Mission: From its origins in a tiny newspaper classified ad in 1966, the National Psoriasis Foundation has grown to be the largest psoriasis patient advocacy organization in  ... (More)

National Psoriasis Foundation is a 501(c)(3) organization, with an IRS ruling year of 1968, and donations are tax-deductible.

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Contact Information

  http://www.psoriasis.org

  6600 Southwest 92nd Avenue
Suite 300
Portland OR 97223 

  800-723-9166


You are viewing this organization's new Charity Navigator profile page. To view the legacy version, click here.

Star Rating System by Charity Navigator


Charity Navigator evaluates a nonprofit organization’s financial health including measures of stability, efficiency and sustainability. We also track accountability and transparency policies to ensure the good governance and integrity of the organization.




Good

This charity's score is 84.92, earning it a 3-Star rating. Donors can "Give with Confidence" to this charity. 

This score is calculated from two sub-scores:

This score represents Form 990 data from 2020, the latest year published by the IRS. 

View this organization’s historical ratings.


Back to Overall

Star Rated Report

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Program Expense

Program Expense Ratio

77.1%


The Program Expense Ratio is determined by Program Expenses divided by Total Expense (average of most recent three 990s).


This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver. Dividing a charity's average program expenses by its average total functional expenses yields this percentage. We calculate the charity's average expenses over its three most recent fiscal years.


Source: IRS Form 990

Administrative Expenses

7.8%


As reported by charities on their IRS Form 990, this measure reflects what percent of its total budget a charity spends on overhead, administrative staff and associated costs, and organizational meetings. Dividing a charity's average administrative expenses by its average total functional expenses yields this percentage. We calculate the charity's average expenses over its three most recent fiscal years.


Source: IRS Form 990

Fundraising Expenses

14.9%


This measure reflects what a charity spends to raise money. Fundraising expenses can include campaign printing, publicity, mailing, and staffing and costs incurred in soliciting donations, memberships, and grants. Dividing a charity's average fundraising expenses by its average total functional expenses yields this percentage. We calculate the charity's average expenses over its three most recent fiscal years.


Source: IRS Form 990

Liabilities to Assets Ratio

39.5%


The Liabilities to Assets Ratio is determined by Total Liabilities divided by Total Assets (most recent 990).


Part of our goal in rating the financial performance of charities is to help donors assess the financial capacity and sustainability of a charity. As do organizations in other sectors, charities must be mindful of their management of total liabilites in relation to their total assets. This ratio is an indicator of an organization’s solvency and or long term sustainability. Dividing a charity's total liabilities by its total assets yields this percentage.


Source: IRS Form 990

Fundraising Efficiency

$0.15


The amount spent to raise $1 in charitable contributions. To calculate a charity's fundraising efficiency, we divide its average fundraising expenses by the average total contributions it receives. We calculate the charity's average expenses and average contributions over its three most recent fiscal years.


Source: IRS Form 990

Working Capital Ratio

0.64 years


Determines how long a charity could sustain its level of spending using its net available assets, or working capital, as reported on its most recently filed Form 990. We include in a charity's working capital unrestricted and temporarily restricted net assets, and exclude permanently restricted net assets. Dividing these net available assets in the most recent year by a charity's average total expenses, yields the working capital ratio. We calculate the charity's average total expenses over its three most recent fiscal years.


Source: IRS Form 990

Program Expense Growth

2.65%


We compute the average annual growth of program expenses using the following formula: [(Yn/Y0)(1/n)]-1, where Y0 is a charity's program expenses in the first year of the interval analyzed, Yn is the charity's program expenses in the most recent year, and n is the interval of years passed between Y0 and Yn.


Source: IRS Form 990

Governance


Charity Navigator looks to confirm on the Form 990 that the organization has these governance practices in place.


Sources Include: IRS Form 990

Governance:
Independent Voting Board Members  ... (More)
No Material Diversion of Assets ... (More)

A diversion of assets – any unauthorized conversion or use of the organization's assets other than for the organization's authorized purposes, including but not limited to embezzlement or theft – can seriously call into question a charity's financial integrity. We check the charity's last two Forms 990 to see if the charity has reported any diversion of assets. If the charity does report a diversion, then we check to see if it complied with the Form 990 instructions by describing what happened and its corrective action. This metric will be assigned to one of the following categories:

  • Full Credit: There has been no diversion of assets within the last two years.

  • Partial Credit: There has been a diversion of assets within the last two years and the charity has used Schedule O on the Form 990 to explain: the nature of the diversion, the amount of money or property involved and the corrective action taken to address the matter. In this situation, we deduct 7 points from the charity's Accountability and Transparency score.
  • No Credit: There has been a diversion of assets within the last two years and the charity's explanation on Schedule O is either non-existent or not sufficient. In this case, we deduct 15 points from the charity's Accountability and Transparency score.
(Less)
Audited Financials Prepared by Independent Accountant ... (More)

Audited financial statements provide important information about financial accountability and accuracy. They should be prepared by an independent accountant with oversight from an audit committee. (It is not necessary that the audit committee be a separate committee. Often at smaller charities, it falls within the responsibilities of the finance committee or the executive committee.) The committee provides an important oversight layer between the management of the organization, which is responsible for the financial information reported, and the independent accountant, who reviews the financials and issues an opinion based on its findings. We check the charity's Form 990 reporting to see if it meets this criteria.

  • Full Credit: The charity's audited financials were prepared by an independent accountant with an audit oversight committee.

  • Partial Credit: The charity's audited financials were prepared by an independent accountant, but it did not have an audit oversight committee. In this case, we deduct 7 points from the charity's Accountability and Transparency score.
  • No Credit: The charity did not have its audited financials prepared by an independent accountant. In this case, we deduct 15 points from the charity's Accountability and Transparency score.
(Less)
Does Not Provide Loan(s) to or Receive Loan(s) From Related Parties ... (More)
Documents Board Meeting Minutes ... (More)
Distributes 990 to Board Before Filing ... (More)
Compensates Board ... (More)

Policies


Charity Navigator looks to confirm on the Form 990, or for some metrics on the charity's website, that the organization has these policies in place.


Sources Include: IRS Form 990 and organization's website

Policies:
Conflict of Interest  ... (More)
Whistleblower ... (More)
Records Retention and Destruction ... (More)
CEO Compensation Process ... (More)
Donor Privacy ... (More)

Donors can be reluctant to contribute to a charity when their name, address, or other basic information may become part of donor lists that are exchanged or sold, resulting in an influx of charitable solicitations from other organizations. Our analysts check the charity's website to see if the organization has a donor privacy policy in place and what it does and does not cover. Privacy policies are assigned to one of the following categories:

  • Yes: This charity has a written donor privacy policy published on its website, which states unambiguously that (1) it will not share or sell a donor's personal information with anyone else, nor send donor mailings on behalf of other organizations or (2) it will only share or sell personal information once the donor has given the charity specific permission to do so.

  • Opt-out: The charity has a written privacy policy published on its website which enables donors to tell the charity to remove their names and contact information from lists the charity shares or sells. How a donor can have themselves removed from a list differs from one charity to the next, but any and all opt-out policies require donors to take specific action to protect their privacy.
  • No: This charity either does not have a written donor privacy policy in place to protect their contributors' personal information, or the existing policy does not meet our criteria.

The privacy policy must be specific to donor information. A general website policy which references "visitor" or "user" personal information will not suffice. A policy that refers to donor information collected on the website is also not sufficient as the policy must be comprehensive and applicable to both online and offline donors. The existence of a privacy policy of any type does not prohibit the charity itself from contacting the donor for informational, educational, or solicitation purposes.

(Less)

Partial

Transparency


Charity Navigator looks to confirm on the Form 990, or for some metrics on the charity's website, that the organization makes this information easily accessible.


Sources Include: IRS Form 990 and organization's website

Transparency:
CEO Salary Listed on 990 ... (More)
Board of Directors Listed on Website ... (More)
Key Staff Listed on Website ... (More)
Audited Financial Statements on Website ... (More)
Form 990 Available on Website ... (More)

Additional Information

Unscored

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Total Revenue and Expenses

Total Revenue and Expenses

This chart displays the trend of revenue and expenses over the past several years for this organization, as reported on their IRS Form 990.

Salary of Key Persons

Presented here are this organizations key compensated staff members as identified by our analysts. This compensation data includes salary, cash bonuses and expense accounts and is displayed exactly how it is reported to the IRS. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. In some cases, these amounts may include compensation from related organizations. Read the IRS policies for compensation reporting



Randy Beranek, President And CEO

$309,022 (2.22% of Total Expenses)


Current CEO and Board Chair can be found in the Leadership & Adaptability report below.

Source: IRS Form 990 (page 7), filing year 2020

Business Master File Data

Below are some key data points from the Exempt Organization IRS Business Master File (BMF) for this organization. Learn more about the BMF on the IRS website


Activities:

Scientific research (diseases) (BMF activity code: 161)

Contact or sponsored scientific research for industry (BMF activity code: 180)

Other school related activities (BMF activity code: 059)


Foundation Status:

Organization which receives a substantial part of its support from a governmental unit or the general public   170(b)(1)(A)(vi) (BMF foundation code: 15)


Affiliation:

Independent - the organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations). (BMF affiliation code: 3)

Data Sources: IRS Forms 990

The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. Click here to view this organization's Forms 990 on the IRS website (if any are available).

Pandemic Response

Due to the unprecedented nature of the pandemic, we give charities such as this one the opportunity to share the story of COVID's impact on them. Charities may submit their own pandemic responses through their nonprofit portal.


National Psoriasis Foundation reported being impacted by COVID-19 in the following ways:
  • Program Delivery

  • Fundraising Capacity

  • Revenue

  • Staffing


How COVID-19 impacted the organization's operations financially:

NPF experienced a 12% revenue decline between fiscal years 2020 and 2021 due to the impacts of the pandemic. Fortunately, NPF applied for and received a Paycheck Protection Program loan, allowing the organization to maintain staff ratios. Later into the ongoing pandemic, NPF experienced a high degree of staff turnover, which has impacted the ability to fundraise at typical capacity. NPF has continued to see direct financial impact as a result of the pandemic. At the halfway point of the current 2022 fiscal year NPF anticipates a budget shortfall this year.


How COVID-19 impacted the organization's delivery of programs:

Our program related expenses include patient and professional education programs, many of which were held online and some of which were cancelled. NPF was also limited in our ability to fund certain research programs at the level expected due to lab and program closures during the pandemic. Additionally, the stay-at-home orders across the country meant staff were unable to get out to clinics, engage with patients, and do local programmatic work normally completed in person. NPF has successfully migrated programs to a virtual environment, whenever possible, but factors like these have created an environment where our program expense ratio to fundraising/management have been skewed.


How this organization adapted to changing conditions caused by COVID-19:

NPF pivoted all its events to virtual throughout 2020 and 2021. Board meetings, events, and staff work also moved online. The volunteer leadership of the organization stepped up to help support the mission through patient and professional education virtually and in person whenever possible. The NPF medical board continued to support continuing medical education programs and research initiatives despite the physical limitation caused by the pandemic. Additionally, our NPF COVID Task Force has been a leader in the community for both patients and health care providers. Since May 2020, the NPF COVID-19 Task Force has provided updated data-based guidance statements for NPF, health care providers, and the community. During this time NPF continued it educational podcast with more than 41,000 listens, while funding over $2.82m in psoriatic disease research, and engaging over 2,600 participants in education webinars.


Innovations the organization intends to continue permanently after the pandemic:

NPF will continue to offer virtual participation options for fundraising and community events whenever possible. NPF has also experienced success with virtual components of in person events, like the livestream of the annual research symposium. Additionally, by offering virtual community conferences, travel is no longer a barrier to participation, allowing the latest in psoriatic disease education and support opportunities to be delivered to a larger nationwide audience.


Historical Ratings

Date PublishedForm 990 FYEOverall ScoreOverall Rating
Rating Version: 2.1
12/1/20212020 84.92
11/1/20202019 84.81
6/1/20192018 91.44
7/1/20182017 91.32
7/1/20172016 91.62
9/1/20162015 92.94
6/1/20162015 90.23

This organization received multiple star ratings within this fiscal year, due to an update to its Accountability and Transparency data and/or the receipt of an amended Form 990.

Rating Version: 2.0
9/1/20152014 93.01
6/1/20142013 92.92
3/1/20132012 92.96
9/1/20122011 85.20
3/1/20122011 91.08
9/20/20112010 89.38
Rating Version: 1.0
7/1/20112010 85.29
11/24/20102009 81.57
5/1/20092008 82.33
4/1/20082007 66.74
3/1/20072006 79.51
3/1/20062005 76.45
2/1/20052004 85.78
3/1/20042003 87.90
11/1/20032002 96.00

Previous: Finance & Accountability  / Next: Leadership & Adaptability

...   Impact & Results


This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.


Impact & Results Score

Not Currently Scored

National Psoriasis Foundation cannot currently be evaluated by our Encompass Rating Impact & Results methodology because either (A) it is eligible, but we have not yet received data; (B) we have not yet developed an algorithm to estimate its programmatic impact; (C) its programs are not direct services; or (D) it is not heavily reliant on contributions from individual donors.

Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated the organization.

Learn more about Impact & Results.

Do you work at National Psoriasis Foundation? Join the waitlist for an updated Impact & Results score.


Back to Overall

Additional Information

Unscored

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Largest Programs

Largest Programs



National Psoriasis Foundation reported its three largest programs on its FY 2020 Form 990 as:


$4,169,934

Spent in most recent FY

39%

Percent of program expenses


Education, Outreach, and Patient Services


$1,203,555

Spent in most recent FY

11%

Percent of program expenses


Research and Professional Education


$1,251,397

Spent in most recent FY

11%

Percent of program expenses


Advocacy


Previous: Impact & Results  / Next: Culture & Community

...   Leadership & Adaptability


This score provides an assessment of the organization's leadership capacity, strategic thinking and planning, and ability to innovate or respond to changes in constituent demand/need or other relevant social and economic conditions to achieve the organization's mission.


Leadership & Adaptability Score

100

out of 100

The score earned by National Psoriasis Foundation is a passing score. This score has no effect on the organization's Star Rating.

Encompass Rating V4 provides an evaluation of the organization's Leadership & Adaptability through the nonprofit organization submitting a survey response directly to Charity Navigator.


Back to Overall

Leadership & Adaptability Report

100

of 100 points

Mission

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s mission


We will realize our vision by: 1: Leading collaborative, transformational research 2: Driving efforts to increase the lifespan and health of individuals living with psoriatic disease 3: Securing the human, technological, and financial resources necessary to achieve NPF's mission-related goals.


Source: Nonprofit submitted responses

Vision

The nonprofit organization presents evidence of strategic thinking through articulating the organization’s vision.


Our vision is to cure psoriatic disease and improve the lives of those affected.


Source: Nonprofit submitted responses

Strategic Goals

The nonprofit organization presents evidence of strategic thinking and goal setting through sharing their most important strategic goals.


Goal One: NPF will impact the quality of research on psoriasis. We will fund a diagnostic test for PSA, identify a predictive model for psoriatic diseases, and establish a multi-disciplinary research cluster.

Goal Type: New program(s) based on observed changes in needs among our constituencies/communities served.


Goal Two: To increase the impact of advocacy programs, NPF is committed to partnering with any organization engaged in advocacy efforts that address the needs of individuals with psoriasis.

Goal Type: This goal reflects our commitment to further our advocacy work for our organization and or cause area.


Goal Three: NPF will secure the human, technological and financial resources to achieve its mission. We will invest in staff, communications tools, and improve our business model to reach more people.

Goal Type: Grow, expand, scale or increase access to the existing programs and services.


Source: Nonprofit submitted responses

Leadership Development

The nonprofit provides evidence of investment in leadership development


Describe an investment in leadership

NPF makes formal investments in leadership development for staff, executive leaders, volunteers, and members of the Board of Directors. Through coaching and professional education, NPF strives to create an environment where staff and volunteers are equipped to lead with excellence. Staff members receive support from their supervisors to achieve their personal and professional goals. NPF also allocates online training resources for staff members to engage in professional learning in support of their job. The Board of Directors regularly conducts a self-evaluation against the best practices of leaders in their position and receives training during board meeting to improve their practice.

Source: Nonprofit submitted responses

Mobilizing for Mission

The nonprofit provides evidence of leadership through focusing externally and mobilizing resources for the mission.


This organization mobilizes for mission in the following ways:
  • Strategic Partnerships

  • Networks of Collective Impact Efforts

  • Thought Leadership

  • Raising Awareness

  • Community Building

  • Policy Advocacy

What are this organization’s external mobilizaton efforts?

NPF has a long tradition of working with grassroots advocates, the medical community, educators, researchers, and the pharmaceutical industry to achieve the goals of the organization. We prioritize collaborative partnerships to advance legislation and policy, publish an academic journal to advance research in the field, make research grants to fund advances in the cure and care of psoriasis, and we host community days where those affected by psoriasis can build a support network and learn to thrive despite their psoriatic disease. NPF works diligently to mobilize advocates in support of policy change at the local level and has successfully led policy initiatives such as step therapy reform. The advocacy team presses federal policy makers in support of more federal funding to support research at the CDC and NIH. NPF is active on social media, for example we are shining a spotlight on women who lead the field and make an impact addressing psoriatic diseases.

Source: Nonprofit submitted responses

Story of Adaptability

The nonprofit has an opportunity to tell the story of how the organization adapted to tremendous external changes in the last year.


NPF thrived amid external changes that impacted the organization and the global health community during the COVID-19 Pandemic. We were primarily affected by efforts to socially distance in medical facilities, support communities, and the broader public. The pandemic initially threatened our research efforts, our ability to provide support to those affected by psoriasis, and advocacy. NPF was able to adjust by moving to a virtual collaboration model leveraging and extending technology. We moved to regular virtual community meetings. Our researchers were able to leverage data systems to understand the disease better. Leaders in our community established a COVID-19 taskforce which developed Pre-Event Screeners for COVID allowing us to gradually open events safely as the world opened up. We launched new initiatives to survey and to understand the needs of people affected by the disease, health care systems, and medical management institutions. Finally, we were able to extend the life of our medical research grants to allow health care researchers to complete their data collection and compile research findings. While the global pandemic was a challenge, it allowed NPF to innovate and thrive in advancing our mission.

Source: Nonprofit submitted responses

Additional Information

Unscored

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Organization Leadership

Organization Leadership


Randy Beranek

President And CEO

Raymond Chip Newton

Chair

Previous: Leadership & Adaptability

...   Culture & Community


This score provides an assessment of the organization's culture and connectedness to the community it serves. Learn more about how and why we rate Culture & Community.


Culture & Community Score

100

out of 100

National Psoriasis Foundation has earned a passing score. This score has no effect on the organization's Star Rating. The organization provided data about how it listens to constituents (Constituent Feedback) (see report below).

The Culture & Community Beacon is comprised of the following metrics:

  • Constituent Feedback: 100/100 (100% of beacon score)

  • Diversity, Equity, & Inclusion: Not Scored


Back to Overall

Culture & Community Report

100

of 100 points

This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

Constituent Feedback

Diversity, Equity, & Inclusion


This organization has not provided information regarding the diversity, equity and inclusion (DEI) practices it is presently implementing. As such, the organization has not earned a score on this metric. Charity Navigator believes nonprofit organizations implementing effective DEI policies and practices can enhance a nonprofit's decision-making, staff motivation, innovation, and effectiveness.


Methodology


We are utilizing data collected by Candid to document and assess the DEI practices implemented by the organization. Nonprofit organizations are encouraged to fill out the Equity Strategies section of their Candid profiles to receive a rating.


Learn more about the methodology.

Constituent Feedback

100/100 points

100% of beacon score


This organization reported that it is collecting feedback from the constituents and/or communities it serves. Charity Navigator believes nonprofit organizations that engage in inclusive practices, such as collecting feedback from the people and communities they serve, may be more effective.


View this organization's Constituent Feedback Practices




Methodology


We've partnered with Candid to survey organizations about their feedback practices. Nonprofit organizations can fill out the How We Listen section of their Candid profile to receive a rating.


Learn more about the methodology.

Analysis and Research


Like the overall Encompass Rating System, the Culture & Community Beacon is designed to evolve as metrics are developed and ready for integration. Below you can find more information about the metrics we currently evaluate in this beacon and their relevance to nonprofit performance.


Constituent Feedback


Diversity, Equity, and Inclusion

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