office space to be off limits leaving us with no choice but to go home. Business as usual was out of the question. No visits to donors. No in-person meetings. No seminars or expos. Before long, we were living by Zoom to have virtual visits with donors and conferences. Beyond Celiac converted our planned annual fundraising gala to a virtual gala with panel discussions about the latest news about celiac disease research, a gluten-free cooking demo, live music and even a magician. Our Communications Team expanded our reach by adding many more videos, among other approaches, to introduce professionals in the celiac disease world to discuss the work they and Beyond Celiac are doing, along with educational information about celiac disease in general. We couldn’t have the annual gala or other events that brought in revenue to meet our mission of supporting the development of new treatments for a cure for celiac disease. So, we reached out to champions to help us. The Celiac Champions program is a community of our most dedicated donors who support our work with sustaining monthly gifts. Another crew, our Reach Beyond Celiac Ambassadors, focus on inclusion, establishing personal connections and building supportive networks for those with celiac disease and gluten sensitivity at every stage of life. Importantly, we expanded our workforce to provide a larger skilled national staff working remotely across the US. All in all, the Beyond Celiac Team has been able to move ahead with our mission during these challenging pandemic years.
Impact & Results
Accountability & Finance
Culture & Community
Leadership & Adaptability
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